Tests Acid Reflux and Barium Swallow test and Endoscopy

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So here I am again , Iv read all the threads on here, well majority of them .

Im sorry that you are all experiencing this stuff;. I think alot of the people on here are experiencing the same symptoms as me'. 

THE CONSTANT BURPING possibly, and the feeling of nauseated feeling'. and vomiting. and yeah it tiering and exhausting to the point where you dont have any energy throughout the whole day' - this is how Iv been feeling for the past 7 months'. Iv been for a barium swallow test. and it come back ok. iv had blood tests done on me. I Have a bit of asthma. does anyone have a white coating on their tongue at all? This is exactly what I have.my GP seems to think that it might be due from the acid reflux '. cause it has been there for a couple of months now'.I know everyone wants answers as do I so I know what Im dealing with . A month back I had an appointment with a specialist and he had told me straight to my face that I dont have acid reflux'. I Saw him for a brief measly 10minutes'. because he had other patients cued up outside'. apparently. and was trying to rush the appointment'. which kind of annoyed me . Would be nice if he actually took the time to listen rather than than base it all on the reports'. my father was misdiagnosed in the past with cancer'. Iv asked the GP several times if she thinks its cancer , and she believes it isnt, Iv brought it up with her a couple of times. more than 3 times. and she thinks its not cancer which is a relief, but I can never be too sure'. cause sometimes it doesnt work out that way. and My god, iv had these symptoms for over 6 months. Its draining to a T'. I burp constantly and I mean just about every half hour. its embarasing I know but I cant seem to do anything about it'. it gives relief for all but 5 seconds and then it starts up back again'.like a feeling of something stuck in my throat, or swollen maybe;, im not sure'. I was taking these tablets that my Gp prescribed me for the white coating on my tongue. but nothing has happened, and no its not a furry white coating. its like a white coating like toothpaste or yoghurt colouring on my tongue. its not thick but it has never disappeared. which is worrying me. and stressing me out to a T".cause not only do I have to deal with that but moreso these tablets, omeprazole and pantoprazole which dont seem to be working'. I am actually annoyed. the specialists says I dont have acid reflux whom I saw for a measly 10 minutes based on the report he was reading from the barium swallow test;. while the Doctor who has been my GP from the age of 15' and now much older now says I have Acid Reflux - she calls it severe Acid Reflux'.. Its irritable'. past 6 months Iv been dealing with this and has set me back in so many ways to the point where I dont like going out much cause of the effect it has on me'.it weakens me and really exhausts me .been unhappy for months since having this. etc'. its rather embrasingand now I have an endoscopy due soon. im releifed but not so reliefed, because when I rung the hospital they said it would take 4 months for me to get an appointment to have an endoscopy . which is a LONG wait, but thats the way the system works here'. Im actually due for one in a months time. Anyone else here have a endoscopy or has had an endoscopy. there are risks involved. which scared me a bit.It states if you have enlarged swollen veins there is a 5% chance that you may bleed from the biopsy which means you could be rushed to hospital'. and given a blood transfusion its scary as really scary'.. It states even having to stay in hospital for 7-10 days due to the procedure or something'.I am so tired of this it exhausts me out to a T not to mention other peoples stress'.when youre trying to deal with your sickness at the same time.its too irritating when People are constantly judging you because they obviously have no clue what you are dealing with excpet with what they are dealing with' etc'.

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  • Posted

    Hi Aryt,

    It's good you're having an endoscopy.

    Endoscopy suites are always busy. Ours works 7 days a week from early morning till late night and buys extra places at a private clinic.

    It may be frustrating waiting but it will be worth it to find out exactly waht's going on and to ensure there's been no permanent damage. Barrett's Oesophagus is a permanent change to the cells lining the oesophagus that in a few cases can mutate to cancer. It is caused by frequent reflux of acid.

    It's unlikley you have cancer. Your symptoms would be different.

    Omeprazole and Pantoprazole are acid suppressant drugs - very good at reducing the acid but not so good at reducing the reflux.

    Our gastroenterology team are the most dedicated, willing to give up their free time to help. They are frutsrated, too, they get too little time to talk with patients which is one of the roles our patient support charity manages. We cover the Wessex area; another is based in London and a new support group covers Essex. PM me if you want to see if there's a support group in your area.

    Reflux (which doesn't need to be acidic) can cause many symptoms.

