Swollen nodes

I am so happy for you Emma I cried! That is absolutely wonderful news and I am so happy and relieved for you. Look forward now and not back, I'm sure you and your little one will have a wonderful future together - you've had your share of worry. Love to you both, Joy.

Well done Emma, we all knew that you could do it, all that worry could only give you grey hair at your young age.

I join Joy and admit that I too welled up with a lump in my throat at your results.

In future should anything else happen to cause concern remember that early diagnosis is the key to positive results.

Hopefully you won't have any further need to worry. Enjoy your life and celebrate with your loved ones, family and friends.

I am over the moon for you.

Lots of love

Hi Joy, Please allow me to congratulate you for the way in which you supported Emma during the highly stressful and worrying time that she has just endured.

At a young and tender age, with a child to consider too, coupled with a degree of naivety, the mind promotes terrible fears of the unknown.

We, having been in similar situations can speak with authority on such matters.

Once again thanks for the display of humanity and support to such a courageous young lady. . My sincerest best wishes to you for a healthy and happyand successful future.

JohnE...

Many thanks for those kind words. I am a year past the end of treatment for my cancer but now spend my time worrying about an appointment in November for a meningioma (brain tumour). Hopefully it will have remained fairly small and can be easily dealt with, if it hasn't they'll have to deal with it anyway! Lol. I look after my granddaughter who is autistic while her mum and dad work so can't afford to be out of action for long otherwise we'll all be in trouble! I do hope all goes well with you, life's a bitch sometimes isn't it. Good luck and best wishes.

Hi Joy, I just wrote a fair bit about how sorry I am to hear that you have been belted yet again. ....you poor thing. In my haste to offer you my best wishes and support I hit the wrong key and lost the lot to cyberspace.

Basically I was trying to let you know that Immunotherapy is getting a lot of discussion over here in Australia where I am and clinical trials are being offered for certain requirements. There have been good reports too.

Wondering if you are aware or have you had any discussion on this with your oncology crew?

I am here for you should you wish to communicate and I'm a good listener. In the meantime stay positive and look after yourself. .....enjoy that little gem of a granddaughter. They are the best medicine of all.

My best wishes to you, I look forward to hearing from you in November after your consultation.

Keep smiling;-)

JohnE

Hi John. The meningioma was found by a routine ct scan for the cancer, aren't I the lucky one! Actually, yes I am. Because of that scan a 10mm tumour was found that, had I not had cancer, may not have been found until it was really big and more problematic. My first appointment with neurology is in November as you know and I shall be asking for Gamma knife surgery which I have read up on and doesn't frighten me in the slightest. Recovery is very quick and treatment is done in a day and then home! This is important for me to enable me to provide continuity for my grandchildren. My grandson does not have any issues and is 15 but spends a lot of time at my house with his sister. We have a special bond as his dad was away in the army when he was a baby and he and his mum lived with us til he was 17 months, then I had him for half the week while my daughter worked. My son-in-law did 12 years in the army, 6 months in Iraq, but is now working in civvy street and doing very well. So, a hiccup like a brain tumour will not get the better of me - my family need me! Lol.

Well Joy, you really are very lucky, considering that you were just having a routine follow up CT scan. Who would have known a 10mm mass was there without it?

I'm on your case and will follow your progress if you keep posting.

I am assured that you are one of the most positive people I have encountered, by the way you have given your support to many others here.

I also expect that you will have them join with me in offering their support too.

I look forward to hearing more from you in the near future; until then best wishes, lots of luck and keep smiling. Enjoy your grand children. ...... they are the best medicine.

LoveJohnEdna

Thank you John, I have a cancer check up tomorrow, an MRI for the meningioma next month with a follow up appointment in November! Let's hope it's good news in time for Christmas! Life is too short to waste it moaning and complaining, I'd rather enjoy my life laughing with my grandchildren, friends and family so they have happy memories, and have happy days out with my husband (when I'm not nagging him to get jobs done round the house!) I'll be sure to keep in touch.

I saw the heamatologist thurs who confirmed no sign of lymphoma. She said she is going to refer me to the multi disciplinary team, but i am not sure what for as she said she doesnt need to see me again. I was told by her I dont have sarcoidosis, but 2 days before i was told by chest consultant I have stage 1. She said she doesnt have access to my lung funtion tests as i had them done at a different hospital. The ct scan was normal. It said i have a bulky pancreas that looked normal. I am a bit confused as to why she wants to discuss me with mdt. i do have other problems as well such as osteoporosis, undercative thyroid and anaemia. Hope your cancer check goes well tomorrow and your mri.

Mmmm, that's all very confusing isn't it. Right, no sign of Lymphoma which is excellent. She said she doesn't have access to your lung function test because it was done at a different hospital. Rubbish! Everything is on computer and under NHS so if she really wanted to see it she could. Putting that aside, if your chest consultant has said that you have stage one then you clearly have some health issues along with your osteoporosis, bulky pancreas, interactive thyroid and anaemia. As all these issues come under different departments (rheumatology, haemotology, etc.) she is referring you to an MDT. This will be a team of doctors who each specialise in one of the conditions that you have. They will discuss your case and decide what treatment, if any, you can be offered that will not make any of the other conditions that you have worse. It is common practice when a patient has a range if conditions and nothing to worry about. In fact it means that all your problems will be discussed at one meeting and appropriate action taken without you having numerous appointments with numerous doctors. So, good luck with that and celebrate that no lymphoma was found.

How did you get on at your appointment. I am very anaemic. My blood count has dropped from 160 in April to 108. I think this may be due to a flare of my sarcoidosis. I am very breathless and tired, not sure if this is due to sarc or anemia or both.

Hi Joan. I'd say probably a combination of both. Have you been told what they are going to do about your anaemia? My appointment went fine, thank you for asking. Now if I can just get this pesky brain tumour fixed I should be sorted. Please let me know what they do about the anaemia.

I am having repeat blood tests this Fri, so will let you know as soon as I finf out. Hope your brain tumour can be sorted out

It'll get sorted out one way or another, it's just all the waiting around that drives me up the wall - a month til the MRI, then another month til the follow up appointment for results and all the time spent in waiting rooms! Still, how lucky are we that we have the wonderful health care that we have, God bless the NHS.

Hi John. Just to keep you up to date I've got an MRI Friday to determine whether tumour has grown with follow up appointment in November. Had check up for the lymphoma last week, so far so good, he wants to see me again in 4 months instead of 3 and isn't bothering with blood tests now. Keep your fingers crossed for me!

Hi again Joy,

And joyous results pending for the MRI on Friday. Also if the doctor isn't worried about bloods that's good too, and four months is better than 3.

Hang in there....... my fingers are crossed for you. ?