Still feel unwell after Helicobacter Pylori Treatment
Posted , 107 users are following.
Hi,
I had symptoms for about 2 months, nausea and upper abdominal gwaning feeling, plus appetite affected and had waves in the day feeling generally unwell , I think it was brought on due to a stressful situation. I went to the doctors and tested positive for helicobacter pylori. I have completed the 7 day treatment (Triple Therapy.) I was on 400mg Metronidazole 3 times a day, Amoxicillin 500mg 3 times a day and Omeprazole 2 times a day. I've been off the medication for about 11 days. I have waves of extreme tiredness, abit sickly feeling, sick upper abdominal feeling, tounge doesn't look right, been given thrush treatment for this. And also I have waves of soreness and swelling feeling in the upper stomach. I have lost a bit of weight, a few pounds. I have been off work for a month in total and am wondering if I will ever get my health back?
I take probiotic tablets, Manuka honey, peppermint tea, abit of yoga, walking, plain foods. But admittedly at times I do feel a little bit destressed when I have waves of not feeling so good. Everyday is a battle at the moment. Plus when I go to the loo, last week my stools were acidic, this week a slight improvement, but not normal. The doctor just said they can retest in another 3 weeks. But sometimes I feel so ill.
Any advice in a positive way forward?
6 likes, 418 replies
alex311 louise63558
Posted
Guys
?Don't expect to feel good right away after H Pylori treatment. My Doc explained to me that this MONSTER made holes in your lining which now need to be healed. Everything in your stomach (and mine) is still raw and sensitive and its in our hands to make the healing process faster. Good diet, supplementation, exercise, stress relieve and positive attitude. these are the recommendations of my doctor. Everything in life takes time. Healing too.
tamas92825 alex311
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jessie92598 tamas92825
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Had H-PYLORI Sept 2016. My stomach still gives me lots of problems. The only thing that's gone is the neausia. Having another endoscopy Thursday to see if ulcers have gotten worse. Stress seems to be my major problem.
tamas92825 jessie92598
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sandra18523 alex311
Posted
Alex, I am glad that you have a doctor who had an answer and recommendations for you. I found all this you mentioned looking on line and following these chats because my Dr did not pay much attention to h pylori as the reason for my symptoms. Please, share with us your doctor's comments because in my case, they don't offer real answers, just more medication for anxiety and stomach pains.
bob37365 louise63558
Posted
I am going through the same pain after taking two weeks of antibiotics for hPylori. I am still waiting to be tested again to see if it is still present in my system.
Its been almost a month since I have been off of the antibiotics and I noticed that my stomach is making alot of gurgling sounds constantly, really annoying and hard to sleep at night, does anyone else here experience the same?
I appreciate finding this forum and hearing everyones posts, makes me feel not so alone.
Thanks,
Bob
tamas92825 bob37365
Posted
sandra18523 bob37365
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Bob, it takes time to heal. Even when we feel better, we should keep the good diet. I am learning to control myself and do not eat what the rest of my family eats!! It's hard but if we don't want these symptoms back we need to be strong in regards to those fatty and sweet treats. I always say that I am going to try something fatty or sweet because I feel better and then, the stomach pain comes back. For me carbs are not good and I have to limit them to two slices of glutten free bread a day. No pasta, no glutten free chips, no bread and I feel better. The Dr. Told me to take Rifaxan (which is very expensive) in case I had other bacteria but after the H pylori treatment I don't want more antibiotics on my body. I am sure they triggered the bacteria and they did not even erradicate it! Try Probiotocs, they help me with stomach pain. I hope you feel better.
sandra18523
Posted
runbeth bob37365
Posted
Hi Bob,
It's been 4 weeks since I finished the antibiotics. I have also had some minor stomach upsets. However, I stick to a whole foods plant based diet with minimal sweets and fats and no spicy foods, and I manage just fine. I've been told it can take several months to get back to normal.
Exercise helps me too !
