Terrified i have pancrease cancer...help

Posted , 6 users are following.

Hello, I've a little bit of an hypochondriac in the past from hiv to brain tummors that made me break down in fear ( nothing more than mono and sinus infection). My fear started about 4 almost 5 months ago with no appetite ,vomiting and weight loss , i had went to my gp for a check up to see what was going on. Tested for h pyroli (came back negative) this is all about in the second month went from 125 lbs to 114 lbs also in this time light colored or yellow stools.

And slight back pain in the upper left, even sometimes dull hot ache between shoulder, my tummy also made lots of gurgling noises. Went to hospital because im freaking out so the did and ultrasound (said everything looked normal) and blood test were all in range bilirubin was a little high i guess due to dehydration and fasting ( starving myself..)Finally had appointment with gi for endoscopy, all was found was acid reflux, gastritis and a hiatal hernia... My past i have gotta drunk really bad, around 3 or 4 times (close to poisoning). My diet since this all started was very poor lots of fast food...sorry if some parts are jumbled up.

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  • Posted

    Hi,  I was rushed in with Acute Pancreatitis last year, believe me if you are having pancreatic issues, you will certainly know about it, the pain is unbearable and this will be picked up in your bloods.  If they have tested you and everything is fine, then honestly I doubt you have cancer.   If you are having pancreatic signs, then I suggest you lay off the booze and put yourself on a low fat diet, hopefully all your symptons will then start to disappear, maybe your doctor can give you something for the acidd reflux too.   
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  • Posted

    I have just come out of Hospital after 8 days, after being diagnosed with an inflamed pancreas.

    I literally couldn’t walk as the pain was so intense.

    They put me on a morphine drip to ease the pain yet it did nothing really to help the pain.

    You will definitely know if you have acute pancreatisis.

    If you are worried STOP drinking and eat healthy and fingers crossed you will avoid the path I went down.

    Good Luck

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  • Posted

    Dear Eugene, once you are cleared medicaly, I suggest that you see a psychologist to help you with anxiety. Psychologists can also help you with pain management and might also have you keep a food and beverage log so you can keep track of what does and does not cause you pain. I have chronic pancreatitis from a birth defect called a divisum. I first had pancreatitis when I was 34 and pregnant. I agree with your other responses to your question, it is the worse pain ever, it matches birth contractions! Good luck and if you haven't already, please ask your GP for a referral to a gastroenterologist. I hope you feel better soon! 😊

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  • Posted

    Given your age, highly unlikely you have PC. Unless you have a history of chronic pancreatitis, PC, cystic fibrosis or Pancreas Divisum, it’s unlikely you will get PC if you’re under 50. It took the doctors over a year to diagnose me and I was born with two pancreatic ducts that never fused together (Pancreas Divisum). In my case, the divisum caused chronic pancreatitis (never diagnosed with acute pancreatitis which is usually what happens). My blood work never showed signs of pancreas symptoms but luckily a CT Enterography showed atrophy of my pancreas. I’m only 38 and I’m very young to have chronic pancreatitis but it’s a part of my life now. I’ve done every treatment possible and will have a consultation next month to have my pancreas removed. I’ll be dependent upon digestive enzymes and insulin but I’ll survive just fine. The pain from pancreatitis is unbearable and it isn’t just pain you would notice, I lost nearly 50 pounds in a matter of months, had horrible nausea, vomiting, migraines, acid reflux, itching, clay/pale stools, hair loss and my hair stopped growing on my legs/under arms. There was pain after eating, the pain got so bad, I was scared to eat. I have other medical conditions and was already on pain medication which didn’t touch the pancreatic pain. I couldn’t get comfortable and had to lean forward, it was a nightmare. I went through a MRCP which diagnosed my pancreas divisum then I saw a pancreas specialist. He performed an ERCP and diagnosed the chronic pancreatitis. I’ve undergone six ERCPs, a celiac plexus nerve block and pain management. You wouldn’t just have pain, you’d be waking up in the middle of the night vomiting undigested food and having a horrible time trying to get back to sleep. You’d feel extremely exhausted from doing nothing. Everyone is different and will experience different symptoms but the type of pain is unbearable. You mentioned your bilirubin was elevated which normally is associated with the liver. Given your age, you would have had to be a hard core alcoholic for many many years (this is why pancreatitis is more common for elderly because it takes years to develop) unless you were born with a congenital anomaly like me but it’s rare. I would stay away from Dr. Google, it’s not your friend. If you have gastritis then I would look to see what caused it and what helps it. Hope you feel better soon. 
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    • Posted

