swelling or prolapse 4weeks PO

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Hi all 

Wondering if anyone can help, I’m having a bit of a rubbish time so positivity is not on my side sad 

I am 4 weeks post A&P repairs, peranium repair and laparoscopic removal of Granulation tissue following hysterectomy in September 17 

The hysterectomy was done by mistake I should have had repairs done hence surgery so close together 

My question is I still see a a bulge where my cystocele was, it’s smaller but my vaginal opening still looks full of tissues, if I walk around for too long feel heavy as I did prior too surgery 

Have I reprolapsed already or is this swelling? The thought of more surgery makes me feel sick 😔 xx

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  • Posted

    At 4 weeks this is most certainly swelling I'm pretty sure. 4 weeks is really early and the heaviness you feel is your body telling you to rest, it will get better but complete rest is the key. I'm sorry to say but it will be some time yet before you feel anything like your old self, but you will get there.

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  • Posted

    Hi Chloe

    I am nearly 5 weeks post op for cysto recto entero urethral repair for the 3rd time.  At 4 weeks there is still definitely swelling. The best you can do is be horizontal as often as you can for the next 4 weeks if possible as gravity is not your friend.  The surgery is done , you control how much pressure you put on your slowly healing tissue don't rush being in you feet. I don't even sit as yet. 

    Like you I feel as if the cysto is still bulging  but have lost faith in the outcome of a possible no 4. 

    Keep your spirits up girl!

    Peta

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    • Posted

      I really believe that Surgeons staff should check in on their patients every week for the  first 6 weeks to allay all the concerns that appear on these forums. 

      Some women are given so little information about expectations and realistic limitations  as I was at the time of my first and second pelvic reconstruction. 

      I am not a feminist but we need more great female  uro gynae s who understand what a woman's life is all about. 

      Peta

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    • Posted

      I completely agree, I feel like I’m winging my way through this recovery relying on lovely ladies who share their experiences on here and similar sites 

      Thankyou for your encouraging words I really need too try and relax xx

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  • Posted

    Oh gosh it's way too early to be trying to look! Leave it all alone. Your stitches probably aren't even out yet. They only start tightening between 3-5wks. Don't even try & look till around 3mths! How do you mean the hysterectomy was done by mistake?

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    • Posted

      Thankyou 

      I know I shouldn’t look but I’m so over run with anxiety I just couldnt help it

      The consultant looked at wrong notes so done wrong procedure 😢 

      I wish I had known that this swelling would mimic prolapse I am so anxious about it all xx

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  • Posted

    Hi. I will be 4 weeks post TVH with anterior and posterior repairs in Wednesday . I too have the same worries and fears. Feeling guilty every time I do anything in case it is too much, whatever that is. No pain which means I  feel better than I probably am. Walking I feel less pressure than before the op so hopefully that is a good sign. Pottered in the house yesterday, sat up for most of the day and had my longest walk so far. Taking it easy today as feeling a bit heavy. Think it’s just swelling. Feeling anxious about what is normal at this stage. Don’t have my check up till 10 weeks. 
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    • Posted

      It’s horrible isn’t it? 

      I honestly think the worry is worse than the op, I hope your ok 

      Prominsing that it sounds as though it’s pretty common for women too feel like this in early days 

      I done the exact same as you yesterday and now suffering feeling very swollen and tight plus had a little spotting of blood followed by a few stitches 

      I was supposed too be 10 weeks but called he’s secutary and changed it too 7 weeks po can’t wait too know exactly what’s going on xx

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  • Posted

    Not lost any stitches yet and bleeding stopped about a week ago. Just funny coloured discharge now. Get really bloated every evening. Wake up fine. I am trying to find a specialist physio for advice on what exactly I can and shouldn’t do as you read so many different things. As you say, feel like you are winging it. Also going to try to get a gp appointment before I drive. Planning to try that after easter. Trying hard not to panic. Surgeon did say not to worry too much as stitches are very strong. Would be so upset if I had gone through all this just to be same as before. 
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    • Posted

      Yes you need a letter for insure purposes if you drive before 6 weeks, 

      I agree about specialist PT but not easy too find 😫 

      I’m sure in 6 months this will be a distant memory for us all but the current is not easy too deal with xx

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    • Posted

      Have you read the South Tees info on here? Go to Useful Resources and scroll down to South Tees info. 
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    • Posted

      Hi Robyn,  thanks for your reply. I can’t find it on this site but have found info on google. Have you had this procedure?  Do you have any advice?

       

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    • Posted

      Go to homepage first. Then Useful Resources. Someone else posted a link to it on a different post, here today. I had anterior repair and mesh sling. Was sposed to have posterior repair done at same time but Surgeon told me just as I was entering theatre that he only wanted to do one at a time as "I might end up too tight"!! So now still need posterior prolapse fixed. Wish I had of told him to just do both 1st time round!

