Still raw

Posted , 10 users are following.

I have been using dermovate now for the past 4 weeks, but still have a raw, stinging feeling. Should I have some relief by now? I also use emulsifying ointment along with dermal to wash.

Any other advice gratefully received, feel this is never ending.

1 like, 21 replies

21 Replies

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  • Posted

    I am no expert but sometimes if the cream is not working, you are allergic to some ingredient, or you need a different one as four weeks seems to be a resonable amount of time to be showing some improvement. I would go back to your GP.
  • Posted

    I also am not an expert, and I don't use dermovate (I use clobetasol). I usually have relief from the symptoms within 24 hours of using the clobestasol, if the flare up is really bad maybe a little more time but I have never had to wait for 4 weeks. I would go back to your doctor and get some help. 4 weeks is too long to be uncomfortable. 
  • Posted

    The Clob made me worse. Then apparently was told I don't have LS although I have my doubts and no biopsy done. I use Hydromol which is a wash and an emollient on doctor prescription or Amazon website.
    • Posted

      I'm thinking it is making me worse, I am quite red, no white patches at all. Get stabbing pains intermittently.
  • Posted

    It indeed takes a while before all symptoms disappear.  Try also to alternate with things like coconut oil and/or emu oil.  Very soothing.  Baking soda rinses and baths are also helpful.
  • Posted

    I agree with whats already been said, four weeks is a long time with no results, I think I would be inclined to stop using it for now, to give your skin a rest and maybe just use coconut oil, vaseline or Emu oil for a few days and see what happens.  
  • Posted

    I just wanted to add that the baking soda in a warm bath really helped me. I had never heard of it until someone from this group suggested it to me last week when I was dealing with an abscess and incision from the drainage. I didn't want to use clobetasol due to the incision healing, but needed some relief from the itching etc. I couldn't believe how much it helped me. So thankful for that suggestion. I have a spray bottle full of water and baking soda that I use now too. 
  • Posted

    I was given Hydromol instead which looks like Vaseline, but can be used for washing in the shower as turns soapy when wet. You can also apply it and rub it in to the affected area, The idea is to keep the area from drying out and prevent friction. My dermtologist said it can be used as a sex lubricant but the instructions say only use externally. So I ignored her advice. Not that I am sexually active anyway due to gynae problems. Gynae problem being vaginal atrophy and a sore anus!
  • Posted

    This is EXACTLY what happened to me last month.  I stopped after 4 days of agony !! How patient you are to put up with this!  My story is that it would be ages before I could get an appointment so scrabbled around to find I already had some BETNOVATE OINTMENT which I used alternatively with Vaseline (or YES ointment - google it - can be prescribed on NHS prescription) and seemed to be coping much better.  Saw the Consultant last week and he was happy I had found a Corticosteroid that worked for me.  We discussed the fact that Dermovate is prescribed to ALSO treat infection which I did not have and this COULD have been causing the stinging/burning.    So now I have a prescription for BETAMETHASONE VALERATE 0.1% OINTMENT (Topical corticosteroid) and am doing very well (as much as can be expected - some days are worse than others)     My advise is cut out all the emulsifying washes  - they contain parabens etc which cause problems.  Dermal actually makes me worse.  I just use lots and lots of water.....and I am so much better off.     Wishing you well.
  • Posted

    I so sympathise - 4 weeks is too long to be as sore as you are and I think you should stop using the Dermovate. I find Diflucortalone suits me but we're all different!
  • Posted

    Are you using Dermovate cream or ointment? Dermovate is the brand name for clobetasol – same drug. Some women have a bad reaction to some of the ingredients in the white cream. I asked my pharmacist to sell me a refill, but switch to ointment and she did, no problem.

    Four weeks, I hate to say, is only the beginning. It took many months before I had definitely positive results. And then after 18 months my gynaecologist wasn't pleased with the small white patch on my perineum that still tears sometimes, though not nearly as bad as it used to. She switched me to tacrolims. It's been three months now and I'm starting to think it's better for me than Dermovate. I might have been burnt out on steroid creams from forty years of psoriasis treatment.

    Also, if you're trying to have sex while you're raw, that's going to keep it raw. Baking soda baths and rinses should soothe it.

    • Posted

      I was using ointment. Went back to doc n she said to continue with dermovate twice a day for 2 more weeks along with epaderm 3 times a day! I return to consultant 18th may! Hopefully feel more comfortable by then. Also taking amitriptyline as getting nerve pain on buttocks and thighs! She said this was not linked to LS??
    • Posted

      The drug you're taking isn't related to LS, but a lot of us suffer from anxiety or depression (that drug is very commonly prescribed for these problems). I think we tend to have skin reactions to this stress.
    • Posted

      I'm not that type of person that's easily stressed, although having LS recently diagnosed is close. My doctor says nerve pain not related to LS. She says it's sciatica!! Not convinced!

      I'm still so uncomfortable!!!😥

    • Posted

      Well, as I said, it takes a long time, maybe six months for Dermovate to make much of a difference.

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