Good luck and hang in there.
jessie92598 bob37365
Posted
About all I can say is anxiety has a lot to do with feeling better or not. I was treated for H-Pylori 8 months ago. It was eradicated. But it left a few ulcers. So I continued eating the foods suggested. But the pain persisted. Had HIDA scan thing maybe the pain was caused by gallbladder , pancreas or liver. Turned out fine. Had a heart catheterization, thinking maybe trouble with blood supply. Turned out fine. Had colonoscopy. Turned out fine. Had another ultrasound last week of spleen , pancreas and liver last week. Turned out fine. Today , I had another endoscopy. No ulcers , no more gastritis but slight esauphagitis. Doc said my biggest problem seems to be continued worrying about H-Pylori conning back which has probably caused my symptoms due to anxiety. So I suppose He's right. Now I just need to figure out how to stop worrying about it. Easier said than done . An experience thats not easily forgotten. Hope you and everyone else deals with this better than I have.
jessica79087 sandra18523
Posted
I’m going through the treatment for h pylori still!! It’s horrible I think I’ve had every symptom under the sun honestly I feel like it will never stop.... the most annoying thing is having high anxiety, shortness of breath... and crying spells omg... i don’t know if it’s because i just don’t feel well or what! I have 3 more days on the meds and it’s horrifying I feel my husband is so sick of dealing with me 😢 someone please tell me it’ll be okay...
tamas92825 jessie92598
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jessie92598 tamas92825
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Well I completely understand Tamas. I never thought I would be like this when I started the treatment. Thinking about it though makes me realize He's probably right. Just about convinced myself I had cancer or something. I really did spend a lot of time thinking the worse. So , now I'm gonna work on good thoughts and go fishing every day or whatever. Don't want to be like this the rest of my life. Think I'll just cut my grass and get busy with my hobbies. Whatever works on getting my mind somewhere else. 😊 a clear endoscopy did convince me that there's no problem in my stomach though , so that should help , just knowing that. Hope we both get through this junk. Keep us posted on how your doing and what you find out. Good luck to you.
sandra18523 tamas92825
Posted
Tamas,
Please, do not loose your positive attitude. We need to change our mind set and know that everything is going to be fine, it will take time but we will feel better. For me it is hard not to eat everything I used to eat but I guess I have to look at the good things such as better health in general if I continue eating healthy. i don't feel as shaky as before and that shows things get better. Take care, I wish you the best.
sandra18523 jessica79087
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tamas92825 sandra18523
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LCat tamas92825
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LCat jessie92598
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bob37365 sandra18523
Posted
I have tried several types of probiotics such as hyperbiotics pro 15 and it makes me bloated? is this normal and just a side effect of probiotics that will subside after regular use?
I decided to ferment my own saurkraut in the hopes of saving some money on buying probiotics but I am wondering if fermented vegetables are as effective as the probiotic pills?
I also started drinking aloe vera juice to help soothe my stomach pains a little, I buy the aloe vera juice from walmart, which says its 98% pure, has a bland taste that my stomach seems to like.
Thanks,
bob
bob37365 runbeth
Posted
I will try to excercise more.
Thanks,
bob
bob37365 tamas92825
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I just wish it was a quicker recovery, I feel bad that I cannot do the simple things like play catch with my 9 yr old daughter.
Thanks,
bob
runbeth bob37365
Posted
Taking care of my family was tough during the 4 weeks I was on the couch or in bed with h pilori and my husband was traveling. It's only temporary is what I told myself.
I took probiotics, which is vegan and shelf stable. I drank pure aloe vera.
For the forseeable future, I wil stick to a very clean unprocessed low sugar/fat diet, low stress activities, hydration, etc. I've tested the waters and for me, this works (or I feel sick).
Support from this group has been helpful.
Thank you, Social Media.
jessie92598 LCat
Posted
No Cat , I haven't received your reply. Just got back from a 3 mile walk. I must say , the wall did take my mind off the pain in my stomach. Since everything has cleared up , I guess it just left soreness in my stomach lining. The exercise did seem to do some good though. So maybe that's my answer. Have no intention of changing my new eating habit though . The suggestions I've found on eating apparently have worked on healing most problems in my stomach caused by the H-PYLORI , EVEN THE ulcers.
