Supplements
Posted , 10 users are following.
Does any take Residronate (Actonel)? If so could you share your experiences? Thanks a lot!
1 like, 39 replies
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Notes on Supplements
EileenH Cyn1965
Posted
Most people take alendronic acid - only few have said they are on risendronate. They are both bisphosphonates and aren't supplements but medications.
Have you had a dexascan to show your bone density and whether you really need it? If your bone density is good it is better to wait and see how pred affects your bone density and take vit D and calcium supplements in the meantime.
john54812 Cyn1965
Posted
I am taking Alendronic Acid and Adcal D3 . To protect my bones , can't believe how difficult this polymylagia is to live with
Anhaga john54812
Posted
EileenH john54812
Posted
I've had a lot of practice after 14 years but it is easier to live with than many other things!
Like Anhaga, I don't take anything other than vit D and calcium which have been quite enough for my bone density to remain stable over over 7 years of PMR plus pred.
Loss of bone density is NOT inevitable. It is said 40% or so of pred patients develop osteoporosis. Compared to the 50% of the general population in the USA that doesn't really seem too bad. Does it?
john54812 Anhaga
Posted
EileenH john54812
Posted
Very likely - but it doesn't mean you will definitely develop osteoporosis. You need an early dexascan to establish a baseline and find out if you NEED bisphosphonates. I didn't - and 7 years later, always on pred and no bisphosphonates, I still didn't.
Anhaga john54812
Posted
I've had a bit of back pain the last few months, coinciding with a PMR flare. Both seem to be under control now, thank goodness! My physiotherapist is a miracle worker, she has a very good understanding of PMR weakened muscles and has been very careful with her treatments and the exercises she prescribes for me. I have done a lot of things to maintain and improve my bone density, not just nutrition but exercise, and am so very glad I didn't take any of the OP meds.
MR._BELLA Anhaga
Posted
Anhaga MR._BELLA
Posted
A supplement I added is Vitamin K2. There is some good info about this online. It, and magnesium, make sure calcium goes into the bones where you want it. Vitamin D can't do that. Eating a lot of leafy greens, especially broccoli and kale, and fermented dairy like some cheeses, kefir and yoghurt, is supposed to be a good way to get calcium, better than liquid milk. I do some weight bearing exercise. Not being athletic, and having fairly severe osteoarthritis in my spine, I walk, do Nordic walking, and also wear a weighted walking vest. I also took up Tai chi. Tai chi can improve one's sense of balance as well as apparently even improving bone density. As falling is the biggest risk for falling (not bone density) something like Tai chi is a good thing to do. There are likely other things. Some people do heel drops, or bounce. I've avoided that because of my back trouble, but it's supposed to be very good, when properly done, for increasing bone density.
I'd say, given what you are already doing, the secret likely is adding Vitamin K2 which tends to be deficient in the modern Western diet. And although it's been known about for quite a while the word really hasn't got through to our medical caregivers. My daughter is a youngish dietitian and she hadn't heard of it until I told her about it so I wouldn't expect the average doctor to even know the difference between Vitamin K1 and K2.
sandy08116 EileenH
Posted
Same here, Eileen. Oh . . . and magnesium (occasionally) when I remember. Though don't really know why. Scans didn't show a problem but Vit B taken as a precaution.
MR._BELLA Anhaga
Posted
arlene85779 Cyn1965
Posted
Anhaga arlene85779
Posted
arlene85779 Anhaga
Posted
Definitely 🙂
Reeceregan Cyn1965
Posted
I mentioned on a previous post that I have PMR/GCA, am on pred and now also a DEXA scan shows severe osteoporosis with a T sore of -4. Although I am dead set against it , I will be starting Prolia, a 6 monthly infusion for the next 5 years. 😩. As someone stated before, I’m between a rock and a hard place. Although at 62 I’ve never had a broken bone and have no symptoms of osteoporosis, it is hereditary and I’ve obviously had it a very long time with the prednisone kicking it up a notch ( I started on 50mg). It infuriates me as I am very fit, ( or was pre-PMR), very thin, eat an anti inflammatory diet with lots of leafy greens etc, I juice, eat well, have been taking calcium, magnesium, K2, D3, zinc, fish oil, and get lots of sun and excercise in my pool, do yoga, resistance band excercise, back strengthening exercises, and can balance on one leg like a ninja. Just goes to show, if you’re goiig to get it you’re going to get it. But the risk of NOT taking the Prolia outweighs the risks of taking it. I have been told I could have a Hip,or back fracture from coughing. Don’t bend or twist. And there’s is a mortality rate of 25% from a osteoporosis fracture so falling is not on my to do list, let me tell you. So far I’ve only had relative few pred side effects compared to some, so hopefully I’ll only suffer a few
Prolia side effects. Hopefully I can manage them. I’ll. Let you know how I progress, and I’d love to know how yourself and others progress combining pred and an osteoporosis medication. Est of luck, I certainly have my fingers crossed for all of us.