suffering with labyrinthitis for 7 months now...

Posted , 12 users are following.

I am or should i say was a fit mum of for working full time in a hospital,dont drink or smoked in my life ,used to go to the gym ans fitness classes but 7 months ago i started getting dizzy mostly feeling it while at bed on the right side even with my eyes closed.

Felt nauseous and wanted to vomit i thought maybe i was pregnant.But we all know our bodies sometimes and had tests and were negative for pregmnancy.

Still went to work taken some painkillers thinking it will go. Then one day at work while on the phone i started a migraine and shaking almost fainted and had to go home. The lights and the computer would hurt my eyes morewhich triggered the migraines.

Have seen ENT and neurology after numerous trips to the GP who kept changing my medication as nothing worked.

They gave me betahistine and propranolol which i take and still no use.

At the same time started taking the contraceptive pill, cerazette which i just started thinking that it could be that.

Had hearing tests done aswell but i want to go for a scan as its getting more difficult to do the daily chores. but i dint know why they hadnt sentn me yet? or how come didnt my GP picked that it could be my pill?

I keep getting appointment to go and see ENT and i go.Have one due end of the month...

I read a few disscusions here but i am so confused...

And the more i worry about things the worse it gets...

can someone advise me please what to do?

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  • Posted

    hi i have been suffering with dizziness for years,seen ent docs,who most of the time have not been very usefull,however i saw a doc who has a specialised interest in vertigo,wich thats what yours sounds like,cause i had the dizziness when i lay down(the room would spin).when i got a referall to dr umapathy,she diagnosed bpv(benign paroxysmal positional vertigo) and i had the epley maneuver
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  • Posted

    hi thanks for reply the epley maneuver doesnt work either. i still do it though. i have heard people suffering for years even my mum did which i see a specialist she has been seeing but still no use.
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  • Posted

    i know,its so bad ,i went to see a neurologist last night,had brain and neck scans but both ok,sometimes it drives me mad been suffering for 10yrs plus,it really does affect your life,if you find anything to help please let me know,
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  • Posted

    hi tina have you had a mri scan done?
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  • Posted

    No not yet and that's what makes me angry. I work the NHS and still they haven't offered me an MRI scan. I seriously think there's something wrong in my head as the pain is there all the time and feels heavy and eyes and ears always hurt. Been to see my GP so he writes back to ENT to ask for an MRI. Let's see what happens. makes me angry as I told them that I can't brag the pain and everyday life get difficult as I am a mother of 4 and have no help.
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  • Posted

    Hi Tina, Hope you get the MRI scan done soon - sometimes you really have to insist on stuff. I know they should be offering but in my experience sometimes persistence is the only way. Surprised ENT haven't done this before with the symptoms you describe. I had an acoustic neuroma and your symptoms are somewhat similar, but if you have been suffering so long its probably not that. In any case they are treatable and not half as bad as some might make out. Hope you get sorted soon. All the best.
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  • Posted

    Tina go for the MRI (it will be clear,but just to get it out of your head). tell me exactly what you feel as exactly as it can be. maybe i can help you with my symptoms (Lab for 8 months)..weak eysight,pressure in half front head,while in bed i have the sense that i float in the sea,i can walk but not very stable,when sitting i feel like i'm making a circle with my waist up body,FEELING DISCONNECTED FROM THE ENVIRONMENT like i'm in a bubble which drives you crazy you feel like you will end up in a psychiatric clinic. Gone through depression for 2 months (people kept telling me it's all in my head,even an ENT told me that! ! !)..The truth is that doctors are not very specialized in Labyrinthitis so you got to find the best oriented doc with a lot of research. It was only the previous month i got a definite answer of what i have (aka 7 months of awareness),this doc who told me i have Lab performed to me the Eplay but it was pointless since it has good results only in Benign paroxysmal positional vertigo not Lab. He also gave me Betahistine for one month but no better change at all. Search on the Internet the Vestibular Rehabilitation Therapy,people with Lab have recovered with that Therapy, i will try it too. My next step is acupuncture and the therapy i just said. Anything you want to ask please do! you're not alone,in fact there are millions like us around the world. try not to be depressed!!!! looking forward to hearing from you and every other sufferer!! hope and love to everybody! xxx
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    • Posted

      Hi

      Can I just ask if you are any better? I Know it's some time since your post. If you are any better, what helped the most? Husband is going into his 4 month and feels constantly semi-detached, not able to work or drive etc. Any tips you may have to aid recovery would be very welcome.

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    • Posted

      Hi... I've been suffering with viral labrynthitis for nearly 17 weeks , not been to work or driven yet. Going stir crazy.

      I don't get any sickness I'm just suffering with dizziness & a weird head feeling now & again !!!!

      I feel as though my life has been taken from me ....I have seen 2 ent consultants, had Mri which was normal & all doctors say is,"go with it as it will go", people don't know how disabling this awful illness is...

      What are your husband symptoms ??

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    • Posted

      Hello there 

      I have had labrynthitis for 8 weeks now , just wondering if you got better and how long it took 

      I’m so depressed with this I have “attacks” which occur every few days and in between I can feel fine. My ears ring loud and I have weird feelings in my head 

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  • Posted

    hi elli_theo

    thank you for the support. The headaches/migraines have gone worse the last couple of weeks and get sickness feeling and nausea with it. I have now had my MRI scan done and results came back clear and also my blood tests were clear.

    Today i went to see the specialist again for a follow up and he said he wants me to see someone else for a second opinion a neurologist as ENT had sent me to neurologist who saw me suggested propanolol and betahistine and then discharged me and havent had a follow up from them.

    The headaches bother me more than the dizziness as they are there all the time. the back of my head and eyes and neck also hurts...the headaches feel like someone hit me with a baseball bat on the back of my head.its there constantly...i feel like i dont have no energy and it all depresses me so much that i cry at nights and cannot sleep. i feel like i have no interest to watch tv, listen to music and to go out but i try to do this...feel fragile and i can start crying in seconds.. :-(

    i am medicine free as when i went to see specialist he asked me to stop as they dont work...

    i have the support of family but feel lonely at times...like they dont understand...i get snappy, have a bad mood,shout without wanting to sleep...i have 4 kids and i struggle doing the normal stuff at home the headaches feel like someone hit me with a baseball bat on the back of my head.He has also suggested some changes in teh diet and showed me a list of foods which i hardly consume and some i dont consume at all. Right now i am also suffering financially as i am off work...makes things worse...

    Hope things are better with you elli_theo

    take care

    tina

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  • Posted

    Tina email me at elli_47@hotmail,com so we can talk easier!! i'm waiting take care xxx
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