Test Results Came Back
Posted , 6 users are following.
So my doctor ran three tests to help me figure out this LS business.
Results just came back today.
As we thought, thyroid antibodies were high. No. was 12.9 on a range of 0 to 0 .9, so about 13 times higher than should have been.
The good news was that the antinuclear antibody (ANA) and Sedimentation rate (Sed) were normal so no evidence of other AI illnesses which is good and tells me not to look there. That door is closed for now. But, 2 questions, why is the body attacking thyroid tissue? and how is it connected to LS/other stuff?Back to the drawing board.
Ya'll be well.biscuit
0 likes, 19 replies
susan43705 Guest
Posted
Thank you for sharing. So did the doctor recommend any medication or any new course of treatment?
Guest susan43705
Posted
Dr. General Practitioner didn't even speak to me. That's how his office works. I call up, ask for test results, receptionist or nurse faxes them to me, I figure out what to do. Hell of a system isn't it? The new gyn (no 6) has me on estradiol cream and clob on alternate days. The rest I guess I have to do.
One thing for SURE: I've got inflammation. It seems to have set up shop down there and will not move out. It's lease is up. I need to evict it!
Am reading Dr. book on autoimmune disorders. She seems to think the autoimmune problems are due, in large part, to inflammation. Well, ok, but the list of what you can eat and do is much smaller than what you cannot. One thing I am doing/have done is to cut out a lot of the chemicals in everyday products like body lotion, soap, etc..... VERY HARD...
Do you think you have inflammation and if so, what are you doing for it?
patricia87844 Guest
Posted
hi eggbisuit, Patricia here. wanna ask your thoughts. My GYN wants me to see a soecialist in a Vulvar clinic. Has been urging me for a while and has made an appt for me on JULY? Trouble he is in TORONTO! about 40 miles from mr. I told her i see her because she is a specialist and what does he know that she doesn't? Bedides this Vulvar clinic is in a large hospital with miles of corridors, my walking not too steady. I truly don't think it will produce anything different more tests and still no result. What do you think, would you go? And please EVERYONE let me know what you think too. My appt is next week on JULY 11. Will be watching for your reply. thx
Guest patricia87844
Posted
Hi Patricia,
I think your doc is out of solutions for you and that's why she made that appt. I don't like it when they make appts for us without consulting us beforehand. I think I read where you were 80+. I can certainly understand not wanting to drive that far and then have to walk. Could you call up to the hospital/clinic and see if there's someone (volunteers often do this) who could wheel you up to the clinic so you wouldn't have to walk? If I was you I would only go with the assurance that EITHER someone would be there to wheel me, ora friend could go and stay with me. Heck I'm younger and wouldn't want to go. I am 40 miles from a big city here and don't want to go and I am mobile.
However, there comes a time when our problem is bad enough to seek additional help. That has been exceptionally hard for me. So I ask you this question that only you can answer: how bad is your problem? Does current doc think it might be getting worse, malignant possibly or did she make the appt ONLY BECAUSE SHE HERSELF is out of answers? If my intuition told me that my doc was worried, then I'd bite a bullet so to speak, and get a friend and go. It might be high dollar. Will your insurance pay for it? Hope that helps. Let us know. Sending a prayer.
biscuit
jill_38536 Guest
Posted
Hi again. I've sent you a post but don't think it went to you. Not sure. It went under the heading LS but think I've messed it up somewhere. Will try again. Jill
Guest jill_38536
Posted
Hi Jill, Sorry, no I did not get it. Please resend if you can.
biscuit
jill_38536 Guest
Posted
Hi again just realised I didn't press reply in the first post. To cut a long story short saw the doctor Thursday about the burning. Outcome was to stop the steroid and replens and she prescribed Vagifem (Estradiol 10 micrograms. One daily for 2 weeks then one to be used twice weekly to see how it goes. Funny thing is i found some old cream dating back to 2013 and couldn't remember what I had it for. She said it was for the 'itch'. !!! How could I have forgotten that. That was remedied with the cream and HRT. Looking back this problem I have now started after using a perfumed toilet paper. Maybe I did have it 9 yrs ago. Who knows. If it was I know I got rid of it. Anyhow I will let you know how I get on with this latest treatment. Here's hoping. Hope you're ok and take care. Jill
Guest jill_38536
Posted
Jill,
I know how you forgot what the 2013 cream was for: we are BUSY. When I go through my bathroom box, I always find something I d idn't remember I had.
Perfumed tp will do bad stuff. I have never used it. Even read an article on perfume, in general. So many chemicals in our lives can't be good. Correct me if I'm wrong but you are in the UK aren't you? Whereabouts if you don't mind saying? I have been there but it's been a long time. I am in So US but don't much like it. I am a midwesterner.