jessie92598 LCat
Posted
Without the info I've found here , I would probably have just jumped off a cliff somewhere.😂😂..but all the people helped tremendously. Now , it's just mind over matter. I feel as though a 100 pound weight has been lifted off my shoulders. "GOING FISHING"...😊
LCat jessie92598
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jessica79087 sandra18523
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LCat jessie92598
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I’m so glad this forum exists. Many people feel like me. I’m just so disappointed that this horrible thing is back. It needs a lot of patience.
jessie92598 LCat
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jessie92598 LCat
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So sorry to hear that. One thing is certain with me. I'll be careful of what I eat for the rest of my life. I Don't ever want to take the chance of going back there. I've had heart bypass surgery and I can say , with authority, H-PYLORI is a lot harder to recover from.
sandra18523 jessie92598
Posted
Ohh Jessie, you saying that makes me feel less guilty for not been the best wife and mother for the past 4 months!the anxiety I got after the treatment has taken my life until the point I feel I am going to die of a hearth attack! Some days are better but reading your words make me feel I am not crazy! I too will keep my diet for the rest of my life hoping to make this bacteria suffer without sugar and carbs! But I won't take antibiotics anymore. People tell stories of erradication and then the bacteria is back! I will stick to my diet! Thanks for sharing your experience!
sandra18523 jessica79087
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Jessica, the antibiotics did not erradicate it. My Drs have not been very helpful and they don't think eradicating the H pylory is a priority. For them, My symptoms are a case of anxiety because they say many people live with h pylori. I know anxiety plays a huge role so I am working on that. Hard and it will take time. I don't want to take more antibiotics and I will try to be careful with what I eat, that is my plan for now. Probiotocs and acupuncture and aloe Vera juice for hurtburn. Manuka honey, although I don't know if it is really helping. I tried mastic gum but I felt some side effects so no mastic gum for me. I hope every day is a better day for all of us!
jessie92598 sandra18523
Posted
Thank you for the comments. For the longest all I've ever seen on her is how people were feeling sooo much better after eradication. Don't remember anyone talking about how much anxiety comes with this and that anxiety can cause this thing to linger on forever. The anxiety has made me into a tyrant , I think. And I realized , that's not who I am. Anyway , I'm just thankful some little piece of info I could share might help someone. Have a feeling it might still take time but at least I know that's probably what has had me down all this time. Hope you feel better from now on. We have to just not quit trying.
sheltie64 bob37365
Posted
Hi all - it has been several weeks since I last posted on here - sorry my life seems to have taken and my thoughts and worries don't return to my gut so much now.. Bio 82 for two weeks and then started on prebiotics along with probiotics - recommended by my nurse daughter. This I feel made the biggest difference of all. along with this it's exactly as you all say - don't eat wheat, milk products, spicy food, etc. I've started introducing one slice of bread each morning with Manuka honey and then eat sensibly the rest of the day. I take Alu-caps 5 times a day and i drink Maalox after every meal. if I forget the tabs, then i often get paid and heartburn so then i drink the Maalox. i was told by surgeon that gastritis takes months to heal and, so i think what is giving me the pain is the ulcers as it's very high up under my sternum. I see the GP on Monday to find out what the next step is to help my recovery. I was also diagnosed with excess bile and they think this is what is causing the heartburn. As you have all rightly mentioned this takes time and patience and support from your family, but I do feel that I have made huge steps in the right direction now and this is now almost four months in since diagnoses. Stick in there everyone and know that you will each improve individually in your own way and will dwell on this less and less. Fantastic group for support - well done to everyone for sharing xx
bob37365 sheltie64
Posted
Did the probiotics make you feel bloated as well?
Its hard to believe that now I have to take a couple beano pills in order to eat or else I get bloated.
Thanks,
Bob
runbeth sandra18523
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tamas92825 LCat
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tamas92825 sheltie64
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"I only feel bloated if I eat wheat." - did you try more different types of wheat products? (without sugar etc). Sometimes happens that pylori stimulates gluten allergy (if you are sensitive for that).
