Still feel unwell after Helicobacter Pylori Treatment

Hi, it is very difficult to say you got H. pylori because the digestive system is very complicated and different by each person. These symptoms can caused by H.pylori but without any test and/or endoscopy nobody will tell you what is your issue. I suggest to make these check-ups then go on the line to get healthy again. If you get H.pylori we also can give you advices what helps. Keep on!

Hi Tamas, thank you for getting back to me. I am running out of tests to do, so hope that this will be the next stage. I am worried something is wrong with my pancreas, although I have been assured this cannot be the case as my CT scan and blood work came back completely fine.

I took the stool test and have h pylori.

My GI did blood tests on my pancreas enzymes. 

Watch your diet, don't eat sugars or fats. Try to control your anxiety, for me I got it out of control and that created more problems. Keep exercising and be positive. Good luck!

Thanks Sandra, I appreciate the support and am doing all the things you suggested. I'm already sleeping a bit better, running a little and at 75%.

Sounds like it could be H Pylori. You might want to get tested. I had all the symptoms you mentioned and more ! There are an array of symptoms. Good luck.

Yes it does sound like you have h.plyori the symptoms are: nausea burping like a lot I was up to 20 a day stomach pains and burning shivering I found (even though I wasn’t cold )back ache heartburn. But they will tell you when they do the endoscopy because if you have it they will be able to tell by the mucus that’s in your stomach because the bacteria lives on this mucus to thrive.

Yes. That's exactly what I have experienced for 15 years because so many doctors had failed to diagnose me. I had lots of tests done and all came back normal so I ended up diagnosing myself and get the right treatment.

Uric acid can be by food or drinks as well (too much meat for example) or probably from medicines. I also have still sometimes stomach acid problems even if I was eradicited 4 months ago. PPI's are strong medicines but don't know if it is linked to after stomach acid or not.

I just read your post. I had H-PYLORI LAST year and it was eradicated. But it left me with several ulcers. So , now I'm dealing with those. If you Don't have ulcers , the pain will probably get less and less. At least most people's gets better like that. I should be so lucky. I'm a 71 year old man. Really getting tired of dealing with this junk. Hope all the best for you.

Joanna,

Drinking aloe Vera juice has helped me with the pain but in my case it is mild. Diet is important to keep your body clean and erradicate symptoms. Try not to stress because the pain gets worse. As Jessie says, ulcers may cause pain. Have you had an endoscopy? Make sure you don't have ulcers. I hope the pain goes quickly!

I am suffering like you, what helps me is warm apple cider vinegar with manuka honey and slippery elm.

Simply eat some small food such as rice and drink green tea. Time will helps.

Ohh, i am also taking probiotocs. The antibiotics can do a lot of bad things to your stomach and that may be the pain. Probiotocs and diet and aloe Vera juice help me with the pain.

To All of You who are suffering : This forum is great giving us hope.  Especially Tamas who has considerable knowledge re HELICO BACTER PYLORY, the oldest bug on earth.

In 2012, I went from being very active happy person within 1 day into the H PYLORY hell.  It started (on a trip abroad) together with a nasty influenza.  I had the same symptoms like many of you, lost 3 stone, unable to eat, constant nausea, instantly full and horrible pain when eating tiny amts. of food, totally weak, shaking,  and this stupid anxiety coming out of nowhere.  I was given PPI’s and felt even worse, acid coming up (I never felt acid before).  I don’t like them.   I was ill for 3 years, mostly in bed.  It took 3 years to get an HP diagnosis.  Because I was then unable to eat (nausea and pain), Doctors  then scared the hell out of me with suggested diagnosis ideas I won’t repeat re : ENT, Pylmonology, Cardiac, Pancreatic etc. (all turned out to be fine and the fears were unnecessary).   Finally after a Gastroscopy they found HP infection all over stomach plus 2 stomach ulcers plus gastritis.  I was happy to know the reason.    I went instantly through the Eradication Antibiotic Therapy. I was told I would feel instantly better.

Absolutely not true!  2 months later the same horrible symptoms were there, nothing had changed.  I had a 2nd Gastroscopy :  Helicobacter WAS eradicated.  The stomach ulcers had gone, moderate gastritis still there.  Why did I still feel so horribly ill?  My new Consultant suspected SIBO (Small Intestinal Bacterial Overgrowth, nothing to do with HP) and did a Hydrogen Breath Test.  SIBO I was told means, bacteria from large intestines have moved up into the small intestines, where they’re not meant to be and causing ‘trouble’ there.  I was positiv for SIBO.  As I was too run down the Consultant didn’t give me some other Antibiotics (the ones for SIBO) and asked me instead to go on the FODMAP diet.  It took forever ..... probably 7 month after the previous HP Eradication Therapy.  Very hard if you’re a very active person and not a patient person. I was doomed to feeling disabled.