So, how DID you get rid of it long ago? Stop using the perfumed tp? Do you have thyroid antibodies? I do and that's one clue I am following. I only have pain, no itch or even white but the biopsy says LS so...who knows. Have good days and bad days. Just returned from long road trip which was difficult with all the sitting...Can you sit comfortably?
best,
biscuit
jill_38536 Guest
Posted
Hi again the only thing that got rid of it in 2013 was HRT and dermovate that's if it was LS. I just remember my GP at he time said that's another nightmare over. But then again who knows. I have an underactive thyroid. Also on medication for high BP. No I don't sit comfortably. Just going to see how this HRT works out. Any improvement I'll let you know. Yes I'm in England. (Worcestershire). Can't stand it here as I'm a city person. Live in the countryside but hope to move someday. Hope I've pressed the right reply button and you receive this
Keep well Jill
.
Guest jill_38536
Posted
Yes! It came through!.
Don't think I made it to Worcesterchire. The HRT was oral, I take it? I have cream.
Underactive thyroid with high BP. Hmn. I have the former but low BP. Sitting is not fun, sometimes neither is walking. I still try to exercise daily to stay sane. I am outside of Atlanta and would like to move farther away. I go to one of my previous gynes on the 7th of Feb, and will let you know if anything interesting turns up.
bis
jill_38536 Guest
Posted
How did you get on with your gynecologist appt. Any luck? I was doing ok up until today. Itch is back but pretty sure it's stress related now. Had to rush my dog off to an all night vet last week. After loads of appointments he's now on penicillin and pain killers. It's his pancreas. Getting on his feet now but really upset me. Anyway the HRT is twice a week now and back to betnovate. As I said it had improved so much I forgot all about it. I feel as I'm now back to square one. Trying to avoid GP surgery with this virus going about. Hope you're ok but would like to know how you got on. Hope you got some answers. Jill
Guest jill_38536
Posted
Hi Jill!
I am sorry to hear about the dog. Can totally relate as my landlady has been to numerous vets, emergency and otherwise for her two dogs. I sure hope he will improve.
Today's visit was the 6th doctor I saw last year but I liked her best and we have developed a sort of rapport. (How can one have a rapport with their gynecologist, I don't know) Anyway she said, LS does not normally cause the type of pain I have. The skin feels like some body rubbed sandpaper over it. She feels it is a nerve entrapment issue and I should see a physiotherapist. Cha-Ching. Physiotherapy is where they manipulate the tissues so I don't know about that. Maybe if it was Mel Gibson or somebody good.... She earlier prescribed DHEA and I recently went back on that (combo of estrogen and testosterone) and I told her I have been using EmuAid mixed with coconut oil. She said fine. She said my skin looked normal. Said gabapentin (generic for Neurontin here in the states, or "the Colonies") was good to take every day and was not addictive. I thought, hmn... So, I didn't really learn anything I didn't know or suspect. How are YOU?
jill_38536 Guest
Posted
Hi there yes thanks my dog is on his last day of penicillin and tramodol. ! He seems a lot better but he's nearly 13yrs now so will have to see how he goes. Now on diet of white fish and chicken. No fat as that can affect the pancreas. Well it might interest you but i read a case history of tacrolimus cream. To cut a long story short it was about a woman who had LS and after about 12 wks improved enormously. After 12 months completely normal. Trouble is its very expensive. Over £100. Just spent £700 at vets. Looks like it has to be prescribed but doubt NHS will pay for it. Anyway look i t up. My husband has to take it orally as after the transplant has no immunity. Sounds a bit odd seeing a physio for the problem but maybe give it a try. Do you have to pay? Keep in touch. Haven't got much of an itch but now very sore in just one area. Thinking of seeing a gynecologist if it gets any worse. If i find any more information on this will let you know. Got to be an answer somewhere. Take care. Jill
Guest jill_38536
Posted
Jill,
Hope the dog gets on well with it all.
Yes, I have used tacrolimus and it helped for a month but the dr took me off of it saying I didn't need it any more. (?) The physiotherapy is painful, invasive and you miss 2 days a week of work, more if the after pain gets you. How many working people can miss that much work? Insurance will not pay. I will call soon however because I promised I would. If you have soreness, hasn't a dr. told you why?
jill_38536 Guest
Posted
Hi there. Well yes Max (dog) is loads better. Now on strict diet. Much more lively thanks. Last of penicillin yesterday. Well there is no way I'm going to see GP with this virus going about. Well the soreness has gone and believe it or not I've been using a cream used for nappy rash and chillblains and its also healing. Thought i would give it a try. As far as your physio is concerned. If there was definite proof it worked go for it. Otherwise why end up in pain? Especially if you have to pay and have days off work. I've come to conclusion you have to try and find an answer yourself. I try anything now. Let me know what you decide. Hope all goes well. Jill