suspected ovarian cancer. need to talk...frightened

Posted , 13 users are following.

Hi 

I have recently had an us scan which revealed several cysts on my left ovary. After my scan I went to work where I received a phone call from my gp saying they suspect ovarian cancer and that I needed a ca125 blood test. I literally fell of my chair and totally broke down. I have had the test which showed a raised level of 54. I believe it should be below 35. 

Needless to say I'm totally beside myself. I have another scan on Wed. Apparently there is a solid mass in the middle of it. The whole thing including the cysts is 9 cm by 7 cm.  so to me this seems concclusive !!! Has anyone else experienced this. Any advice / chat will help me. I'm hating waiting and not knowing. I have 2 little girls and I'm scared of them not having themummy . Xx

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  • Posted

    Hello Annya

    This is such a worrying time for you, but they don't yet know what the cyst is made of....I had a similar experience to you just over a year ago, when the radiographer said that he'd found a large growth on my ovary and that it was a solid mass.  But a scan showed that it was a dermoid cyst, with very little liquid but a lot of hair/ cartilage, so your cyst may not be cancer.  Am sending you lots of hugs as I know how frightened you must be - has your GP referred you to a specialist/ for a scan?

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    • Posted

      Hi Janie. Thanks so much for responding. And your message is reassuring. Yes I'm seeing a specialist on Wed for another scan . I already have an appointment arranged on Friday also - with a gynocologist. X x x
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  • Posted

    Me again...I meant to say that it was an ultrasound scan that showed the growth but that a CT scan or MRI scan will show what your cyst is in greater detail.  Has your GP referred you to a specialist as s/he will be able to arrange one of those for you.
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  • Posted

    I'm so sorry to hear this, as a mum also of young children I can understand how you must feel. I do not have experience of this myself but my mother had breast cancer, and all I can say to you is that now that the hospital are aware of this rest assured that they will not hang about and will do whatever is required as a matter of urgency. I wish you all the very best xxx
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  • Posted

    Hi,

    I can't believe your GP gave you this information over the telephone.

    I was found to have a solid mass on my right ovary, which was 7cm in size when first scanned in September. I had the CA125 test but I was never told the level. I have read though that other conditions such as fibroids can give an increased reading.

    i've had both ovaries removed, my consultant did not want to only take the right side just in case the growth was cancerous. Luckily the growth was benign but it was still a worry while waiting for results.

    i hope your GP has made an onward referral for you. I'll be thinking of you

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    • Posted

      Yes I can't help but think this initial worry and not knowing could actually be the worst bit. Surgery doesn't really worry me. I just want rid. Thanks for getting in touch. I promise to update x x x
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  • Posted

    Hi Annya

    so sorry you are going through such a horrible time. I went to my Dr in may concerned about pains and constant swollen stomach.  My Dr insisted I had a scan quickly as possible as she suspected ovarian cancer.  Before I had the chance for the scan i ended up in hospital with a ruptured cyst.  But the worry was horrendous.  I really hope you have good results x

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  • Posted

    Hi Annya, 

    I went through the same as you when I was 28 and had just given birth to my first baby. I had a lot of pain at the end of my pregnancy, I thought it was labour at first but this was a pain that wasn't coming and going and it was excruciating.  They couldn't find out what the pain was whilst I was pregnant as the baby was in the way.  I was in a lot of pain for two weeks and couldn't even lie down in bed, I had to sleep sat up.  It was really painful when my baby kicked, agony in fact.  After the birth the pain wasn't quite as bad but I was still pretty sore.   I went to the doctors when my baby was 3 weeks old and she did an internal and said she thought I had a cyst on my ovary and she phoned the hospital and they made me go right from the doctors to the hospital for a scan.  I had the scan and returned home and then a couple of hours later my doctor phoned and said I had to go back to the hospital to see the consultant.  I went back and had another internal which was quite painful and he told me I had a cyst as big as a grapefruit on my left ovary.  He said he would leave it two weeks to see if it went down.  Two weeks later they had me back and it hadn't decreased in size so he said he needed to operate and had me in the week after.   I had a CA125 test which I had no idea what it was at the time but I asked one of the consultants team if it could be cancer and she said yes it could as my CA125 was a lot higher than it should be.  

    It was Mother's Day that Sunday and I remember thinking that it might be my first Mother's Day and my last cry   I had my operation the Thursday after and they removed the cyst, ovary and tube and apparently it had twisted on its stalk and cut the blood supply off and that's why it had been so painful.  I don't think I'd ever had pain like it in my life.   Whilst I was still in hospital the consultant came and told me that everything was fine and it wasn't cancer and the ovary had been healthy.   Not sure how they got the results so quick as I was only in hospital 6 days.   

    I had another cyst last year which started off at 4.7cm and grew to 10cm in a few weeks and as I was nearly 51 the consultant suggested an hysterectomy.  That cyst also had a solid bit in it which they weren't sure about so they did an MRI scan and he said he thought it wasn't cancer but couldn't be sure without testing it.  Anyway the results came back and everything was fine.  

    The CA125 test isn't really reliable and can scare you to death when it comes out higher than it should be and yours doesn't seem that high to some that ive read about.  There are loads of reasons it can be higher so please try not to worry too much, easier said than done, I know.  xxxx.  Good luck with the scan and let us know how it goes xxxx

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    • Posted

      Hi Janet. Crikey you went through it didn't you. And right after having a child. Glad all ok. Thanks for taking the time to respond. The messages really have made me feel better and positive x x x x
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  • Posted

    hi hun i had the same, will be 2years this march coming ,it was huge dermoid tumor benign,i had both ovaries removed and it actually was twisted around my left ovary so he took both just incase ,please try not to worry tc mags smilex
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