But then after 7 months within a few weeks I had TOTALLY recovered. I was sometimes walking 15 miles on a Sunday and back to skiing.  I was in heaven!  I’ve never ever been so happy in my whole life.  For 2 years every morning I woke up and was so happy .... No anxiety whatsoever, just like in the old days before the HP horror.  I thought I was cured for good!

Sadly, in October 2017 after a Festival with food, my stomach went bad for 3 months however I somehow was still able to eat somehow...Then in Jan 2018, in addition, I got this Aussie flu ( the worst flu I ever had).  The flu is long gone but : Since 6 weeks I’m back to where I was 2 years ago.  It feels exactly the same.  Unable to eat, lost 2 stone, shaking, totally weak, unable to go anywhere,  all same symptoms.  And also ONLY in my stomach ..... no other symptoms in the lower abdomen.  Everything just the same as I felt in 2012. 

New tests for HP and parasites like E. coli, salmonella etc are fine (stool tests).  The results say :  No Helicobacter P,  no other 6 parasites (the ones that were tested).  

But why am I then so ill and can’t eat?  

I now have to do this Hydrogen breath test again, however I wonder whether this SIBO idea is leading me anywhere.  What does a diagnosis help if you are still ill?  Being patient is hard very hard.  But I have to.  I will do what all of you do :  never give up.

Thanks for the compliments. As I went through this hell I wanted to know this bacteria and what it cause. I read several books on this theme, talked many doctors and gastroenteorologs not in my country but abroad as well, did many check-ups (stool, ultrasound, blood, gastroscopy, breath test). I was talking to dietetics, tried several diets and many natural things as well, went through eradication therapy as well. Almost all the symptoms I know you guys write here.

In your case I think (but without check up can't say anything sure) the main problem is that your stomach is sensible at all and this bacteria destroyed it for 3 years (God, how could you survive it). You wrote in the last 2 years you were fine but I suppose the lining was damaged so deeply that the full recovery needs years yet even if you felt okay. Then last year you ate bad at festival what triggered the problems (but no H.pylori) and you got flu as well.

Some people has problems in stomach after a heavy flu even if his/her stomach is otherwise fine. My sister had the same symptoms with healthy and strong stomach after a flu for a week. You/we must recognize that we must be very carefully with stomach in future (I drunk a lot of coke for example before, now never anymore). In your recent case if doctors can't find reason I should suggest you a diet and green tea and walk/light move as much as you can, no spicy, no sugar, no foods stimulates stomach lining etc. I pay attention to eat in every 3-4 hours and avoid that acid could work in stomach without food. I am sure if you recovered once you will get better soon. By the way if you were tested now against pylori it is never 100% result and in small dose often does not show the test as well. This pylori has about 50 types worldwide (maybe more but these are discovered), some destroy stomach very fast and soon some has no effects at all. And don't forget that the microba of stomach is not discovered at all, this is like the deep ocean, some bugs we know but many not yet. If your stomach has injured so much in the last years the smallest infection can cause such problems but immune system stronger than we immagine. One doctor explained me how antibiotics works: they only weaken the bacteria but immune system kills them. It is a mistake to think that antibiotics kills anything, it can not do it, the hard work is made by immune system. Sometimes happens that 2-3% of H. pylori cases can heal without antibiotics only by immune system (of course it needs a very strong immune system). One of my friend has autoimmune disease and he receive often steroids what stimulates his immune system so strongly that if he got a flu he is sick for a day at all. As you can see the key factor is the immune system. Some other said that if candida grew up in your stoomach it also can makes such effects as you have now. A weak stomach plus a food infection after a bad food can cause such problems as well. Difficult to say what you have now.

I will be interested what doctors say to you for this issue. Take care!

Hi tamas remember my anxiety has been throughout the roof because the first found of antibiotics did not work and I had to have another 14 days of antibiotics! I had my endoscopy was worried waiting for results back from biopsy for eradication but my stomach looks fine doctor said so hoping it’s gone keep you posted 😐