Symptoms of Cauda Equina Syndrome but no firm diagnosis?

Posted , 10 users are following.

Hi everyone

I am currently in a frustrating, not to mention worrying situation with regard to my condition at present. This seems like a really helpful community so I'm glad that I have stumbled across it. To get the full story across, this post will no doubt be a tad lengthy, but I will try and keep it as brief as possible! If you don’t have time to read the whole thing just skip to the last few paragraphs which explain my current situation.

To give some background, I have suffered with lower back pain and sciatica on an intermittent basis since the age of about 16 (I am now 32). These episodes would eventually subside with a combination of remaining active and taking OTC painkillers. 

Towards the end of 2013 I had a particularly stubborn bout of sciatica, though I did not bother consulting my GP until mid-January 2014 when I got up out of bed in the morning and experienced the horrendous pain associated with a herniated disc. I was prescribed Tramadol, Naproxen and a short course of Diazepam. A few days later I had some trouble emptying my bladder fully and experienced some straining and hesitancy. I called my GP who arranged for me to be assessed for CES straight away by a colleague of hers. Other than the pain and urinary problems, I did not have any other symptoms such as numbness. It was deemed that the Tramadol was responsible for the bladder dysfunction, and that was that. 

After a few months of physio my symptoms did not improve, therefore I had an MRI scan in April 2014 which revealed a disc herniation and nerve compression at the L4 / L5 level. I received decompression surgery at the beginning of May with a private neurosurgeon. This operation initially brought significant relief, however after a few weeks I began to experience some twinges and, at that time, mild pain radiating down my left leg (prior to the surgery my right leg was predominantly affected). This pain gradually worsened over the course of a year, and after several unfruitful GP appointments, I finally managed to get an MRI scan which revealed a further herniation at the same level plus some stenosis. I eventually received a laminectomy at the beginning of 2016, though the disc was not operated upon at that time. Prior to this particular surgery, I developed mild urinary incontinence in the form of dribbling after urinating. I visited A&E however I did not have an MRI scan, and the Amitriptyline I was taking at the time was deemed the culprit. I discontinued the Amitriptyline there and then, but the urinary symptoms remained. They were completely resolved following the laminectomy however.  

During the months following this surgery I suffered with repeated lower UTI’s, one of which developed into a nasty kidney infection. In October 2016 while I was about a mile into a dog walk, I suddenly – I mean literally out of no-where – became incontinent. It wasn’t a huge amount, but enough to notice. I made an appointment with a GP who referred me to a urologist.

About 10 days after the onset of the symptoms with my bladder, I experienced some pain in my lower back which was reminiscent of a disc herniation. I was referred back to my neurosurgeon, who suggested getting an MRI scan. The scan was performed in December, and the results were fast tracked to my GP surgery within 24 hours. The hospital radiologist noted that there were symptoms of CES in the form of urinary incontinence, and also remarked that the cauda equina appeared “compromised” and that there was no spinal fluid present within the spinal canal at this level. Despite this, my neurosurgeon adamantly remarked that they could not identify any compression of the cauda equina in any of my scans. They did confirm however that I had re-herniated at the same level on the right hand side, and that a spinal fusion would be the next step surgically should I wish to pursue that route.

I guess to an extent I should be relieved that the cauda equina is apparently not being compressed by the herniation. But the problem is, I am not entirely convinced that this is the case. I have seen two urologists regarding my symptoms, and am due to undergo urodynamic studies shortly. I have already had a physical examination, a cystoscopy and an ultrasound scan of my urinary tract – all of which revealed no abnormalities. I recently had a comprehensive consultation with my current urologist and he is not sure what the problem could be. It is almost definitely not stress or urge type incontinence, and he is leaning towards it being of neurological origin, however my current neurosurgeon’s diagnosis conflicts this.

