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Tests Acid Reflux and Barium Swallow test and Endoscopy

Posted , 11 users are following.

aryt
aryt

So here I am again , Iv read all the threads on here, well majority of them .

Im sorry that you are all experiencing this stuff;. I think alot of the people on here are experiencing the same symptoms as me'. 

THE CONSTANT BURPING possibly, and the feeling of nauseated feeling'. and vomiting. and yeah it tiering and exhausting to the point where you dont have any energy throughout the whole day' - this is how Iv been feeling for the past 7 months'. Iv been for a barium swallow test. and it come back ok. iv had blood tests done on me. I Have a bit of asthma. does anyone have a white coating on their tongue at all? This is exactly what I have.my GP seems to think that it might be due from the acid reflux '. cause it has been there for a couple of months now'.I know everyone wants answers as do I so I know what Im dealing with . A month back I had an appointment with a specialist and he had told me straight to my face that I dont have acid reflux'. I Saw him for a brief measly 10minutes'. because he had other patients cued up outside'. apparently. and was trying to rush the appointment'. which kind of annoyed me . Would be nice if he actually took the time to listen rather than than base it all on the reports'. my father was misdiagnosed in the past with cancer'. Iv asked the GP several times if she thinks its cancer , and she believes it isnt, Iv brought it up with her a couple of times. more than 3 times. and she thinks its not cancer which is a relief, but I can never be too sure'. cause sometimes it doesnt work out that way. and My god, iv had these symptoms for over 6 months. Its draining to a T'. I burp constantly and I mean just about every half hour. its embarasing I know but I cant seem to do anything about it'. it gives relief for all but 5 seconds and then it starts up back again'.like a feeling of something stuck in my throat, or swollen maybe;, im not sure'. I was taking these tablets that my Gp prescribed me for the white coating on my tongue. but nothing has happened, and no its not a furry white coating. its like a white coating like toothpaste or yoghurt colouring on my tongue. its not thick but it has never disappeared. which is worrying me. and stressing me out to a T".cause not only do I have to deal with that but moreso these tablets, omeprazole and pantoprazole which dont seem to be working'. I am actually annoyed. the specialists says I dont have acid reflux whom I saw for a measly 10 minutes based on the report he was reading from the barium swallow test;. while the Doctor who has been my GP from the age of 15' and now much older now says I have Acid Reflux - she calls it severe Acid Reflux'.. Its irritable'. past 6 months Iv been dealing with this and has set me back in so many ways to the point where I dont like going out much cause of the effect it has on me'.it weakens me and really exhausts me .been unhappy for months since having this. etc'. its rather embrasingand now I have an endoscopy due soon. im releifed but not so reliefed, because when I rung the hospital they said it would take 4 months for me to get an appointment to have an endoscopy . which is a LONG wait, but thats the way the system works here'. Im actually due for one in a months time. Anyone else here have a endoscopy or has had an endoscopy. there are risks involved. which scared me a bit.It states if you have enlarged swollen veins there is a 5% chance that you may bleed from the biopsy which means you could be rushed to hospital'. and given a blood transfusion its scary as really scary'.. It states even having to stay in hospital for 7-10 days due to the procedure or something'.I am so tired of this it exhausts me out to a T not to mention other peoples stress'.when youre trying to deal with your sickness at the same time.its too irritating when People are constantly judging you because they obviously have no clue what you are dealing with excpet with what they are dealing with' etc'.

0 likes, 34 replies

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  • aryt
    aryt

    Posted

    Any replies would be helpful at this stage'. 
    • mick20498
      mick20498 aryt

      Posted

      Hey mate, a good probiotic might help with the burping, etc. A good one from the refrigerated section of your health food store. Can cost anything from $30 to $100  for a little bottle. Made a huge difference for me. See another specialis, get another opinion. Quacks like the one you saw should be reported. I saw one once who saw me for 10 minutes, offered no solutions and in fact gave me wrong info and then charged $200.

      She was the specialist and I knew way more than her. Keep looking until you find a good one.

      Luck

    • aryt
      aryt mick20498

      Posted

      Exactly these specialists are Rude and think they know what they're talking about. If the shoe was on the other foot I wonder how they would feel . A lot of them don't have patience. They read the reports given and base it on the paper they have in front of them '". They need a reality check and to do theirjob properly. They obviously haven't had to suffer with what others are going through.. causing dramas for patients .
    • aryt
      aryt mick20498

      Posted

      Thanks Matey'.thanks for the info'. and yeah its quite frikn insulting when they look at you as if You dont have any symptoms'. when all you want is a solution not someone who sits there judging you because they have a "busy schedule " and want to see other patients because they cant be bothered listening to what you have to say. I mean who knows he may know what hes talking about but then again he may not know what hes talking about'. it wasnt so much what he was saying his attitude towards the whole thing which kind of made me feel like he couldnt be bothered;. . No matted how many tablets they prescribe it doesnt make a difference. no relief what soever;.I know that our country are very low in staff at hospital and have large amount of patients to see. but that doesnt mean they shouldnt just bypass everyone because they feel like your situation isnt that important'
  • abbie34168
    abbie34168 aryt

    Posted

    Hello! I understand your frustrations. Firstly the endoscopy is easy as hell don't read bad experiences a lot are nonsense. You'll be in and out of the room within 10 minutes and out of the hospital 2 hours afterwards no problems. Sorry your symptoms are bad. I myself have had these and more for around 13 months now and like you my specialist is rude and didnt want to hear it.. Even after being admitted through a and e last week due to not being able to swallow! I was refused any more help no conversation of operation or medication or even bloody tests! I cannot do anything anymore I feel sick to my stomach every day. Sometimes you feel helpless I know. Take all the tests you can get! I'm currently going private and paying for a consultant within the next 2 months as I know I'll get the hour I pay for and they actually listen! Pantoprazole doesn't work for me either, none of the PPIs do nor ranitidine. I hope we all get to the bottom of it soon. It's really no way to live a life!
    • aryt
      aryt abbie34168

      Posted

      So even though you had an endoscopy they found nothing ? Then they send u home with more tablets that don't work. I sure hope they know what they're doing
    • Donna1805
      Donna1805 abbie34168

      Posted

      Hi abbie,

      I wondered if maybe you could help me?

