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Still no diagnosis after a year of testing. please HELP.

Posted , 4 users are following.

dan95
dan95

Hello i am a 19 year old male and i have been stuggleing with an unknown illness since i was about 15/16 which has progressivly got slow worse over time. it got to the point this time last year that id had enough and went to the doctors to seek help, a year and many tests later im still no further forwards so here i am in hope of someone pointing me in the right direction

my symptoms are

Fatigue

Muscle pain

sore lower back

stiff neck

sinus problems/ phlem in throat/ blocked nose

dry throat and mouth

red nose/ rosacea

cold hands and feet

anxiety

depression

Low testosterone at 13nmol

mood swings

excess urination

clay coloured stool / diarrhea

i have had many standard tests that have all come back negetive, such a my thyroid levels, diabetes, celiacs bloods, iron and b12 levels plus more.

would be very greatful of any ideas of what this could be as i dont seen to be getting anywhere by going the to my gp. an idea ive had recently is that it could be allergies but thats just a guess?

i did go on a paleo diet for a bit which made me feel a bit better to begin with but i started to feel very ill, possibly due to detox or withdrawal after a few weeks so i gave it up.

Thanks in advance for any help.

 

0 likes, 21 replies

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  • kkylie
    kkylie dan95

    Posted

    You sound like me! After 6+yrs of doctors, hospitals, specialists I was diagnosed with fibro and hypermobility syndrome. Only to be told by my physio that there was something else being missed. Now im waiting to see an osteopath and get an MRI. I know how the neck and body pain can weigh down on you. Have you asked to see a rhumatologist/neurologist if your bloods etc are all coming back inconclusive? Keep note of your treatment, always be clear on what they are testing for and keep pushing for answers. I was too laid back at the beginning and now 6yrs have passed. But not anymore. Ill be on their case till im sorted properly this time. 

    Chin up and dont give up looking for answers!  

    Best wishes 

    Kkylie

  • dan95
    dan95

    Posted

    Slight update,

    since i came off of paleo ive felt quite awful, maybe worse than i did before paleo.

     

    i must have been gluten free for a month+ now as i only ate gluten for a day or two after giving up paleo, but i still feel very rough. 

    i went back to the doctors today and basically just got sent away with a perscribtion for anti depressants, which i probably wont use. I did manage to get her to retest my thyroid and i think shes going to test my t3 and t4 this time. also i found out that when my iron was tested a year ago that it was low but still in there normal range at 39ng/ml (normal range 21ng/ml - 330ng/ml) and also my b12 was 302ng/l which could be a bit low.

    the worse part of it though is getting my family to understand, they are convinced im just depressed and i dont know how to make them understand its more than that.

    • dan95
      dan95

      Posted

      sorry the iron measurment unit is meant to be ug/l and b12 is ng/l
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