In terms of my symptoms; It feels as though my bladder does not empty fully, and I always have to strain to get the last dregs of urine out. It seems to be an overflow type incontinence where small amounts trickle out on a regular basis, but I cannot feel this when it happens. When I do go to the loo, I know that I am passing urine, but I do not have any urethral sensation. I also discovered this morning, with a very full bladder after a night’s sleep, that I cannot hold it in – I didn’t wet myself and I made it to the loo with no problems, but then when I sat down I actively tried to see if I could hold it in, but some urine trickled out regardless. It was really strange as all of the muscles and structures involved were all contracting fully, but the urine still dribbled out. This only seems to happen when my bladder is very full mind you.

I am also really frustrated as any bladder dysfunction is an apparent red flag symptom wise, however pretty much everyone I have seen to date seem to disregard this, and just keep on advising me that I don’t have CES as there is not any numbness in the saddle area, and I don’t have any reduced tone in that region. I appreciate that other conditions such as diabetes can cause incontinence, however I have not been assessed for any such conditions. In addition to the incontinence and pain, my plantar/ankle reflexes are absent on both sides, and I have bilateral sciatica.

I have requested a second opinion and am due to see the neurosurgeon of my choice at the Walton Centre in just over a weeks’ time. This particular surgeon specialises in complex spinal conditions and CES is a one of his research interests. I am very keen to obtain his opinion on the matter, and hopefully will feel more relieved once I have received this – whatever the outcome may be.

I’m sorry that this is such a long post, and am super grateful to any of you who have stuck with it! I am quite a resilient person, however all of this is beginning to get me down a bit by now, especially as I don’t have a definitive diagnosis, am not receiving treatment or any kind of support. It is also psychologically difficult to deal with being incontinent at the age of 32 and having to use products akin to what you would find in a nursing home! I haven’t told anyone about my problems, and just really need to talk to someone who understands, and also who might be able to share their own experiences and opinions with me. I hope that I will in turn be able to offer the same to other members of the community.

Thank you so much for reading, I would really appreciate any kind of input.

 

0 likes, 38 replies

38 Replies

Prev Next
  • Posted

    Hi everyone

    Just thought I would update on my progress since I saw the neurosurgeon yesterday (Monday) for a second opinion. Well, it basically turns out that I was right all along and it was a good thing that I doubted the general consensus of all involved health professionals to date. The neuro was very concerned about my symptoms and the degree of nerve compression therefore has scheduled surgery for this coming Wednesday on an almost emergency basis. I will be having decompression surgery to free up all of the nerve roots and a one level spinal fusion. He arranged for me to have all of my pre-op assessments done while I was there (thumbs up NHS – had a CT scan and allsorts in around 2 hours) so I am all good to go surgery wise on Wednesday morning.

    I just want to thank everyone who took the time out to reply and wish me well – I really have appreciated it. I think that this goes to show that if you, as a patient, think that something is askew, then you need to just keep on fighting and asking for referrals etc until you are given the adequate care. I do not think that my case has been dealt with particularly appropriately, and by now I am somewhat dumbfounded as to why my previous neuro claimed that everything was hunky dory, when in fact there was something quite sinister going on. Hopefully I will be able to reverse or at least improve the symptoms of numbness etc (which have worsened over the last week or so, too) and improve pain levels, but unfortunately it is virtually a 100% certainty that I will never regain healthy bladder function, and will be incontinent for the rest of my life. I think that certain people have some serious question to answer about this, however for now I will focus on getting through surgery and my recovery.

    Thanks again everyone 

    • Posted

      I hope your surgery goes well. It must be of some relief to be recieving good medical care now. It is good to hear you met with a doctor that would listen to your concerns when it sounds like the other doctor/s were effectively doing the 'its all in your head' thing to body sensations, functions and even imagry that sounded very real & also logically connected in hearing the story. I truly hope this surgery gives you some better quality of life. I hope it does not turn out you are now incontinent permanently, with CES it is so hard to know how things will go. At least now you have stopped progression of the nerve compression. Yes It does sound like some doctors have some serious explaining to do as to their inaction, which sounded arrogant and ill informed. Maybe it would be worth seeking some advice once you are feeling well enough, in time. Best of luck in your recovery.