LCat tamas92825
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LCat jessie92598
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LCat jessie92598
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jessie92598 LCat
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Yes ! Most doctors just believe what other doctors or an article in a medical journal tell them. They Don't truly understand until they actually go through it. You can tell them all day , but they think , well , that Can't be true because the journal says it's not. The surgeon who did my bypass just had a heart attack and had by-pass surgery himself last week. I'd like to be able to tell him what recovery will really be like , not what he told me after my surgery. This should hive him a new perspective when talking to his patients. All most all doctors are oblivious to how H-PYLORI AFFECTS PEOPLE. THEY ARE JUST TOO DEPENDANT ON THE PAPERS AND AND HAVE FORGOTTEN HOW TO REALLY LISTEN TO THEIR PATIENTS. Just realized everything was capitalized !😂😂
tamas92825 LCat
Posted
Yes, I see. It is hard to suggest diet till don't know what is the source of the problems. Yoghurt always did acid for me, I avoided, also milk was not good, but we are different anyway. Peppermint tea also provocate stomach I think. Every evening I drink a camomille tea without sugar and it is very good for my stomach. Rice also helped me out always and it has no glutene as you got problems in wheat. The problem is that when you have gastritis it keeps for days/weeks and even if you eat someting what is good for your stomach you can't feel it temporary. Yes, it is true that would be important to know your problem to suggest diet but these stuff does not hurt generally.
sandra18523 runbeth
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sheltie64 tamas92825
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I' m happy just not to eat wheat and this not affect my life much at. I replace a sandwick or a biscuit or a cake with a banana or Apple and I'm fine
LCat tamas92825
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tamas92825 LCat
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Yeah, I did not write about. The day when I was fired I felt bad at stomach because of stress and higher acid level. Sometimes I felt stressed and heavy stomach due to stress. Otherwise I try to solve this stress with meditation and psychologist so I have no direct effects, at least I can not say it now or I don't feel back with my status.
bob37365 jessica79087
Posted
Lately I have been feeling the shortness of breathe just like you, not sure if its because of the anxiety or the bloatedness. When I go to a store or even sometimes at home I start feeling the shortness of breath and I start panicking, what seems to relieve it is to go for a walk or just stand outside and breath some fresh air.
Thanks,
Bob
tamas92825 bob37365
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Zara2018 tamas92825
Posted
Hi there. I have had light to moderate nausea for about 3 months now. The symptoms are intermittent. Sometimes I could go 3 days or more with barely any issues. Then, the nausea would just sort of arise. Sometimes 2 hrs after eating, sometimes just randomly. I took an H. Pylori stool test in January 2018 and it was positive. I did the treatment for 2 weeks (Pylera – second line therapy) and there was actually a 6 day period where I felt great! Then it slowly came back again. I completed my treatment on Feb 9th 2018.
I have been off of the medicine for almost 6 weeks, and things are still touch and go. I can go 1 to 2 days with no symptoms, and then 1 to 2 days with nausea of varying intensity.
I have not had any stool issues at all. Consistency/Regularity/Color has been just fine. I also have not had any stomach PAIN or anything like that. Maybe some bloating here and there, but it's basically just nausea, and tiredness while it's going on.
I have been somewhat negligent in watching what I eat, but it's still tough to see a correlation in what I eat versus the symptoms.
I wondered if it was stress-related at first, but it just didn't add up. Stressful situations would progress with no nausea, and then I could be at home relaxing with a movie and it would set on.
My main question is...
After having off and on nausea for a couple months, how long will it typically take AFTER treatment ends to feel normal again? I don't feel like death or anything, only lost maybe 5lbs total, but mentally things are just getting to me. I start to wonder if I'll ever feel normal.
I'm sure my GI Doc will recommend a stool test to confirm eradication in another week or so, but I'm just looking for some mental stability and for someone to put my mind at ease? If it's typical for light nausea to take a while to go away after H.Pylori treatment ends?
Also, I had to take antacids this past weekend because I had pizza and ice cream and it set my stomach and nausea on fire. I am Zofran for nausea.
Any comfort would be appreciated.
tamas92825 Zara2018
Posted
Hi Zara,
your symptoms related to H. pylori is typical but as you wrote you did not loose much weight, has no acid pain in stomach and extreme anxiety. So at first keep positive, you are lucky and will recover soon. It takes time. Let's see step by step you wrote.
Nausea started 3 months ago. It means that this issue works on your stomach minimum since 4 months or more (many infections are coming from childhood as well). The feeling is intermittent, usually we feel in morning it but if you feel after food it means that special food provocates acid to your stomach or H.pylori caused you duodenum problems. Of course it is hard to define it but I write general issues.
