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suffering with labyrinthitis for 7 months now...

Posted , 12 users are following.

tina76
tina76

I am or should i say was a fit mum of for working full time in a hospital,dont drink or smoked in my life ,used to go to the gym ans fitness classes but 7 months ago i started getting dizzy mostly feeling it while at bed on the right side even with my eyes closed.

Felt nauseous and wanted to vomit i thought maybe i was pregnant.But we all know our bodies sometimes and had tests and were negative for pregmnancy.

Still went to work taken some painkillers thinking it will go. Then one day at work while on the phone i started a migraine and shaking almost fainted and had to go home. The lights and the computer would hurt my eyes morewhich triggered the migraines.

Have seen ENT and neurology after numerous trips to the GP who kept changing my medication as nothing worked.

They gave me betahistine and propranolol which i take and still no use.

At the same time started taking the contraceptive pill, cerazette which i just started thinking that it could be that.

Had hearing tests done aswell but i want to go for a scan as its getting more difficult to do the daily chores. but i dint know why they hadnt sentn me yet? or how come didnt my GP picked that it could be my pill?

I keep getting appointment to go and see ENT and i go.Have one due end of the month...

I read a few disscusions here but i am so confused...

And the more i worry about things the worse it gets...

can someone advise me please what to do?

0 likes, 23 replies

23 Replies

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  • shellywhit
    shellywhit

    Posted

    Hi everyone I have been suffering with labyrinthitis since mid of feb had the ent app scan that was clear, I have started vestibular rehab therapy last week and feel so sick does anyone else suffer with the sickness on and off I find it worse than the dizziness, I also work for the nhs and have been off work for 8wks, is any of you improving I feel I'm going backwards x
    • jodie54612
      jodie54612 shellywhit

      Posted

      Hi Shelley - I now suffer labrynthitis for 8 weeks I’m just wondering how long it took you to get better I’m beside myself 

      X 

  • Char82
    Char82

    Posted

    Hi Tina

    Think I am a bit late with my reply but just came across the thread as just been told I have labyrinthitis.

    Just to say my sister suffered with episodes of severe vertigo and also constant head and face pain/foggy head etc and was eventually (many years later!) diagnosed with Migraine Associated Vertigo - perhaps this is something for your doctor to consider? Know it took her a long time to get diagnosed as it is not well recognised.

    Good luck!

  • karen41189
    karen41189 tina76

    Posted

    HI Tina

    I've just come across your post. I've had labrythintitus twice now and like you saw an ENT specialist. This year I also came across an food intolerance specialist, who suggested I cut out wheat, and come off the pill (which was cerazette) I did both for 4 months, and the laybrinthitus went completely.I'm still wheat free and had no symptoms. Last 2 months, I've gone back on the pill as in a relationship, and my sinuses have started to play up, and the hearing in my ear is dipping in and out. I'm going to switch pill as this seems too much of a coincendence to me. 

    are you still suffering?

    • lynnstez
      lynnstez karen41189

      Posted

      Hi Karen since having the epley manouvre the spinning has settled a lot.only get mild episodes of it now. However my balance is still not very good some of it I'm sure is due to thoracic surgery to my spinal cord which left me with foot drop and weak legs.do you think going wheat free has been a big help for you I'm a bit sceptical about things like that but worth a try.I'm on a very good support group on fb called dizzy vertigo it's run by Tammy Telford and is really good makes you feel your not alone
    • karen41189
      karen41189 lynnstez

      Posted

      HI Lynn

      Glad to hear the Epley has helped. They also gave me excercises to re train the brain. Juggling was one off them. It does sound as though your surgery won't have helped. I'll have a look at the support group, much appreicated. 

      take care

       

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