Posted , 9 users are following.
Hey guys. Just trying to figure out if all my health issues over the past year have been down to mono or if there may be something else going on.
Can I ask what your symptoms were from the beginning until now or ongoing problems?
My doctor is currently arranging a ton of tests and he's raising more questions than answers and starting to freak me out.
Thanks guys x
0 likes, 16 replies
We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.
40with.gf. Backtome
Posted
Hi backtome,
i started red off with yawning and tiredness 4-6 weeks
then I ended up in bed for weeks. Totally fatigued, exhausted. I had 'air hunger' hot and cold.
good and bad days followed
my whole body tingled, couldn't do sharp noises, stressful situations
sometimes I felt my blood sugars were low, felt spacey.
really thirsty
very emotional, lots and lots of crying.
i am now about 11 months in and feeling so much better.
i had a test for Addison's disease (had low cortisol reading) but all clear x
Mono_too Backtome
Posted
Tinnitus and a weird whooshing noise in my left ear.
Weakness and feeling of off balance at times.
Exhaustion
Muscle aches
Flu like symptoms
Sore throat
Shakiness, weakness in arms and legs
Heart palpatations
Low/depressed mood/brain fog
Yawning also.
I have had many tests to for autoimmune diseases, thyroid and they want to do cortisol also. I feel much better a year later and personally would be happy to never see the inside of a doctors office again.
Backtome Mono_too
Posted
Omg I had all those crazy symptoms too. The whoosing in the war! Like what the hell is that about?
Did you have any problems with eyes? Or tingling in hands/feet etc?
Cold feet?
40with.gf. Backtome
Posted
Tingling all over body, not so much in feet, but it was scary when it started, I was worried for a while. It gradually died down.
ive had no problems with eyes but that doesn't mean others haven't.
Mono_too Backtome
Posted
Hi Backtome,
Dark circles under the eyes for awhile and a little puffiness above, not so much tingling. I did have very cod feet in the beginning. My temperature has also been low through out the process. A friend said the whooshing may have been due to an inflammation in the inner ear. Doctors didn't have a clue.
Mono_too
Posted
Butterflyx Backtome
Posted
If you're concerned, I would arrange for a blood test to be carried out to check for the EBV virius. It's hard to diagnose yourself, because everyone's symptoms are different from what I've read.
For me, it was pregnancy like symptoms. Missed a period, felt sick every day and night. Also, it felt like something was stuck at the back of my throat, urine was so dark it looked like it had been mixed with bleach. Finally, extreme tiredness, loss of appetite, loss of weight, and confusion.
40with.gf. Butterflyx
Posted
Yes, it does!! Pregnancy symptoms...it's the nausea, I had that a lot.
Butterflyx 40with.gf.
Posted
I actually had to take a test just in case hahaha, even my manager and boss were asking me if i was pregnant 😂 Some strange symptoms, I tell you.
A week before diagnosis, I was diagnosed and treated with antibiotics for a kidney infection, which I never had. Then given penicillin for tonsilitis, then a rash appeared. People thought I was allergic to the penicillin, until blood results came back positive for GF.
One strange, but scary illness.
Backtome Butterflyx
Posted
Thank you. Doctor confirmed I had the virus last November but I've been sick long after I thought the virus was gone.. so I'm just curious what others went through like 3 9months, 6months, 12months later etc coz I'm honestly getting worried and so is my doctor but this forum is helping as I realise I have had all of the above symptoms at different times and it's continued for 12months nearly. I have been better though recently. Still bad days. I'm just hoping theres nothing more serious going on
Backtome Butterflyx
Posted
christy32934 Backtome
Posted
Hi Backtome I experienced
Extreme fatigue
Sometimes lightheaded
Feeling of "low blood sugar" although they were fine
Racing heart
Trouble staying asleep
Loss of appetite
Crying spells (emotional toll lol)
Trouble standing (showers were really a toll)
And just an overall exhausting, down feeling
dan84262 Backtome
Posted
Let's see....
I had:
Fever
Night sweats
Neck pain
Sore muscles
Swollen lymph nodes
Sore throat (white patches all over my tonsils, which according to my pharyngeal exudate culture, it was "normal flora with no fungal growth"
Headache
Chills
Weight loss
Tinnitus
Ear pain
Jaw pain
Nausea
Chest pain under my lower right ribs
Taste change (food tasting very bad/weird)
Excessive salivation
Brain fog
Depression
Fatigue
Cough
Loss of appetite
Red patches on the back of my throat and on my palate
Pins and needles on my feet, legs and arms
Muscle twitching
Insomnia
Body aches
Sneezing
Gum swelling (with tiny red dots aroung my teeth)
Severe anxiety
________________________
I've recovered from most of the symptoms but I'm in the 4th week of the disease and I'm suffering from pain on the right side of the Adam's apple and on the base of my neck. I also have burning pain on what seems to be my right vocal cord, trachea and epiglottis.
When I eat food it tastes very odd/sour.... I brush my teeth but I can't get rid of the taste. I had a nasty staph lung infection back in June, but I recovered from it after 2 weeks of antibiotics. I hope that doesn't have anything to do with this.
dan84262
Posted
I also had a huge cold sore on my lower lip in the first week. I'd never ever had one before. When I woke up and saw it I got very upset.
craig07920 Backtome
Posted
Oh all sorts of symptoms Back to me.....
For me I had a constant low grade running fever in my body, which felt like it was draining me and tiring me out all the time and causing more sweating that usual....also painful lymph nodes in different parts of my body including my neck, armpits, chest and groin....and just this general feeling of not being well or having the body resilience to cope with things. I tend to liken the experience I went through to like a 'physical breakdown', a bit like the body's equivalent of a 'mental breakdown', where you just couldn't cope with the simple tasks any more and needed constant rest and recovery time.
I know it's different for everyone though, and remember you are going to get better I truly believe that for everyone on this site and reading the messages thanks to God's grace and mercy and healing!
Craig