    • Posted

      Hi Maryanne

       

      I am at home now following being discharged on Monday evening. Having some issues with pain control and I have a degree of foot drop and an inability to move my toes properly following the surgery, but am hopeful that this is all just down to inflammation and bruising etc. The pain after surgery was horrific, and I have still not really achieved a comfortable degree of pain control just yet, but I am going to work on this with my GP now that I am at home. The hospital were dreadful with their pain relief regime, I was literally in agony and they took about 17 hours to address it. I think they dropped my pain relief too sharply after I came of the PCA morphine but then seemed reluctant to increase it to a satisfactory level afterwards despite my constant whinging!

      My GP (the one I have generally always seen previously as my regular GP - not the one that has been dealing with the recent bladder/back problems) has seen me today and assessed the wonky foot so at least I have the reassurance of having medical advice. I also have a one off appointment with a neuro physiotherapist next week so that I can get some more specific exercises for my foot as opposed to just trying to keep on getting my toes to move, but I am not planning on having any regular post-op physio until I reach the 6 week mark. The GP has also increased my pain meds (slow release morphine tablets and oramorph for breakthrough pain) as I am struggling to get by on what the hospital prescribed so hopefully I should start to feel more comfortable soon. Incidentally, I also saw the nurse today who tried to make out that I had just had sacroiliac joint dysfunction as opposed to a disc reherniation when I first began to experience symptoms in October, and I have to admit it was nice to see her squirm a little bit!!

      Recovery wise I seem to be doing quite well. Everyone is impressed at how well I am moving about and managing generally, but I guess as this is my 3rd operation I am well rehearsed! I am trying to take lots of short gentle walks around the house and do some basic stretches, but still feeling very sore and very much in the resting phase at the moment, just listening to my body and building things up gradually. Bladder issues have sadly not relented, but maybe with time they might improve a bit. My GP seemed to be of the opinion that this could be possible, but to be honest I think she may have just been trying to cheer me up a bit. Either way, at least this surgery will hopefully have halted any further damage, so I should just be grateful that I found a surgeon who took my issues seriously and acted accordingly.

      I am seriously thinking of getting legal advice about my situation once I have recovered sufficiently, especially as the damage to my bladder is more than likely irreversible, and will probably only improve at best. It’s just crazy to think that had I not have persisted and pushed for a proper diagnosis, well, who knows what the eventual outcome would have been. At least now I have had surgery, even if it did take 5 months of complaining about supposed red flag symptoms!  

      Anyway, time for a little shuffle around the house again now! Thanks for taking the time to respond and I hope that you are well smile 

    • Posted

      Hi,

      havn't been on here for a while. Hoping your recovery went well after the journey you went through to get the second opinion & surgery & things are improved.

    • Posted

      Hi Maryanne

      I am recovering well thanks - 12 weeks post-op now and cracking on with physio. Also had the green light to bend, twist and start a bit of hill walking too. Still painful, especially in terms of back pain, but the sciatica is 85% better, so I am very happy with that. The neuropathic problems in my legs which worsened after surgery are still present, but not too bothersome and my physio is confident that these issues will resolve with time. The foot drop has improved immeasurably and I have good range of movement now, but there is still a fair degree of weakness on the outside of the foot and I am unable to fully flex or extend my toes. I'm also still taking Zomorph and Oramorph, but have reduced the doasage of both. So, overall, I'm doing well.

      The bladder dysfunction is unfortunately unchanged, I am still working with my Urologist to get to the bottom of things and figure out what can be done to help. I have had urodynamics recently which despite my symptoms did not reveal any abnormalities. My Urologist is somewhat baffled as everything is pointing toward my problems being of neurological origin, however all the tests I have received to date do not reveal anything untoward. I am having another cystoscopy on Tuesday (I did have one under the care of my previous Urologist, however they apparently are not terribly adept at dealing with such issues - so glad I asked to see my current Urologist instead!) and will possibly undergo ambulatory urodynamics too. The current school of thought regarding treatment options is an injection of urethral bulking agents, but hopefully we will know more this week.