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  • Posted

    Hi Chloe 

    so sorry to hear this but it is early days. I am now ten weeks post op and the swelling is at last reducing but I felt exactly  the same and rest rest and more rest is definitely the answer ! It is very frustrating but worth it X take care and don't over do it !

     

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    • Posted

      Hi Chloe

      Hope you are resting!

      I am 5 weeks today yay but everyday I am grateful that I have honoured myself with another healing day. If the surgery that has been done was on the outside you would probably be more keen to rest it. 

      Be up and about throughout the day for very short periods but being horizontal  defys gravity so that needs to take up most of your day. My pelvic physio said 5 min walk is enough at 4 weeks. I am having trouble occupying myself now but know rushing this healing phase is only going to be detrimental.  

      I suggest if you have any concerns call your surgeons rooms the squeaky wheel gets the oil and don't worry what they might think of you.,,,,...   then you lay back and relax and know you are giving yourself the best chance for the future. 

      I do understand your concerns and feelings but once you have tapped into the resources you need ......positive thinking promotes healing ... 

      Take good care,  Peta 

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    • Posted

      Wow that's the least by a million miles, I've ever read her heard for walking activity. I was doing more than that on day 2! That's seriously limiting in every way. Not really achievable to many I'm sure. Walking is very important for loads of reasons - preventing DVT's; keeping gut healthy & active; preventing weight gain from doing nothing; for blood flow;  etc. etc. I know I would never be able to lay around that much that far out from op. I really don't believe plenty of walking, starting after 1wk, & steadily increasing that, is going to do any damage. I'm a registered nurse and we have always got all ops up and actively walking around no matter how big the op. I have to disagree with a 5min walk at 4wks!!!!! Seriously!!!!

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    • Posted

      Robyn I think it is best that i  take the advice of my pelvic physio.  This is my third. Pelvic recon and I believe  comments you have made line up with why my surgery failed twice before.  
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    • Posted

      I think looking back I was feeling impatient to be well again,although I had been advised it would be a long haul! 

      My consultant was good when I asked if I should still be in so much pain and he reminded me that I had had major surgery and it takes a long time to heal so to rest rest and rest. It sounds as if you have the right approach and you are right about ' if it was on the outside '

      as you feel that people don't understand. 

      Hope you will begin to feel that you are making progress. There is light at the end of the tunnel ! 

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    • Posted

      As a nurse I am surprised to read your comments. Everyone's recovery is individual and  their  needs are different and if consultants and physiotherapists advise to rest to allow for the body to heal that this must be based on evidence based practice. 

      You were very fortunate that you were able to feel so well on day two ! 

      Your comments might make people feel like failures. Surely we need to be encouraging one another to take care and not overdo things too soon ? I am glad I have rested and am feeling stronger each day. 

      Surely there are so many variables to take into consideration eg age, previous medical  history etc. 

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    • Posted

      My Specialist said walking around a little & often to begin will not make the surgery fail.  He said they use strong stutter material and it's stitched up really well. Walking does not strain the pelvic floor. Bending to floor and lifting heavier objects than a kettle with enough water for a cuppa can. Then increasing this distance steadily from week 2. Urogynae's have a huge amount more training and study than physios. 

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    • Posted

      Thank you for your valuable and wise comments. I was offended by Robyn's remarks particularly because they were extremely arrogant setting herself up as the authority discounting my profession team and because she made out that I was being dishonest all of these things are counterproductive on this forum

      With thanks Peta

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    • Posted

      But ACTUALLY your advice is very very unique and people reading your comment will think it's the norm, but I'm telling you it's not!!! The norm is to be moving about more and more to prevent a miriad of other problems that can arise very easily from doing nothing at all. So what I was pointing out is that your advice is given for you alone, & not generally even for prolapse repairs. There certainly are lots of limitations but walking about isn't one. Good grief some are given barely any limitations and only signed off work for a couple of weeks. So I wanted to put a different perspective for what is usual. OMG hardly anybody would have the surgery if they read that they have to go to bed fully for 5+ weeks! Your advice was extreme for your specific reasons, & is not usual. Yes, rest is important, & no lifting and bending to floor; no hoovering; but so is being upright and walking around to aid digestion; lung function; circulation; preventing DVT's; mental wellness; preventing constipation; etc. etc. You take offence ridiculously easily! I DID NOT undermine your medicals. If you take offence so easily then I suggest forums aren't for you!!

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    • Posted

      Robyn   Everyone is entitled to post on this site in the spirit of being helpful and supportive. If a person has a medical team who hold a different approach to your strongly held views then it's not acceptable having been threatened by a different view to lash out with aggression and personal attack.

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    • Posted

      Robyn What hospital  are you representing? What urogynae advisory centre do you represent? Any Registered Nurse knows that it is way way against nursing protocols is be advising post op patients online  and how highly dangerous that would be. Suggesting a poster check in with their specialist or GP would line up with responsible professional conduct. You are anonymous and therefore taking no responsibility for your advice or the possible dangerous outcomes of such.  
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