Struggling so much with labrinthytis

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Hi, I was diagnosed with labrinthytis about 4 weeks ago but had symptoms a few weeks before that. I'm a mum of 3 young children and everything is really starting to get on top of me. I can't focus on anything, objects always feel as though they are a moving. The dizziness seems so much worse this last week. I feel like it's never going to get better. I've been trying to continue with things as normal as much as possible but it's getting increasingly harder. I feel spacey most of the time and lately just keep crying. I don't know anyone else that has had it. Any advice or anything to keep my spirits up would be great.

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  • Posted

    Hi Kanina

    I have been diagnosed with the same thing. What helps me is I Get ice packs and put one in back if my neck and one on my chest and I try and drink a lots of water. It helps calm things down some especially the stress.

    I Hope You Feel Better. 🌻

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  • Posted

    Hello kanina. I was diagnosed firstly with labrynthytis. Then it progressed to vestibular neuritis and vestibular migraines. I have had these symptoms 6 months now. I have ok days and not so good days. I started when I had a virus in March it damaged my balance nerve in my right ear. I have dizziness every day. I do vestibular exercises 5 times a day to help desensitise it. I have just gone back to work. You must keep positive you have got to fight it. I'm taking beta blockers, magnesium and riboflavin. I see a vestibular physiotherapist she is very good she also suffered with it a few yrs ago. She understands me. Has your doctor prescribed anything for you. Take care Gill xx

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    • Posted

      Hello Gillian

      My ENT never put me on any VRT Exercises.

      On went on website and saw them. I want to try them slowly to see if I can get some relief.

      Do they help with the off balance and spinning? The back of my neck is always sore like I have been lifting weights when the only thing I am lifting are ice packs. 😃

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  • Posted

    Hey! I'm also a mum to three young children. I remember how tough those days were in the beginning. Awful. But around the three month mark things got easier. I'm now on month 5 (nearly 6) and while still not 100% I am about 85-90% and can do my lifestyle as usual. Sometimes these things take time (and a long time) but recovery is possible! Are u doing any VRT exercises to help? Moving around and keeping busy is the best thing u can do to help recovery.

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    • Posted

      since December of last year. I am presently in the emergency room because I Have been very bad for 9 days.

      The spinning and off balance, nausea feeling of passing out, I just couldn't wait for my appt. On Monday with my ENT.

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    • Posted

      Sorry to hear it's been so long :-( I found an article online about a woman who had labs and had it for 2yrs but that's because she was never told to keep moving and spent a lot of time on vestibular suppresants and in bed. I hope they help u

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    • Posted

      After 8 hours in ER and all kinds of test, I have an infection in my inner ears with inflammation and lots of fluid. All blood work, EKG and chest xray we're normal.

      They took pictures of my head and said everything looked good no sign of stroke or tumors.

      Given an antibiotic and Valium just when the symptoms get bad again.

      So I pray that I have some calmness, I see my ENT on Monday hopefully he has answers for me.

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    • Posted

      I haven't done any VRT exercises as the Dr told me it would clear on its own and that was all the information I was really given. I'm going to go back to the drs Monday and ask to be referred to an ENT specialist. The symptoms were pretty consistent over the 3rd 4th and 5th week but this week the dizziness has been horrendous. I feel utterly miserable and guilty that I keep having to tell the kids I'm still not feeling well. 😣

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    • Posted

      The vrt excercises won't hurt anything. I would start them if you know how. If they make you feel real bad slow down. I would ask doc about PT referal if you haven't gone yet. Most times they start them even before test results are back. Most vestibular problems require it anyways.

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    • Posted

      I live in the U.S. been told 3 months for most docs. Been waiting a week so far just for a call back for a app with a neurologist. I got lucky with ENT and testing. I got right in due to cancellations. Gonna call again Monday. See what my primary says. Been out of work 6 weeks. They want a answer now as to when I am coming back. I can't even walk out to my mail box. Still very dizzy. Episodes of vertigo every day.

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    • Posted

      I had a MRI with contrast done if that's what you mean. Did brain and slices of inner ear connections etc. Took a hour and a half or so. Had MRI's before. Of my knee. Way different when they put you in head first. Machine is so loud. Even with ear plugs it was crazy loud.

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    • Posted

      They took blood first. Put a IV needle in , take blood.Send that to the lab to check kidney functions. While she waited for the results , they did the inner ear slices. That was about 45 minutes. By the time that was done, blood work results came back. They bring you out of the machine. Inject dye. Take IV needle out. Then back in for brain scan. Kidneys filter out the dye. Why they check them.

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