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  3. Polymyalgia Rheumatica and GCA

Steroids for life!

Posted , 13 users are following.

andrea93419
andrea93419

Hi All,,, I'm just wondering how long we can stay on prednisolone to control our PMR??,,, 5 years, 10 years or in my case even 20 years as I was diagnosed at 50 years old!! I'm down to 6mg but often have to return to 10mg when the going gets tough!!! There isn't an alternative drug for PMR I've tried methotrexate but that didn't really help only nearly screwed my liver! Why I asked I'm thinking not to  bother saving my pension plan to get at 67 years when my state pension kicks in, but to spend it now as I don't think I'll reach old age on steroids!! Many thanks for your thoughts Andrea xx

2 likes, 19 replies

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  • beatrice74480
    beatrice74480 andrea93419

    Posted

    Hi I have been on Pred for 3years with PMR. I take 2.5mgs for 4 days then drop to 2mgs for a few days but then I feel achy.My Rhuematologist wants me off Pred asap. Been diagnosed with Osteoarthritis with inflammation.So hoping to transfer to a tablet for that.My last Esr was 5.
  • Sheilamac_Fife
    Sheilamac_Fife andrea93419

    Posted

    Ah, I really wanted this comment for beatrice74480 

    Beateice, it sounds as though you should try the Dead Slow Nearly Stop method of reduction. It's a lot easier on your body. 

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