      I do have faith in my new urological team, and am glad that they appear to be proactive in finding a diagnosis as opposed to just discharging me under the guise of everything being "normal" as my previous Urologist did. But that said, I must say that I am beginning to lose patience now as it has been nine months since my bladder symptoms came about, and given their nature I am keen to get some answers and hopefully some kind of relief. I have also been a bit poorly over the last few days with a suspected mild kidney infection - I called my GP and she prescrided some antibiotics there and then which thankfully seem to have nipped it in the bud. Nevertheless, I'm still a bit concerned about any renal damage that could possibly be happening. Anyway, hopefully I will be a bit closer to getting some answers after my cystoscopy this week. 

      Thank so much for getting in touch, I hope that you are keeping well?

    • Posted

      Hi,

      I am glad to hear things are going well with your recovery & it sounds like your mobility levels are coming back? 12 weeks is certainly early days but must represent alot of work with physio wise. Sorry to hear of some post surgery nuero legs / feet stuff. Also that bladder issues continue and a brush with kidney infection. It sounds like you have a good team of people looking out for you now.

      I am well, I have been reading some articles by Forest Tennant. Arachnoiditis guy but he equates some of the slower onset CES with nerve root arachnoiditis so it has been helpful reading for trying to make management plans with my GP. I am thinking of getting some 'nordic walking sticks' to try & get into some walking. They seem more sporty than accepting a walking stick to get outdoors.

      I was feeling a bit overwhealmed with prospect of lifelong ces stuff quality of life stuff recently as heading to 3 year post surgery & finding so little guidance one chronic CES management out there. I dont have the full blown bladder problems & for this I am grateful. The trouble I do have in that area is very annoying and it is hard not to get frustrated with unpredictable body functiond. I do try to believe there is always hope for stregnth and function, without trying to get too caught up in a 'cure'. I found this little booklet quite positive:.

      http://foresttennant.com/foresttennant/wp-content/uploads/2016/12/arachnoiditis-handbook.pdf?v=Nov2016

      I hope your recovery continues on an upward trajetory. You sound like a very positive glass half full CES er. Especially one for multiple surgeries in that area!

      Good luck with your bladder tests & getting some more support /information & hopefully nerve growth/ connection if that is what helps bring it back?. I hope you get as full recovery & enjoyable quality of life in meantime too. Please feel free to post more on your recovery it is good to hear shared stories.

    • Posted

      Hi Maryanne, I hope you are well?

      My recovery from my recent spinal fusion is coming along well, but I am currently feeling quite dejected, mainly as I seem to have hit a bit of a brick wall with diagnosing the bladder issues. I had another cystoscopy three weeks ago and again this revealed no abnormalities, which is of course good in a sense. I also had ambulatory urodynamics on the same day (that was a fun morning!) and was told it would take a day or two for them to analyse the results then they would be in touch regarding what the next steps would be. I felt quite optimistic at that point as hopefully these tests will reveal more about my problems as obviously I was walking about/sitting/standing/eating/drinking as usual while the equipment took readings. Walking and activity in general is almost always what causes leaks, but only tiny little dribbles at a time, so this should have given a better idea of what is happening.

      But, three weeks on, I have heard nothing. I did call them Friday before last to check on what was happening, and they called me back the next day and said the person who had been tasked with analysing the data had been busy, but would be in touch soon. I haven’t heard a thing all week again though, and I am feeling quite upset because I am reaching a point where I am struggling to cope with this problem without any diagnosis or supportive / curative treatment. I appreciate they are busy, but after 9 months of having to deal with this issue with virtually no support is beginning to get me down. I really hate it. I can’t go anywhere without wearing a really heavy duty pad. I can’t go swimming which would work wonders for my back at the moment. I can’t really book a holiday either which I am desperate for, but I don’t relish the prospect of sitting by the pool with some hideous continence swimwear or face the discomfort of exploring a new place while I gradually get more and more wet and uncomfortable. I can’t go out rambling as far as I used to as I get too uncomfortable. I can’t wear particularly fitted trousers as you can make out my pad. On long days out I have to take spare underwear and pads to change into, generally in the loo of some establishment. I’ve just turned 33 but I feel like a geriatric.

