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Struggling to get taken seriously

Posted , 9 users are following.

Chloe321
Chloe321

Hi I've been diagnosed with fibromyalgia for the last two years but suffered with it for the last 13 years I've been getting worse and worse the longer I have been battling it and now I'm bed bound for the past five weeks I've been going to the Dr's over and over again but can't get them take me seriously they keep giving a low dose of anti depressants but nothing for the pain I have constant Migraines I'm feeling sick and confused and every where on my body is aching my legs and feet feel like they're being crushed I can't even walk around the house but i was told by my Dr it's all in my head because I made it to the local Dr's I don't know what else to do I've seen so many Dr's none of them will send me to a rheumatologist I feel so deflated and I don't know what the next step to take is I'm fed up with fighting for help that I'm not getting I'm a single mother and I don't want this illness to affect my parenting no more I have no energy left in me I just need more support and help I struggle to breathe has anyone been through something like this

0 likes, 21 replies

21 Replies

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  • Blueboy9
    Blueboy9 Chloe321

    Posted

    Hi Chloe 

    Sorry to hear all that - have they tried you on pregabalin ? I’ve taken a number of antidepressants as per so called specialist to no avail so I’m trying this now - not taken yet so wonder what everyone else thinks ?

    Thanks and good luck 

    • Chloe321
      Chloe321 Blueboy9

      Posted

      Thank you no I haven't tried these I have a problem getting them to listen to me they they talk at me instead of with me so it feels like my opinion doesn't mean anything to them

    • sukes
      sukes Chloe321

      Posted

      Hi Chloe,

      I get so cross when I hear things like this. 

      Can I ask who diagnosed your fibromyalgia, if it wasn't a Rheumatologist or someone who specialises in this condition, then your GP has a duty of care to refer you on, as various tests need to be done in order rule out certain conditions.  

      Your Doctor owes you a duty of care and if they still refuse to refer you, then I would certainly recommend that you change your GP as it's not right to fob people off by saying that it's in the mind.  x

       

    • Chloe321
      Chloe321 sukes

      Posted

      Thank you I'm glad you agree with me I feel left behind I feel like I've been fighting this battle for decent care for years and I'm getting nowhere with it i think I might have to change Dr's surgery but I'm just scared of having another GP telling me there's nothing they can do for me and basically it's all in my head.

    • DawnRenee
      DawnRenee Chloe321

      Posted

      My GP referred me to a pain management Clinic where I met my current Doctor . She is Awesome. Very strict because of narcotics, etc. I also see a rheumatologist who is specializing in things like Fibro.. I really got lucky..smile Do you have a pain management clinic near you?
    • Chloe321
      Chloe321 DawnRenee

      Posted

      No I live in a isolated part of the UK where funding for NHS isn't good at all and if its not life threatening there's not a lot they will do for me I don't know any other fibromyalgia sufferers in my area and I can't find any local support groups either I've seen about 8-9 different gp's and haven't got any success with any of them I've asked so many times to be referred but every time I bring the subject up they change the subject back to mental health which is frustrating for I was even told by one Dr that rheumatologist's doesn't want to see people like me which I don't believe I honestly don't know what the next step to take is.

  • mandy12133
    mandy12133 Chloe321

    Posted

    Hi I have been diagnosed with fibro, there is no cure , the best thing u can do is force yourself to get up and go for short walks at a time or a gentle swim as exercise really is the best thing for it.. I find it worse when I sit and lay around . Even If they send you to rhumotologist all they do is confirm there is nothing serious wrong , you will then end up living on painkillers . I am trying to manage without having to take gabepetin as makes you like a zombie . I promise if you get out and move aroundcthings will improve good luck
    • Chloe321
      Chloe321 mandy12133

      Posted

      I've tried walking but it makes me worse I become so exhausted I feel like I'm just going to faint and muscle pain goes from a 6 to 9 its hard because a few years ago I could cope with the pain alot more but 2018 has been a nightmare on the pain scale I feel like the longer I suffer with it the worse I get i feel trapped at the moment and I can't get over the latest flair up which is really weird because I usually only have a flair up for a few days rather than weeks

  • frances03612
    frances03612 Chloe321

    Posted

    For the past ten years, I suffered all the symptoms that you have, and went to see many specialists, they also said that the problem is in my mind. In my case, I also have a gadolinium poising issue due to having many MRIs with gadolinium based contrast in the past due to my health condition. So I think that all my symptoms could be caused by Gadolinium poisoning too. I'm just wondering, if anyone in this group also have had MRI with gadolinium based contrast experience. I'm looking into this possibility cause of my symptoms now. 

    • Chloe321
      Chloe321 frances03612

      Posted

      Sorry to hear that I personally haven't had any MRI's just blood test I hope you can find the answers your looking for.

    • Blueboy9
      Blueboy9 frances03612

      Posted

      Has anyone taken Pregabalin / lyrica ? Rather than Gabapentin ? Any positives ?
    • sukes
      sukes Blueboy9

      Posted

      Blueboy, with respect it might be an idea to start your own post, this one was started by Chloe and it's in danger of being taken over by people wanting to talk about certain medication. smile

    • DawnRenee
      DawnRenee Blueboy9

      Posted

      yes, I take Lyrica and love it.. I stopped for two weeks. because I ran out and then there was an insurance issue and I definitely  knew the difference.. NIGHT AND DAY. I am also on 325mcg of percoset 3x a day. My doctor said LYRICA and Percocet work wonders together. The Doctor was correct. im not saying  im pain free but it has made a huge change in my life...
  • gerry09721
    gerry09721 Chloe321

    Posted

    There is a new medical test offered by EpicGenetics for FM and a drug called BCG which is waiting to be approved in 45 days . Google both
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