      Ive had GORd for years....but recently my medication hasn't managed this. I've gone to my Dr and she has eventually referred me for an 'urgent' endoscopy.....to say I am miserable with this is an understatement. I have no idea how long I am likely to wait for this endoscopy even though it is 'urgent'. I noticed you have elected to look at private options for gastro services, and wondered if you could tell me if you have any further info on this, as I am also considering this?

      many thanks...

    • abbie34168
      abbie34168 Donna1805

      Posted

      Hello Donna!

      I waited 3 months for my 'urgent' endoscopy on the nhs and they didn't bloody diagnose me correctly! However the procedure itself was fine..

      All I can currently tell you is its expensive as hell but I have talked to other people who are private with GERD and say they have had the best treatment possible.

      On Saturday I returned to my consultant with worse conditions after being taken into hospital with a suspected hole in my stomach/chest area from ulcers.. My consultant refused to give me tests. My plan is to go to a private consultant who is also NHS registered as I'll pay for the consultation then they can put you on nhs waiting lists for tests. I'm currently looking to going to London Gastroenterology Centre as I've heard very good things about it. I need a referral from my GP to do so but they're more than happy to help me out as they agree my consultant on the nhs is in the wrong. That's all I can help you with for now! X

    • Donna1805
      Donna1805 abbie34168

      Posted

      Hi Abbie,

      Oh my god!!! 3 months! Really....and that was urgent! What part of the country do you live in?

      Can you tell me approx how much a private endoscopy cost? 

       

    • abbie34168
      abbie34168 Donna1805

      Posted

      The endoscopy is between £1,000 and £3,000 but you have to see a consultant before you have it privately or on the nhs.. A private consultation is between 250 and 500 all depends on where you go. I'm south England in Buckinghamshire.
    • Donna1805
      Donna1805 abbie34168

      Posted

      Ok, thanks for that Abbie.  That's much appreciated. I have another appointment with my GP, and I preasume they have to 1st refer you for the private referral so I think that's what I'll do.

      Thanks for your help.

      Donna

    • abbie34168
      abbie34168 Donna1805

      Posted

      They do indeed and are usually happy to do so! No problem hope you get it sorted soon.

      Best wishes X

  • Sdfuk
    Sdfuk aryt

    Posted

    Hi, sorry to hear about your problems. Everyone on these forums are p*****off with their condition so you're not alone. You will need an endoscopy I'm afraid, mainly to check if you have a hernia and the level of erosion of the oesophagus to make sure you do not have Barrets. I have had 2 endoscopes in the last 9 months. I would recommend having a sedative only in that I believe it stops you gagging more vs the spray. I have had chest pains since my first endo and I think that the Dr has either been too rough and damaged something or I my gagging (only happened 2/3 times) has lead to the oesophagus going into spasm. It's extremely frustrating as I never had any chest problems/heartburn prior to the endo.

    You need to do all the other basic stuff that people have written about in here with respect to diet, weight loss, raising your bed up etc. I would also see a nutritionalist. I saw one last week and they put me on a dairy & gluten free diet. Also, they recommended taking MSM glutamine to repair the gut and soya lecithin.

    You may want to read up on too much vs too little acid as some people have success with adding acid to their diet, such as apple cider vinegar. Just google it and read what people say and the ways you can test yourself. Funnily enough I stopped my PPIs for about 3 weeks a while ago and I was no worse off. I also did the bicarbonate of soda test and the absence of burping would indicate that I was low in acid. I'm not sure how reliable this test is ( or the hcl tablet test). You'd probably need the Heidelberg test to be absolutely certain regarding acid levels.

    Good luck

    Cheers

    S

    • aryt
      aryt Sdfuk

      Posted

      What is Barret ? Is that a illness ? Or disease ? I might see a nutritionalist
  • Barretts
    Barretts aryt

    Posted

    Hi Aryt,

    It's good you're having an endoscopy.

    Endoscopy suites are always busy. Ours works 7 days a week from early morning till late night and buys extra places at a private clinic.

    It may be frustrating waiting but it will be worth it to find out exactly waht's going on and to ensure there's been no permanent damage. Barrett's Oesophagus is a permanent change to the cells lining the oesophagus that in a few cases can mutate to cancer. It is caused by frequent reflux of acid.

    It's unlikley you have cancer. Your symptoms would be different.

    Omeprazole and Pantoprazole are acid suppressant drugs - very good at reducing the acid but not so good at reducing the reflux.

    Our gastroenterology team are the most dedicated, willing to give up their free time to help. They are frutsrated, too, they get too little time to talk with patients which is one of the roles our patient support charity manages. We cover the Wessex area; another is based in London and a new support group covers Essex. PM me if you want to see if there's a support group in your area.

    Reflux (which doesn't need to be acidic) can cause many symptoms.

    Find the DownWithAcid org uk website to learn all about this condition.

    There are chapters explaining how reflux works, symptoms and possible ways of preventing it.

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