      It is frustrating as my Urologist seems to be of the opinion that it sounds like a neurogenic issue, but every test they have done to date has not indicated that this is the case. They have at least ruled out OAB, stress and urge incontinence, plus any issues with my pelvic floor. I have read up on the different types on incontinence and I am almost 100% sure that I have some kind of overflow incontinence. This coupled with the spinal issues and nerve compression, plus the fact that there is no obvious urological cause would lead one to logically conclude that the issues are neurological in origin. But as I said, my Urologist can’t actually find anything physically wrong with me to account for my symptoms. It’s bizarre. Hopefully they will be able to figure out what is going on from the results of the ambulatory urodynamics, but I think I have almost exhausted the tests they can carry out, so if the AU are inconclusive I am not sure what else they can do.

      Sorry for having a mega rant, but I am so fed up by now, I feel like it has finally broken me a little bit. It doesn’t help that I was messed around before my surgery and struggled to get anyone to take my symptoms seriously which was stressful. My problems didn’t end following surgery, by now I am feeling disillusioned and losing hope about getting answers and any kind of relief of my bladder issues. Can I ask whether your bladder dysfunction was diagnosed by a urologist? Or did the neurosurgeons conclude that the CES was the cause?

      Oh well. I people live with far worse and I guess I need to remind myself of that everyday. At least my post-op progress is otherwise coming along well. Taking ages mind you. I am returning to work tomorrow on a phased return, which I am dreading to an extent but it will do me good to get some kind of routine back. Not getting tremendously good post-op care from the surgeons’ team if I am honest, but my physio is very helpful and my GP is always at the end of the phone if I need anything.

      Nordic walking sounds like a great idea – it’s actually becoming quite popular in the UK now I think. Seems like great exercise and you can’t beat getting out in countryside and getting some fresh air. Did you get around to it in the end? Thank you for the link too, I haven’t readthrough it in full just yet, but there seems to be lot of useful information which I can take note of for my next follow-up with the Neuro and urologist. Curiously, my neurosurgeon has not actually confirmed anything about CES in writing. I am confused now, because I had some of the red flags, he was concerned about the degree of compression coupled with my symptoms and decided to operate in less than 48 hours, which implies that I had CES of some kind. I had wanted to ask him about this during my post-op review but I saw a physiotherapist (who didn’t seem to listen to a word I said judging by his correspondence) instead of surgeon. I am not due to go in again for another couple of months so maybe I’ll call his secretary and see if she can ask him on my behalf.

      Anyway, I think I have rambled on enough! Hope you are doing well and thank you for always lending a friendly ear and some good advice. 

    • Posted

      Hi,

      hope your recovery is still going okay. Sorry to hear that the bladder issues are not better. I had a bit of a rough pain patch and did not reply for a while.

      I absolutely think your bladder issues are linked to your back, just from your postings here over the months before. But I'm just another CES er no doctor. That test sounds trying. I just did a 24 hour monitor thing on my chest recently & that was yucky enough. How is the return to work going?

      To answer your question I never did get officially 'diagnosed' with CES except by physio then GP. So no urologist. The nuerosurgeon did not call it that, before the surgery, but then I had unusually branched cauda equina nerves that were being compressed so the GP read my surgery notes (laminectomy & discectomy) & it had been decompressed, the various symptoms stopped progressing. That is all I have needed to help manage it so far.

