Steroids for life!
Posted , 13 users are following.
Hi All,,, I'm just wondering how long we can stay on prednisolone to control our PMR??,,, 5 years, 10 years or in my case even 20 years as I was diagnosed at 50 years old!! I'm down to 6mg but often have to return to 10mg when the going gets tough!!! There isn't an alternative drug for PMR I've tried methotrexate but that didn't really help only nearly screwed my liver! Why I asked I'm thinking not to bother saving my pension plan to get at 67 years when my state pension kicks in, but to spend it now as I don't think I'll reach old age on steroids!! Many thanks for your thoughts Andrea xx
2 likes, 19 replies
jeanne333 andrea93419
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tavidu andrea93419
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iellen32 andrea93419
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Keep healthy, keep well. 🌸
Anhaga andrea93419
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Silver49 andrea93419
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erika59785 Silver49
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I tend to agree with you on this subject. Less stress more well being.
FlipDover_Aust andrea93419
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(how old are you?) I was 51 when diagnosed and I'm not planning on suffing out any time soon.
andrea93419
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I asked the question when I was feeling really down,,,,,, just come off methotrexate and my anxiety levels must have been rising!
Im 51 Flipdover, so I'll be on steroids for many years probably! But as you say if I look after myself I should be ok!
thank you all Andrea xx
FlipDover_Aust andrea93419
Posted
I was unwell for most of last year, and I hated my job - had no reason to go... I wanted to' retire' and stay home... thankfully a change in medication (I was put on MTX to reduce my pred dose) helped me phsyically and I changed jobs and now I'm loving it so much I am almost annoyed I'm going on a couple of weeks holiday next week!
So, how much things can change in a few months?..... I still feel angry and despondent at times that my life is not what I thought it was going to be at this age, but I am grateful that it is not terminal, and optimistic that I will recover and get my life back on track at some point.
Remember, it's not cancer. You are not dying from it, even though it is really bloody awful to live with.
andrea93419 FlipDover_Aust
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Many thanks it's good to know I'm not alone! Andrea xx
FlipDover_Aust andrea93419
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Every day I hate my life/body/PMR/drugs......
I don't feel like 'me'. My brain is addled and I don't know if it's the drugs or the condition. Maybe it's just me... maybe I'm depressed.. I just don't know anymore.
Anhaga FlipDover_Aust
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Anhaga FlipDover_Aust
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FlipDover_Aust Anhaga
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Anhaga FlipDover_Aust
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FlipDover_Aust Anhaga
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Nothing makes sense does it?
Anhaga FlipDover_Aust
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