Soooo tired!!

hi!

i also really struggled with the tiredness! i thought doing gentle exercise might help boost my energy a bit but it made me feel even worse ( and made the rash sting!). In the end i started taking berocca (effervescent vitamin tablets - super strong but not bad for you). they really helped. my rash has gone now (took about 5 weeks and sunbeds were the only thing that worked!) but i do still feel tired, not as much as i did, but a bit like the tiredness you get when you are fighting of a cold.

i would recommend the berocca and taking things as easy as possible....early nights!

Good news!! I have started to notice an improvement in my PR rash. I'm not sure what it is that has helped or whether or not it has just run its course and is starting to clear by itself. I have continued to use Head and Shoulders and instead of cream I have been using Calomine lotion.

The patches have faded considerably and are barely noticeable in places now. I am hoping that a sunny trip to spain in 3 weeks time will clear it up completely if it hasn't already gone by then.

Vitamin C has been good to relieve some of the tiredness and a session of reiki (if thats how ya spell it) has definately helped me to relax.

Hi Manxie,

Yep tiredness .... to be honest i have been on a 3 day week since June ..

My PR started i think in July along with aching joints then followed by a red almost blister like spot about 3cm Aug 9th just below my coller bone followed by a spreading rash down the righthand side and down my right arm then spreading further to my left side coller bone and down my left hand side only as far as my stomach then up to my face .

I have been exhausted ever since July

.

I really have struggled with fatigue but its beginning to subside now , this has been the first week i have noticed the rash beginning to fade also .

From what i can gather from my own symptoms when the rash really began on my face i started feeling a little faint at times also , im not sure if the feeling faint was to do with PR or the fact i was feeling so shatterd.

Other symtoms for me also included a strange taste in the back of my mouth. A dull headache to my right temple before the rash appeard a day later over my eyebrow and below my right eye.....this could have been coincedence or because i felt so tired who knows.

I delayed going to my GP until the end of Aug i just thought it was a Vitimin definciency.

My GP recognised it straight away and smiled then took out one of his old medical books to confim his diagnosis but warning me that there is no cure and you have to let nature take its course .... anywhere from 4 to 16 or 20 weeks which sucks , although im glad to say i think just think im over the worst of it and think it might be nearly over although i thought that a few weeks ago only to find it reared its ugly head again

Prior to me catching this virus i was doing 60 to 70 hour weeks in quite a stressful job of which i too belive could have helped me fall foul of this Virus .

I hope you get over it soon and although its not pleasent Virus ive foud reading others accounts pretty fascinating a the symtoms can vary so widly................Take care Chris

[b:73d3bbed78]PS please forgive the spelling and rambling of this reply its 4am lol[/b:73d3bbed78]

I'm freeeeeeee! no more rash and or side affects!

I'm so glad to tell you all that I have finally got rid of this horrible virus or whatever it is! I am completely clear or the rash including my huge Herald patch, which was the last thing to go.

I don't know what worked, if anything but I have just come back from Spain and the small amount of sun that we did have managed to clear the last of my rash. Prior to that the Calomine lotion and Head and Shoulders Shampoo combination seemed to help alot.

I cant tell you how pleased I am to be finally rid of it! fingers crossed it's the last i see of this horrrible thing!

Good luck to everyone in their recovery!

:-) xx

At 37 I was diagnosed with PR. I've noticed when the patches after the mother patch appear, I become very tired. Sometimes I don't want to get out of bed. But there is no cure and all we can do is push through it.

The day I was diagnosed, 10 others before me were diagnosed the same day.

I know this is an old post, but I appreciate reading it. I was officially diagnosed with PR last week. I'm 42 years old and have many of the same symptoms. Tired, taste buds in the back of my mouth were tingling, like the feeling you get eating something sour. Definitely a headache that Tylenol and ibuprofen doesn't help, plus the itching. I received my diagnosis 2 weeks in and glad to see I'm not alone. Reading these stories of other people's journey have given me hope!

Any advice would be great! 

I've had PR for 6 weeks now just seems to be getting worse and worse the doctors have gave me lots of tablets creams including steroid creams it seemed to be working but now it's all came back so tired and itchy all the time I've started using head and shoulders body wash doesn't seem to help any other tips?