      Thank you for your response, thats alot to go through and surly hope the best. These symtomps are just unfamiliar to me and scared me...like you said stay from Dr google, that's a terrible habbit for me seeing everything realted to my symptoms says pancan. I mean to never offend anyone just the fear is crushing...

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    • Posted

      I completely understand. I was undergoing so many symptoms and my tests kept coming back normal. I am lucky because my primary doctor knows me very well and she knows if I’m complaining about pain, then it has to be pretty bad. She kept ordering tests and even she said she saw nothing that explained my pain until I brought to her attention atrophy of my pancreas. That was out of her expertise and she is very honest with me. It’s hard when things are out of your control but what I learned through my pancreas journey is, if you stick to a low fat and sugar lifestyle and you keep hydrated then you’re going to live a semi normal life. If it weren’t for my two ducts getting clogged up so much then I would be symptom free. I try really hard to focus on positive things and surround myself with things that brighten my day. It really helps to distract my mind. I would journal what you eat and your symptoms, keep track of your body/pain. As we age we can develop food intolerances (I’m now lactose intolerant and never was before). It also helps to talk to a dietitian if you have GI issues. I didn’t know I was supposed to eat six small meals rather than three big ones and I have to substitute raw veggies for frozen ones. I learned a lot from my pancreas specialist and he had me talk to a dietitian because what may work for one person doesn’t necessarily work for another. It’s almost a battle trying to figure out what your body can and cannot eat however once you figure it out, you’re good to go. Stress and anxiety play a big role. They will actually cause pain but if you learn to let go of things then you’ll find peace of mind. I know it’s scary but everything happens for a reason, I learned a ton of patience through my journey. There’s no quick answer when it comes to the body. 
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  • Posted

    Hi Eugene! Please message me directly if you can I exactly the same as you health anxiety disorder, self diagnosed lung cancer, brain tumour, throat cancer etc and your symptoms currently are very similar to mine and also worrying about pancreatic cancer!
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  • Posted

    Thanks, i have went through some odd changes as i gotta older. I had devolped (self diagnosed) ibs, lactose intolerance (also self diagnosed) woke up one morning had a boewl of cereal and it put me in tears with stomach pain...tested again to make sure it was not the milk and it wasn't. I Could go on even changes after i had appendix removed. This is something scary to me... I haf never really paid attention to my stools so i couldn't say before really other than diarrhea and dark brown..most of the time? I guess, anyway i started to look closer why? I have no clue, i have notice it to make water greasy though..that mixed with slight abdominal pain and odd back discomfort i can deal with...until...Dr google. So to you and lots of people (tons on here) i appreciate the feedback. I do have terrible anxeity, i wish i had better cooping skills then just thinking of my fear the big "c".

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    • Posted

      Have you been tested for celiac disease? You can develop it at any age and since it’s autoimmune it attacks your body. It gives abdominal pain, diarrhea and can even cause blood in the stool. It’s a simple blood test. I recently learned about it because my son tested positive for it. He was vomiting and had abdominal pain. Given my own pancreatic journey, I took him to my doctor and now he will need to see a GI specialist. Dependent upon a person’s sensitivity to gluten, it can cause havoc on your abdomen. Some people belly over in pain. 
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    • Posted

      That’s a good thing. I never paid attention to how many products have gluten in them but I have changed my household to gluten free and it’s also helped with some symptoms. I tested negative as well but staying away from gluten helps a lot with bloating (if you experience it). I hope you feel better soon. 
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  • Posted

    Update: weight has returned, stool are so so sometimes greasy sometimes dark brown. I have the weird discomfort still ( scale 1-10 a 1) eyes are veiny like always. still am waiting for appointment...

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