stage 3 = ckd
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hi i got diagnosed a month ago with ckd stage 3... it been up and down for me...my function started at 59% 3 more blood tests it went down to 49% then 44% then up to 55%.....i new to this group... so it good to talk with others who have this
2 likes, 33 replies
MrsO-UK_Surrey christine30769
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louise5027 christine30769
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christine30769 louise5027
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louise5027 christine30769
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not everyone is the same or needs the same intervention but I would definitely be asking for clarification.
christine30769 louise5027
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louise5027 christine30769
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christine30769 louise5027
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louise5027 christine30769
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christine30769 louise5027
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laura23965 christine30769
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I was diagnosed in December with stage 3 function raging between 44and 47 egfr. I am constantly tired like you say but I was referred to a nephrologist and have undergone scans and various tests. I have been to my gp on various occasions between hospital visits due to exhaustion and back ache as some days it's so severe I struggle to get out bed but I get told to take vitimans. I was really frustrated by this as my gp is off long term sick and everytime I went the surgery I seen someone different and told something different even down to my back ache not bein my kidney but due to a pull or strain. I decided to change doctors a few weeks ago and have been today as again the pain is unbearable and the exhaustion extreme with headaches and fever the surgery was amazing I have had bloods done a scam arranged and on antibiotics as I have an extreme inflamed kidney. If I was you I would get a second opinion I have been diagnosed with Iga by my nephrogist currently awaiting medication as I have other underlying illnesses which now need to be investigated before I start any treatment I also suffer swelling of hands and feet xx
louise5027 laura23965
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I aways go to docs when I have back pain as it's usually a sign of an infection.I didn't go once and ended up in hospital for three days.
If your tired all the time get your GP to do a blood test for iron levels as some people with ckd have low iron levels.
I take iron tablets occasionally if I'm feeling tired. If you don't want to see GP add more iron to your diet.
christine30769 laura23965
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louise5027 christine30769
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You can't take responsibly for your ckd of your not fully informed and supported. With my GP I only have to ring up to say that I think I have an infection and the give me anti biotics and I take a sample in when I collect tablets and they phone with results.
Can you see a different GP? Even if it's only for reassurance.
christine30769 louise5027
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this is 3rd dr i have seen
louise5027 christine30769
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christine30769 louise5027
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MrsO-UK_Surrey christine30769
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I'm not a medic, just someone with lots of personal experience in matters relating to kidneys, having had only one kidney for some 50 years. I hope my following words help to reassure you.
When I was diagnosed with CKD3 about 8 years ago, I learnt from a friend that her doctor had told her that "the Government had opened a can of worms in requesting that this eGFR test should now be carried out on all patients undergoing routine blood tests (for instance when on medicines to treat raised blood pressure, etc) to determine whether or not reduced kidney function is as a result of disease or due to the ageing process, with the result that all his elderly patients were rushing off to renal consultants in a panic" (I was one of those!). So although many of us have been diagnosed with CKD3, it does not need intervention unless you have other problems that need investigating, such as raised blood pressure, diabetes, etc. I complained to my consultant that if it wasn't a serious issue at Stage 3 why were we labelled with the scary words 'Chronic Kidney Disease' in the first place. He agreed that it was an unfortunate name which emanated from the States.
I don't know what age you are, but if you are, say, in your 70's for instance, then many of us older generation can expect our kidney function to start reducing slowly due to a natural ageing process - we would never have known about it prior to this test as long as our creatine and protein tests remained normal. And your GP is correct in saying that with an eGFR of 55 it isn't necessary to refer you to hospital especially if you have no signs of other abnormal markers showing in your blood (creatinine, protein, etc) - the renal consultants would be inundated and unable to cope if everyone with CKD3 was unnecessarily referred - no treatment is needed.
I am under a renal consultant purely because I requested an initial appointment privately. I considered that with an eGFR of 42, only one kidney, and the need to ensure that I was being prescribed certain BP pills known to help rather than worsen my kidney function.
However, if you are experiencing unusual symptoms - for instance if your backache worsens rather than improves, then your GP should at least refer you for X-ray. If it is simply a pulled muscle, try donning a support girdle for a few days - I have a slipped vertebra in my spine and when I experience pain in the area, I soon recover by just wearing the girdle.
Another tip, anyone with CKD should not take anti inflammatories such as Ibuprofen - I believe that may be the culprit for the onset of my CKD. I had a kidney removed in my childhood (I am now 72) and only developed problems after having to take Ibuprofen for many months - medics knew I was taking it but no-one warned me about the risks until too late!
I do hope this helps to reassure you.
christine30769 MrsO-UK_Surrey
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christine30769 laura23965
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