Struggling to cope with ibs
Posted , 9 users are following.
Hello, new to all this so bare with me.I have just recently been diagnosed with ibs after having blood test, stool test and ultrasound done, quite a shock to suddently be dealing with this, i'm 26 and feel my life is now on hold, I was put on mebeverine for a month and didnt stop the pains, so now on amitripyline for a month to see if this helps. Last month i was doing the low fodmap diet but as i was convinced i had an ovarian cyst i wasn't 100% strict with it, so started it properly now, I have been told to keep a food diary but my pain is constant i don't know how i can track this properly , since last November I have had constant pain, seems to travel all over, felt it in my thigh, and all over my back, upper and lower stomach, my ribs feel achy to touch, i find bending over i feel pain more, and when I am on the first day of my period it is very bad, had diarrhea with it, but calmed down to just once in the morning on most days, I worry about things like going to restaurants, and exercising again, i've read exercising helps i just worry it will make it worse, been advised by my doctor to go to holland and barrett and see what they have for ibs, anyone able to recommend anything?, I feel people arent taking me seriously like they see ibs as nothing and i'm always being asked why I am so quiet at times
1 like, 70 replies
annie1963 vixxy26
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vixxy26 annie1963
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astrozombie vixxy26
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Try adding smoked salmon to the scrambled egg
vixxy26 astrozombie
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astrozombie vixxy26
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No I agree and that is what I said to the dietician and she said try and my ex had the idea of scrambling it with the egg and now works a treat. It is oily so very good for you. I think oily fish like salmon are different to the other type of fish. I am not an expert but they were saying salmon, tuna and mackeral. The last 2 were non starters so decided to try smoked salmon and found it was bearable.
I completely agree. I do not really like salad but have to eat it all the same like serving pennance. I am good with fruit. I eat carrots and green beans.. I do not eat gravy so I do not know about that. Luckily I like my food dry and I have cut out red meat so I have chicken breast 2 in a pack real chicken not frozen with a little mash peas and carrots. Later in the week I will have the other breast. I have scrambled egg twice a week and that is 4 meals so only another 3 so to so baked beans and a baked potato and then I can decide on the two but if I have been ill I tend to consume soup and that gives me one free day.
vixxy26 astrozombie
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astrozombie vixxy26
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vixxy26 astrozombie
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astrozombie vixxy26
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astrozombie vixxy26
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I did not used to worry but now if I am not in proximity of a loo I start to panic. I never eat out any more. I exercise walking and for the most part I am fine but if not I am in the middle of nowhere on my own with loo roll so that is fine.
I did that and they recommended flax seed so now I add to my morning cereal
I remember when I first heard about IBS and I thought it can't be that bad too because I just did not understand. I was ignorant and many people are. I had staff in my long term role who had this and obviously as I was more aware I was a lot more sympathetic.
vixxy26 astrozombie
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astrozombie vixxy26
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Good news. Spreadsheet was better for me so I could sort and analyse but still no patterns. That is good re: loo habits mine have too but once or twice a month less so and that is what I need to smooth out before working again. I do not go daily which is annoying no matter what I eat. I agree and many people find it funny so I am not going to put my hand up and say guess what I have. I am quiet but I can also be rude mainly due to ASD so people tend to leave me alone. I cook for myself that one is not a problem. Oh yes I know what comment you're beiing melodramatic and using it as an excuse not to go anywhere but many of my friends have been there when I have been ill and disappeared off for a few hours. I have said I have not been shopping I have been stuck in the damn loo.
vixxy26 astrozombie
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Before i knew i had ibs I was scared of being let alone, still don't really like being alone as leaves me to think about my ibs, i like to keep my mind off it, even got loads of boardgames so i can play with my bf and not think about ibs. Luckily I have a few friends who have understood what i'm going through and trying to help me with what i can eat, but some friends have let me down by not caring.
vixxy26
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astrozombie vixxy26
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That is where you and I differ as I prefer to be left alone and if I have an attack I am on my own. I feel incredibly nervous being ill when I am around other people. Also pacing up and down clutching my stomach when I have cramp gets comments like sit down and stop being so melodramatic. More reasons I prefer to be on my own. That is a good idea. It is good you have understanding friends. I am not big on friends it is an ASD thing which is why I am glad I have found this site 5 years too late but at least I have found it.
astrozombie vixxy26
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vixxy26 astrozombie
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I find if i get some spasms and I am around people i find the attacks go quicker when i am distracted talking than if i was on my own thinking about every spasm i feel, I wasn't sure at first if i wanted to come onto forums but glad i have now, as I still don't much about how to control my ibs yet and know what my intolrances are, so good to get advice.
astrozombie vixxy26
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I think for me I was having attacks all time at that time as it was new to me so it was 2 or 3 attacks a week and I would make her late for work if I was having a lift. It was just a nightmare situation.
When I am around other people and have an attack I suppose I am embarrassed.
Interestingly my doc said to have a few squares of dark chocolate after a meal as good for digestion. I do not eat much ice cream.
My spasms are too violent. I have to go out of the room and do my melodramatic act elsewhere as each spasm lasts for a while.
Me too re: forums as I am not on social media Twitter, FB etc.
Don't worry I have been on this treadmill for 5 years and I do not have a much better idea.
vixxy26 astrozombie
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Thats a new one for me, I do have dark chocolate at home, but i'm waiting till after my months detox to have anything like that. be a hard month i love my food.
I havent had a bad attack since my first one which lasted 6 hours a couple months back, then i had a few attacks over the next few weeks, but havent had anything bad since last Dec, i've had spasms and trapped wind which have lasted like an hour.
I just don't like the thought of how long it will take me to figure out what I can't have
astrozombie vixxy26
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I think his idea was loo visits should be like a tap slow and steady so certain things were needed to keep the tap running.
That is a bad attack. I thought mine were bad usually between 3 and 4 hours and then I collapse from exhaustion. I think I would fall asleep on the loo if it was another 2 hours. You definitely have my sympathy there.
It is very good that you have managed all that time without one. Yes I get that as normal spasms and trapped wind but that is fine. It is when the cramps become more explosive when I know I am in trouble.
I don't either but I have to say I have not worked it out yet.
vixxy26 astrozombie
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I thought it was my appendix when the first attack happened but my bf said it wasn't cause i would literally be on the floor, and i was still able to walk, although was in pain.
I have had bad days, just nothing like that night, the first day of my period is the worst for me, seems to make it worse.
I just hope these tablets i am on works for me, least my doctor is taking me seriously he has ibs too, not as bad as me, but he understands how i feel.
leeniepie vixxy26
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Distraction is very good for taking your mind off pain as you have found. Have you been given anti spasmodic drugs? Hot water bottles or wheat bags help too.
Oh and in response to your question about gravy- made with meat juices it may be too fatty for your system. Instant gravy isn't allowed on the elimination stage as it contains wheat and usually onion powder too.
p3t3r leeniepie
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Bisto uses cornflour, which is supposed to be OK, but wasn't for me.
Proper Mayonnaise should be low Fodmap if you want something to make food less dry. As always, check ingredients on any shop bought version.
leeniepie p3t3r
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jan48389 leeniepie
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Jan
p3t3r jan48389
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jan48389 p3t3r
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vixxy26 leeniepie
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I am on Amitriptyline, and going back to the doctors in a month to see if these have helped me or not.