    Find the DownWithAcid org uk website to learn all about this condition.

    There are chapters explaining how reflux works, symptoms and possible ways of preventing it.

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  • Posted

    Hi Aryt,

    I have been suffering for 6 months and feel the same as you, totally fed up to the point of not wanting to see people.  PPI and ranitidine did not work for me, in fact I feel the PPI tablets might have done something to my digestion and made me worse.I have a sore throat and ear problem (eustachian tube disfunction, which had given me hearing loss) which I think are due to reflux.  It doesn’t seem to matter what I eat. At night I only manage an hour and a half to two hours before waking up with a really dry throat, so I feel exhausted. 

    I saw my consultant this week and he has arranged tests, but warned me there was a long wait.  He said if the pH test does not show acid he will not see me again.  I am worried aboutf being left like this.  I have done the bicarbonate of soda test and it indicated I might have low acid.

    I sometimes wonder if it is gases given off in the stomach and small intestine due to gut flora being upset.  I read somewhere it could be pepsin, not acid causing the damage. This might account for people with problems failing the pH test.

    I’m trying meditation to help me cope.  There are some good Youtube clips on this.

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    • Posted

      The throat and ear problems are very likely due to aspiration of extra-oesophageal reflux whether acidic or not.

      The bicarb test for acidity is very unreliable. Your pH test will provide an accurate assessment. If acid hyper-secretion is found, acid suppressants are called for - not because they reduce the reflux but reduce the harm refluxing acid can do to your oesophagus causing permanent damage (Barrett's Oesophagus) that can mutate to cancer.

      There isn't actually anything much your consutant can do for reflux. The only option they can provide if you are unable to reduce your reflux through lifestyle changes is surgery: fundoplication.

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    • Posted

      Does this surgery help ? and is there a cost involved? as in how much? what exactly is it? and does it help 
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    • Posted

      Available on NHS.

      The operation has been performed for 60 years, the last 20 laparoscopically - ie keyhole.

      It takes the top of the stomach and wraps it around the base of the oeophagus. It takes about an hour and you go home the next day.

      Read about it on the DownWithAcid org uk website and also see the NICE option grid in the appendices of the same book/site.

      I had fundoplication 8 years ago and it gave me myl ife back.

      And All my extra-oesophageal reflux issues I'd had all my life, went.

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    • Posted

      Oh nice one. So happy it was a success for you smile.You took the right choice of getting surgery done, I know alot of people are actually scared of surgery'.because sometimes it could have side effects, but I guess it really depends on whos doing the surgery too. Im sure the doctors or whoever is performing surgery want the best outcome for the patient. . Im guessing you are sedated during the whole time. , as long as they know what they are doing'. smile thats the main thing and that it is a success as it was for you . Kind of gives others hope sharing your story that not all surgery is scary and that it could benefit you in the future.  smile Thank you for sharing that' smile
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    • Posted

      I get confused as to what is surgery and what isnt, I actually thought an endoscopy was a surgery type of thing'. but not necessarily'. our waiting list here is like 4 months ; to be seen from a specialist if you cant afford to pay for it. and then from after that they put you on the waiting list again and that could take up to 4 months to be seen again as well'. unless you go private. private is always available' - but that costs money and sometimes people dont have that kind of money to spare'. Your Gp could mark it as urgent to be seen for a consultation. and some of them dont have the time or day cause they are "busy people"..Im glad i am being seen . but actually nervous about it too. 
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    • Posted

      Dear Barrets,

      ​What were your exact symptoms? Did you expierence LPR? 

      ​Because I understood dat de fundoplication is not effective for LPR?

      ​And how long did you experienced it before going to surgery?

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    • Posted

      Thank you Barretts, I am at the stage where I am hoping I will be a suitable candidate for fundalopiation surgery.

      I have visited your website and thought it was great.

       

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    • Posted

      My symptoms included all those listed below, some of them all my life and I had the fundoplication 8 years ago when I was 59.

      Most of my symptoms were from aspirated extra-oesophageal reflux, to which Jamie Kouffman gave the term LPR but has recently suggested the term "Resiratory reflux" would be better.

      The worst symptom was the chronic reflux cough that would result in a coughing fit at least once a day when I would practically pass out, and make me sit up for a couple of hours between 2:00 and 4:00 am coughing and swigging too much cough suppressant.

      I would perpetually have excessive phlegm in my throat.