Stool issues rarely has effects with this bacteria but can happen some cases. Pain you have no it is very good sign.
Yes, at first everybody thinks it is stress-related issue and partly they have right: if you had since childhood this bacteria and immune system weakening for some reason it can win over this bacteria at once BUT generally if you had modest life and nothing serious shock this is usually infection issue.
Questions:
1. How long it takes to fade nausea? It depends on many things:
- infection power (it has 50 different types of H. pylori)
- your body, stomach, habits (smoke does it bad, alcohol as well etc), age, makes sport, previous sickness etc
- the first therapy successful or not
- stress level of your life on recovery
- diet
If you try to do everything on these list to help your stomach in your case (3 months nausea) and you have no other issue, infection I think it needs 3-4 months to dissappear this nausea at all IF the therapy was successful. Obviously nobody will tell you time because it depends on many things but generally I think you need this. If you help your body it can be faster and must avoid to provocate stomach when you feel better because it can be years to recover in worst case. Must be careful on diet at first.
Very important to make the controll check on H.pylori. Mental stability? It helps light sport, walking, meditation, relax, avoid stress - so the general things what helps you the most. Yes, typical that the stomach needs time to full recover after this shock of bacteria. Immagine that you get sunburn and you go to dark room with bodymilk the pain still will be there for a time. Your stomach is the same after this monster bacteria. It takes time and take care on it.
Take care on controll test, if they do it with breath test you can not get any antacids for weeks because it can show a false result on test. Generally pizza is not good because tomatoe sauce provocates acid and ice cream contains high sugar what also gives a huge load to stomach (for me milk products made high acid at all and sugar contained food as well). Avoid them such as onion, spicy food, alcohol, coffee, too hot or too cold food and so on.
Yes, you will be very normal once again :-) but it takes time. Take care of your diet, make a pylori test, avoid stress, do some light move and wait - it takes time.
Now I am over the therapy since 5 months and I can say the first 2-3 months was horrible I believed nothing has changed and I will not be healthy anymore again. Then step by step every time was better. Now I almost fine but needs still time to full recovery.
Keep on, you are in good statement and this sickness will be only a bad memory in summer.
Zara2018 tamas92825
Posted
Tamas- thank you so much for your response! It really put me at ease. I will try to follow your suggestions and keep a good diet and walk everyday. For a while my nausea had disappeared after the treatment but it all started again last Friday after I had pizza and ice cream all weekend long. I guess it was premature of me to think that I am healed already.
Also, the first line therapy of antibiotics gave me very bad side effects so I was prescribed second line therapy of Pylera. Fortunately, I barely experienced any side effects for those ten days and I was taking 15 pills a day.
I have been taking Rolaids and Tums for my heartburn but no PPI. I plan to get another stool test to confirm if the bacteria is gone. Are you saying that I can't be on any rolaids or tums either?
Thank you so much once again.
runbeth tamas92825
Posted
Hi,
Your advice is sound.
My infection started mid Jan and I was very sick with all sorts of symptoms and an aversion to the PrevPack 14 day antibiotic regime. I did not leave the house, except for doctors' appts for 5 weeks.
2 1/2 months later, I have been ill again. Can't hold much down. Small meals. No sugar, caffeine. Simple easily digested foods. Low fat. Being plant based whole foods, my diet lends itself to recovery. However, I stopped probiotics a few weeks ago and that was a big mistake.
Glad you are over it and encouraging others. I am sure it gets better...
tamas92825 Zara2018
Posted
Zara, I don't know exactly rolaids or tums because we have differents drugs but these are antacids generally (we have antacids here such as names of quamatel, rennie etc). What do I think about antacids? One of my doctor told me that after treatment your stomach injured and needs time to heal. You MUST avoid that acid hurts it again and again. So first you must avoid bac food what cause acid (onion, spicy etc) but if you have such problems take an easy antacid or your statement worse, stronger antacid. You must protect now the stomach in any cost. Better would be without antacids of course (I never took after treatment, there are good food what absorb acid such as rice etc) and if you make a breath test you must be without antacids for weeks otherwise it shows not true result. Stool test is the best to check H.pylori (and has no effect the antacids on stool test).