      Sorry to hear about the frustration. This is a good place to vent on some days. I get the opposite to you, sometimes my bladder will just go 'off line' and I cant go, but it comes back the next day. That is what I'd call a 'flare' it is accompanied by excruciating nerve pain & leg spasms. So I kinda know its the nerves. I have not seen a urologist- I don't have much access to specialists. I'm in southern hemisphere. I have s dedicated long term gp & am very careful with NSAIDS and kidney health because of this trouble. I am a few years into my recovery, I hope it will change for you, or that life will get easier. Its funny with CES yes I too feel so lucky compared to others but still can get very unhappy that this unusual thing happened to me. Good luck if you speak with lawyers, if it will help you live the rest of your life, probably worth a go. I think they have laws in UK around protocols for CES red flags, theres a couple of posters on this site that have got financial help & it seems to make it better for them. I would understand wanting things to just go back to 'normal'.. & not want to think of it too. Yes I have bought the nordic sticks but they got delivered to the wrong place, I like the idea of an upper body work out and being less focussed on balance. Well hope recovery is going well bye

  • Posted

    I am so glad to hear it went well (hmmm well in terms of what a spinal surgery going well can be thought of as a life experience). I hope you have some at home support, it does sound like your a bit of a surgery veteren, which I can relate to somewhat. Happy shuffling.

    Sorry to hear the post surgery pain management was not the best I also share that as an medical experience. Not very nice. I hope you are now getting support with this so you may get some quality sleep and in sleeping let the body heal. Sadly GPs sometimes are the heroes in acting with understanding at times and they are not available in hospitals.

    I hope you can hold an open mind with your bladder, who knows how things will be two years and further down the track. Yes legal advice sounds sensible when you are recovered enough. Medical adventures are hugely costly as are accomadations to our homes cars, work, life and list goes on. Best of luck with recovery and pain relief 🌷🌷

  • Posted

    I am suspicuious of the symptoms in mid Jan 2014 and whether that was the onset of neurological deficit? You say that you were referred for investoigation for potential CES, however you do not say if an MRI was carried out - I suspect that it wasn't and I question whether any responsible body of clinicians should have arranged for one - it depends on your presenting symptoms & signs at the time; the pain and urinary problems are significant I think - did you have any bilateral symptoms? pins & needles?

    • Posted

      Hi

      It definitely would make sense for everything to be connected from the beginning of 2014. I had never experienced any bladder issues prior to my disc herniation and the subsequent mild retention/hesitation when urinating which ensued. I began to experience those symptoms roughly a week to a fortnight after I herniated and immediately alerted my GP who promptly arranged an assessment with a colleague. At that time, in addition to the bladder issues I had severe back pain, unilateral sciatica, some pins and needles and mild numbness - again unilateral from memory. My reflexes were intact. I did have a fairly thorough examination by the GP I saw, but he decided it was a side effect of the Tramadol as I did not have any saddle anaesthesia or loss of tone in that region. He did not send me for an MRI though.

      The same mild urinary symptoms continued but when I had an MRI scan a few months later as I was failing to improve to an adequate degree, it did reveal a nasty herniation, but there was no concern about compression of the cauda equina at that time. I had discectomy shortly afterwards, but the bladder symptoms remained, and eventually progressed to mild incontinence (dribbling after urinating) during December 2015. This time around I was checked over at my local A&E by a junior Doctor whom liaised with a general orthopaedic surgeon with no experience of spinal issues. They stated that I did not have CES despite my symptoms, failing to arrange an MRI, or observe my most recent scan which I had a couple of months previously revealing a re-herniation following the discectomy. I had a laminectomy shortly afterwards (the disc was not operated up despite the MRI  showing a herniation) which removed some pressure completely resolved the incontinence for about 9 months post-op.    

      Fast forward to October 2016 though and out of nowhere I am incontinent with an increase in back pain, bilateral sciatica, absent ankle reflexes and pins and needles/numbness in both feet, plus a strange sensation of weakness in my legs, despite there being no actual loss of muscle power. I alerted GP’s immediately, and originally received a urological referral, but when the back pain became more pronounced I was shoved in with a nurse who tried to tell me that I had SI joint pain, which I quite rightly questioned as I knew it felt like the disc, and more to the point she barely examined me. A GP called me the next day and said they would arrange a referral to my neurosurgeon, but did not examine nor send me for an MRI – despite the fact I had red-flag symptoms of CES.

