Surrey Support Group

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The next meeting of the Surrey Support Group will take place on Tuesday, 12th April, with a guest speaker talking on the subject 'Mindfulness'.  If you live in Surrey or surrounding borders and would like to come along, you can be assured of a warm welcome from a very friendly group of people who understand the challenges of living with PMR and/or GCA.  For further details and to register, please send me a PM.

​MrsO-UK Surrey  

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  • Posted

    Ahhh, great subject!!!  I've been reading a LOT and doing meditations on mindfulness. It's very nice and helps tremendously, when I remember to do it!!! Makes one enjoy the small things very much!!!!!

    Enjoy! 

    • Posted

      Thanks Layne, I'm really looking forward to it.  I tried meditation at yoga some years ago - not easy, but I remember one occasion in particular when I sort of felt myself becoming completely weightless and 'out of it', for want of a better way of describing it!  It's good that you are doing it and finding it helpful....carry on enjoying the small things - most of us could do with appreciating the little things more! 
    • Posted

      wink

      i was shocked mindfulness can including meditating on so many things. I listened to a recording recently that said brushing your teeth.  Be mindful, think of it, the water, how it feels, ... Oh and eating, ha! Sometimes I'm so sick of the strict eating we must do right now and I'm sick of eating salads and greens...ha, ha, but I'm trying to be mindful and be greatful of the good nutrition in the foods and think of it and enjoy it while I'm eating verses thinking of all the things I need to be doing...ha, being in the moment.  It's kind of fun. wink Kind of... Ha. 

    • Posted

      The problem for me is that when I'm eating chocolate I'm 'mindful' that it's the dark variety which contains flavonoids so it's anti-inflammatory....and then I eat too much! lol
  • Posted

    Hi shirley  looking forward to seeing you with gordy and the biscuits  at the next meeting and any new members we have as well
    • Posted

      Yes, we're expecting yet more new members - an extension to the Hall is beckoning!   I'm so glad you're coming along to add your usual sparkle - it wouldn't be the same without you, and of course Gordy......not to mention the biscuits!
  • Posted

    hi mrs o and sparklin carolk here just trying to keep in touch till all is sorted carolk
    • Posted

      Hi Carolk - good to be in touch again so thank Heavens for other forums!  Not so sure they're able to sort out the problem on the NE forum from what I heard, and they might be considering starting one up on Facebook.  I'm not a member of that so will just stick to our other forums ftb.  Hope your ok, Carol.
    • Posted

      There is already a PMR group on FB and one or two people have had some rather sarky responses from people with slightly way-out ideas. Not welcoming at all I gather...
    • Posted

      I remember reading something along those lines a while ago - probably from you!wink ​  I think we've been spoilt with the 3 wonderful forums we've had up to now covering our conditions.  Perhaps there is another source where the NE could set up.  Perhaps there is another forum where the NE could set up - somewhere like talkhealthpartnership if you've come across it?
    • Posted

      It was from me in terms of someone saying she'd been slapped down for saying something on a forum and I said I hoped it wasn't one I belonged to! that's how I heard about it - and then someone else said they'd had an unpleasant experience there. 

      There must be another message board host somewhere, besides FB which I don't think will fulfil our needs to be honest. You can't post long things very easily.

      I suppose it would shut me up...

  • Posted

    hi i am ok a bit of a flare but i am dealing with it spoke to mavis today and have emailed gm ,felt really sad that forum went down hope they can get it going again ,hope they are all ok miss them lots ,would love to hear from them ,in anyway poss mavis has my email and happy to have contact carolk
    • Posted

      Yes, it is sad and it is being sorely missed - I especially feel sorry for GM, no doubt Mavis has been in touch with her as well.  I've passed the word to all those members who are also members of the Surrey group so that they are all aware.  Sorry to hear about the flare, Carol but glad it appears to be getting under control - the wiles of PMR!
    • Posted

      Hi Carol good to see you I mailed GM last week as you will already know  she is a bit down with the forum being down.  She is already on facebook so will have no problem if it starts up there

      Eileen I am not on facebook so don't plan on joining it  at all so

    • Posted

      hi sparklin good to hear from you ,hope they sort the forum lets hope others get in touch carolk

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