Please note that after treatment your stomach become sensitive for other infections, fungus etc. Most of people has high candida fungus infection after treatment. And if you eat sugar- it gives candida energy what cause you pain and stomach problems. Stomach with time and diet will be balanced but generally it is not recomended sugar contained foods after treatment. I remember once I ate a cakes with sugar at evening around a month after treatment and had nausea, stomach pain for 3-4 days after. Horrible. Now, after 5 months after treatment I ate yesterday a choclate at evening and has no problems now. It means stomach needs time to recover and balanced. At the beginning you must be very careful with the diet.
Yeah, antibiotics gave me bad side effects, I had huge stomach pain then, remeber almost cried from despair and pain.
What is my suggestion: diet is 80%, walk, avoid stress 20%. If I felt bad, I ate rice, drunk green tea (without anything, no sugar) and went for a walk- always helped. Digestion works better if the body moves.
Look forward to hear by feedback from you.
tamas92825 runbeth
Posted
Yeah, thanks. It was a nightmare so now I want to help others and tell that there is healing. Of course stomach can be thousand reasons to be bad and even doctors don't know everything about stomach. Of course I try not to give direct suggestions because each person is individual. I can share my experience and support you to keep on.
Probiotics. I don't know, one doctor told me that they makes acid as well, so I finished then. After/meanwhile treatment is highly recomended.
Yes, I am sure it will be better. Needs good diet, no stress and time. It takes months but will be okay.
Yes, I can immagine you did not left your house for a long time. When I was sick, it was problem for me to go out for anywhere. I could not travel on public transport easily, I was anxious even affraiding away from home. At the end I lost my job as well, but health is the most important, job I can get hundred yet.
Zara2018 tamas92825
Posted
Thank you for the advice Tamas. I can't wait to retest and confirm if the bacteria is gone and I really hope i don't have candida. I had no clue that I should not be eating sugar and such because after my treatment I felt fine for on and off for a month and this just recently started again over the weekend.
I think my stomach is also producing a lot acid because my throat is getting mucus in it.
One thing that is really helping with the nausea is the coconut water. It really helps relieve the symptoms.
On a side note- I am so sorry to hear about your job less. I am praying you get another one soon and good health!
Take care friend!
tamas92825 Zara2018
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anna71424 tamas92825
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I’m feeling really sad now waiting for an endoscopy came off antibiotics 2 weeks ago have to
Be off ppis because antibiotics do I’m taking mastic gum was taking Biocidin but made me have reflux in my throat and it repeated on me I’m really anxious because I’ve been having stomach pains and last time they done the biopsy there was mucus that’s how they tested for h.plyori as I haven’t eradicated it yet I started to read up a bit more and I read in an article that if you have mucus that the h.plyori have made you are at more risk of gastric cancer is this true?
M
jessica79087 sandra18523
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jessica79087 bob37365
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Omg! Yes I still have shortness of breath even 2 weeks after the treatment I have not gone back to get retested for the H pylori but I have an appointment to do so... that is my trigger for anxiety that I feel as if I can’t breathe does not help that I have allergies to pollen never had that before so here I go down another medical diagnosis. Just last night I was having anxiety had to take medication for it so I could calm down! The only thing that helps me not to think about my breathing is keeping my mind occupied. How are you feeling now?
tamas92825 jessica79087
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jessica79087 tamas92825
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tamas92825 anna71424
Posted
Did you have reflux before therapy? Please note that if you had no before, it can caused by medicines (amoxicillin if I remember its name of medicin for example) for a while after treatment as stomach is weak. I had also for a while after treatmen but it's gone. I think we all make mistakes to read several articles about gastric cancer and we think we have that. I don't think it has any major link between mucus and cancer. The 2-3% of H.pylori infection can cause cancer but please remember that on biopsy, doctors can see it and they usually pick up pieces to check it. If you had it, doctors already told you. No worries about it I think.
amit93482 tamas92825
Posted
hi tamas,
i am suffering from 8 months , took one round antibiotics ,n now doing natural ways mastic gum, licorice, monolurin ,zinc carsonine. i took stool test and it came -ve , but stomachache pain is there in morning