Sympton relief

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Well I think I have landed with this LS thing.  I have not been fully diagnosed but have been referred to a Gyn Specialist at Bedford Hospital.  However I can defiantly say I have LS.

Vulva is white a shiney.  I have noticed some small white spots.  Also it loks like the skin in between my vulva and vaginal opening is changing in shape and appearance.  I have a small sweling at one side towards my anus and white skin colouring.  I also have skin tears at the top of my pubic area above my cliterous and my cliterous is very sore a swollen.  Pain when urinating.

Is this a mild or very bad case of this condition.

My GP has started me on a Benovate 1% steroid cream twice a day and HRT Pessaries.

I'm 50 years old.

So far no improvement of the condition.

Sex is out of the question.

I have also noticed a bit of an odour,  however no heavy discharge.

My main concerns at the moment are cancer and also any advice on alternative or other things I can do to getr life back to normal and manage this.

Help, Help Help, Please

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  • Posted

    You have the same symptoms that most have with LS. My specialist prescribed Clobetasol 0.05% Ointment to use 2-3 times weekly. I use it at bedtime. The ointment doesn't have to be rubbed in. The cream has to be rubbed in gently for 90 seconds to penetrate the inner layers of skin. You have to be faithful. I also use Estrace Cream 2-3 times weekly just to help keep the skin healthier. Don't use both at the same time. You have the same symptoms that most of us have. The skin becomes very thin and the skin will begin to grow together. I no longer can see my clitoris. The skin has gone into folds and grown together. This can be surgically corrected. I rarely ever have a breaakout with itching or burning, however my skin is still thin and continues to grow together in folds. Not sure why this does this when I am not having breakouts. I plan to ask my doctor on my next visit. My specialist says that if you keep it under control and don't have alot of lesions, that I probably won't ever develop vulva cancer. So many women have this. They think it has something to do with our immune systems. I am also Diabetic Type II. Also related to my immune system. If I notice a little start up of itching, I immediately use the Clob, It stops the symptoms. I go to a female OBY/GYN. She examined me thoroughly and is thoroughly knowledgable about LS. I see her every 6 months. Please try to not dwell on cancer. You just have LS. My doctor said that since I take care of it using medications faithfully and keep it under control, she doesn't see me developing Vulva Cancer. Those that do, fail to take care of the LS and they keep continuious breakouts that can be a problem down the road. Hope this helps.

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  • Posted

    Hi Lesley,

    I have found great relief and healing with baking soda baths: I put about a third of a cup of baking soda in a bathtub and soak in it for about 20 minutes. I did this every night for several months, and now every other night.

     

    Also, check out the discussion thread in this group, "An Experiment with Borax", which has been a godsend.  Try these treatments, plus applying emu or coconut oil a few times a day, and watching your diet (eliminating wheat, dairy and sugar) and you will see great results.  For me, areas that had fused have now returned and the white areas are gone.

    There is hope.  Don't give up!

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  • Posted

    Hi Lesley, I am 73 and recently diagnosed and my condition was very similar to yours. It has be a Gidsend to find this site! Read everything you can, the woman on here are so helpful!

    Absolutely go to the Borax forum Anna mentioned!!! I have just started it and already in 36 hours i have had the itching, biting and stinging dramatically lessen. I had been on the Clob twice daily and using Vit E 7-8 times daily, but still had symptoms. Now I am using a Sitz bath with Borax twice daily , using a spray with a couple of pinches of baking soda after voiding followed by the Vit E. I hope this encouraging and keep reading.

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