      The neuro said to get and MRI done but there was no urgency about it at all. I eventually had an MRI during mid December (so 2 months after the onset of my symptoms) and the radiologist fast tracked the results to my GP and stated the cauda equina appeared compromised. It took my GP a further two days to contact me regarding the results, and by the time they managed to get a copy of the scan on disc for my surgeon it ended up being January until I saw the neuro again. He, however, stated that there was no way my urinary symptoms were a result of the herniation. Personally, I think he might have been covering up the fact that he did not attend to the herniation at the same time he performed the laminectomy. I am of the opinion that the disc re-herniation should have been dealt with back then, and though the laminectomy obviously relieved some pressure for a while and my symptoms improved, the disc just continued to bulge out further and further.

      I did not buy his opinion and asked for a second opinion which resulted in my most recent surgery which was performed urgently due to the degree of compression and the bladder dysfunction. The fact that I was mildly incontinent prior to my laminectomy and that this completely resolved following surgery is also raising alarm bells in my mind. Even at that time, my old neuro did not see any correlation between this symptom and my stenosis/herniation. It’s all very strange. I think that my previous neuro may have cocked up a bit with my second surgery and really should have performed a discectomy at that time, and I have a few solid reasons to believe that this is the case. Should he have done so, perhaps I could have avoided further surgery and what will more than likely be permanent incontinence.

      Sorry for the lengthy reply, but it’s difficult to condense it without missing out relevant factors! Thanks so much for taking interest and taking the time to respond

    • Posted

      I have honestly been thinking about this - even before I got a second opinion and what have you as I though my problems were not being dealt with appropriately. I have researched and found some specialist solicitors who deal with CES so once I am fully recovered I am going to get in touch with them to determine whether or not I have a case. I am also waiting for my urologist to confirm whether or not my bladder dysfunction is neurogenic as I would imagine that could possibly impact things. But either way, I think there has been a degree of maplractice somewhere along the line.

      Thanks for the advice - sometimes it's good to have a completely impartial opinion, especially with fairly emotinve subjects

       

    • Posted

      the solicitor will benefit from a chronology; in what area do you live?:

      I am in Dorset but handle claims from all over the country 

    • Posted

      I live in Wales, but the solicitors I have researched are based in Manchester.

      I was thinking that jotting down as much as I can in a chronolgical order might be helpful, especially as there is a fair bit of history to go through. 

      My current neurosugeon has not actually stated in writing that I had any form of CES mind you, though he was very concerned about my symptoms and the degree of compreession visible on the MRI, therefore decided operate in less than 48hrs. To me, that screams CES, but maybe it wasn't in the end? I was intent upon asking him during my review but I saw a specialist nurse. Maybe I'll call his secretary and see if they will ask him on my behalf to clarify the situation.

      My urologist is also struggling to figure out what is happening and confirm whether my problems are neurogenic, but even if it turns out they are not, I don't think that this has been dealt with at all well overall so should imagine I would have some sort of case regardless. I must say that I feel extremely let down over this and have little trust in Doctors at the moment. I am feeling pretty depressed too and just want some answers.

       

    • Posted

      I have looked back at your history and see that the diagnosis was 2014; there is a 3 year Limitation period - the date by which you must issue Court proceedings in order to claim via the Courts; that period would run from when you first knew (or ought to have known) of 1. Negligence; 2. causing significant injury;3. by an identified Defendant

      There are other technical issues but that is basically it; plus the Court having a discretionary power to alow a claim to be brought late in an appropriate case; otherwise the Defendant might consent to a late claim.

      I wonder if the Defendants deflected you from making a claim by telling you they did nothing wrong?

       

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.