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Struggling so much with labrinthytis

Posted , 8 users are following.

kanina23559
kanina23559

Hi, I was diagnosed with labrinthytis about 4 weeks ago but had symptoms a few weeks before that. I'm a mum of 3 young children and everything is really starting to get on top of me. I can't focus on anything, objects always feel as though they are a moving. The dizziness seems so much worse this last week. I feel like it's never going to get better. I've been trying to continue with things as normal as much as possible but it's getting increasingly harder. I feel spacey most of the time and lately just keep crying. I don't know anyone else that has had it. Any advice or anything to keep my spirits up would be great.

0 likes, 42 replies

42 Replies

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  • angie_69215
    angie_69215 kanina23559

    Posted

    Hi Kanina

    I have been diagnosed with the same thing. What helps me is I Get ice packs and put one in back if my neck and one on my chest and I try and drink a lots of water. It helps calm things down some especially the stress.

    I Hope You Feel Better. 🌻

  • gillian93591
    gillian93591 kanina23559

    Posted

    Hello kanina. I was diagnosed firstly with labrynthytis. Then it progressed to vestibular neuritis and vestibular migraines. I have had these symptoms 6 months now. I have ok days and not so good days. I started when I had a virus in March it damaged my balance nerve in my right ear. I have dizziness every day. I do vestibular exercises 5 times a day to help desensitise it. I have just gone back to work. You must keep positive you have got to fight it. I'm taking beta blockers, magnesium and riboflavin. I see a vestibular physiotherapist she is very good she also suffered with it a few yrs ago. She understands me. Has your doctor prescribed anything for you. Take care Gill xx

    • angie_69215
      angie_69215 gillian93591

      Posted

      Hello Gillian

      My ENT never put me on any VRT Exercises.

      On went on website and saw them. I want to try them slowly to see if I can get some relief.

      Do they help with the off balance and spinning? The back of my neck is always sore like I have been lifting weights when the only thing I am lifting are ice packs. 😃

  • melody08508
    melody08508 kanina23559

    Posted

    Hey! I'm also a mum to three young children. I remember how tough those days were in the beginning. Awful. But around the three month mark things got easier. I'm now on month 5 (nearly 6) and while still not 100% I am about 85-90% and can do my lifestyle as usual. Sometimes these things take time (and a long time) but recovery is possible! Are u doing any VRT exercises to help? Moving around and keeping busy is the best thing u can do to help recovery.

    • angie_69215
      angie_69215 melody08508

      Posted

      Hi Melody

      I just went online and viewed some vrt exercises, how many times a day to you do them?

      My ENT never Put Me On Them so I am going to try them slowly.

    • melody08508
      melody08508 angie_69215

      Posted

      I went on YouTube and searched home vestibular exercises. I clicked on the one with an Asian looking man and he tells u how many times to do each one :-)
    • melody08508
      melody08508 angie_69215

      Posted

      He's the best one I have found! All the very best! Have u been struggling long?

    • angie_69215
      angie_69215 melody08508

      Posted

      since December of last year. I am presently in the emergency room because I Have been very bad for 9 days.

      The spinning and off balance, nausea feeling of passing out, I just couldn't wait for my appt. On Monday with my ENT.

    • Waffalobill
      Waffalobill angie_69215

      Posted

      I did that the first few times. Then found out they just repeat the same tests over and over. Make them do different ones. MRI etc. Rule out stroke etc.
    • melody08508
      melody08508 angie_69215

      Posted

      Sorry to hear it's been so long :-( I found an article online about a woman who had labs and had it for 2yrs but that's because she was never told to keep moving and spent a lot of time on vestibular suppresants and in bed. I hope they help u

    • angie_69215
      angie_69215 melody08508

      Posted

      After 8 hours in ER and all kinds of test, I have an infection in my inner ears with inflammation and lots of fluid. All blood work, EKG and chest xray we're normal.

      They took pictures of my head and said everything looked good no sign of stroke or tumors.

      Given an antibiotic and Valium just when the symptoms get bad again.

      So I pray that I have some calmness, I see my ENT on Monday hopefully he has answers for me.

    • kanina23559
      kanina23559 melody08508

      Posted

      I haven't done any VRT exercises as the Dr told me it would clear on its own and that was all the information I was really given. I'm going to go back to the drs Monday and ask to be referred to an ENT specialist. The symptoms were pretty consistent over the 3rd 4th and 5th week but this week the dizziness has been horrendous. I feel utterly miserable and guilty that I keep having to tell the kids I'm still not feeling well. 😣

    • Waffalobill
      Waffalobill kanina23559

      Posted

      The vrt excercises won't hurt anything. I would start them if you know how. If they make you feel real bad slow down. I would ask doc about PT referal if you haven't gone yet. Most times they start them even before test results are back. Most vestibular problems require it anyways.

    • melody08508
      melody08508 angie_69215

      Posted

      I had a ct scan and it helped me hugely to realise this isn't life threatning and I will be ok. So always tell urself that. Hopefully the antibiotic helps in a huge way for u

    • Waffalobill
      Waffalobill melody08508

      Posted

      The testing I found to be a double edged sword. You don't want them to find anything bad. But when they don't find anything, you have no answers and your still dizzy. Lol

    • melody08508
      melody08508 Waffalobill

      Posted

      Yup this is true!! I haven't seen a specialist yet myself as in New Zealand it's a long wait! Up to 6 months sadly.

    • Waffalobill
      Waffalobill melody08508

      Posted

      I live in the U.S. been told 3 months for most docs. Been waiting a week so far just for a call back for a app with a neurologist. I got lucky with ENT and testing. I got right in due to cancellations. Gonna call again Monday. See what my primary says. Been out of work 6 weeks. They want a answer now as to when I am coming back. I can't even walk out to my mail box. Still very dizzy. Episodes of vertigo every day.

    • melody08508
      melody08508 Waffalobill

      Posted

      Could it be Ménière's do u think? Or maybe even vestibular migraines? I hope u don't have to wait too long

    • Waffalobill
      Waffalobill angie_69215

      Posted

      I had a MRI with contrast done if that's what you mean. Did brain and slices of inner ear connections etc. Took a hour and a half or so. Had MRI's before. Of my knee. Way different when they put you in head first. Machine is so loud. Even with ear plugs it was crazy loud.

    • Waffalobill
      Waffalobill melody08508

      Posted

      I told him i had family members where told they had menieres. He said years ago they blamed all vertigo on menieres. After I took VNG he said may be menieres.
    • angie_69215
      angie_69215 Waffalobill

      Posted

      Oh Mine was a Cat Scan and it was about 15 minutes. They wanted to do the one they inject the dye but I always have a bad reaction to the dye.
    • Waffalobill
      Waffalobill angie_69215

      Posted

      They took blood first. Put a IV needle in , take blood.Send that to the lab to check kidney functions. While she waited for the results , they did the inner ear slices. That was about 45 minutes. By the time that was done, blood work results came back. They bring you out of the machine. Inject dye. Take IV needle out. Then back in for brain scan. Kidneys filter out the dye. Why they check them.

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