      I had catarrhal and asthma like symptoms. I had been tested for all known allergens and  been prescribed various inhalers for rhinitis and asthma.

      I had an almost non-existent sense of smell, post nasal drip, bad breath and tooth erosion.

      I had ear problems including excessive waxing, mainly on the right, which I used to have syringed weekly when I was a young child. The damage from that treatment is still evident today. And tinnitus. I had also had my tonsils and adenoids removed at the age of 4 in the hope it would help.

      Dry, gritty eyes, articularly at night, was another unpleasant problem.

      I had learned to live with these symptoms.

      About 20 years ago, I mentioned to my doctor that the cough was worst when I was also experiencing severe heartburn. He suggested the refluxate was travelling the full column of the oesophagus and entering the respiratory system - which was quite a radical idea at that time.

      Increasing doses of omeprazole over the years got rid of the acid hypersecretion and heartburn but did nothing to quell the cough. 80mg a day for a few years induced hypochlorhydria making me anaemic, on top of all the other symptoms, making me unable to walk more than 50 yards.

      21 years ago I had been offered a Nissen fundoplication to deal with my acid reflux. It would have been open surgery and I was too scared so turned it down and relied on the newly introduced PPI drugs.

      The fundoplication surgery is performed under general anaesthetic. I have a blog that may be found on my personal website, ChrisRob co uk, under the Barrett's tab which relates my experience of the surgery.

      Fundoplication reduces the reflux from the stomach into the oesophagus. This also reduces LPR since there is no refluxate to breach the upper oesophageal sphincter.

      Following my surgery, I was off all medications immediately.

      My cough was minimised, I gained a sense of smell, my ears cleared etc. Within a few weeks, I was cycling 20 to 30 miles every day before breakfast.

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    • Posted

      Wow, what an improvement. I believe you must be one of the happiest persons on the world at this moment. Thanks for sharing this story. It's always good for getting hope from for the others. Especially because you hear LPR is difficult for surgery. I will also check your personal website.
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    • Posted

      Barretts, hope you don't mind me asking, if you were hypochlorhyric did your pH test  prior to surgery show acid reflux?
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    • Posted

      Definitely.

      During the week or so prior to the 24hr pH manometry work up you come off PPIs. My heartburn was raging again.

      My DeMeester score was a massive 179 when anything over 14.7 shows acid hypersecretion. And for most of the time, my pH was around 1.

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    • Posted

      Interesting about symptoms connected.  l was diagnosed with acid reflux, gall bladder removal helped that, though got usual nausea bloating belching years later, scope, diagnosis bit of gastritus, put on omprazole

      But had allergic rhinitus diagnosed 30yr ago, coughing spasms where near choking, congestion, given rynocrom, helped, though still got time to time then tinnitus, sore sticky gritty eye stuff, increased asthma, also t and a out at 3yrs. Amazing about the connections, and also your results

      guessing you were too breathless and unfit before to do strenuous exercise, brilliant result for you. Will check out your site. 

       

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    • Posted

      Your consultant said he would not see you again? I hope he recommended aanother consultant for you rather than brushing you off to the side' like he couldnt be bothered with you '. Their job is to try and help patients who are suffering and offer the best solution in hopes that the patient gets better'. Its quite annoying when they cant find the solution and then get a bit of an attitude  when they cant and they wonder why patients get fed up feeling the way they do . It usually is the case. Is a long wait. If they feel that your situation isnt severe enough then they prioritise it in that sense'.either mark you urgent or semi urgent or not urgent at all'. I waited 4 months just to see a specialist'. obviously I didnt have the money to see them straight away for a consultation. and just as well'. seems I would have only seen him for a measly 10minutes rather than a good half hour for $280 . . $280.00 for 10 minutes'. yeah not worth the consultation rather someone in there who actually listens to what you have to say rather than brush you off' etc'.
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    • Posted

      Wow im so happy for you '.seems like you definately went through a lot of pain and suffering and have come out better' as a result of the surgery'. and I dont blame you , I think anyone would be scared to take the surgery '. it is nerve wrecking as you dont know whether you will come out better, because they say surgery does have its risks, in your case Im glad that you took the chance'. because living with it can make you feel lifeless'. to the point where you cant do anything'. I mean In my situation yes I can walk around'. yes I can eat'. its a feeling of dry throat, and a feeling of something that is swollen inside my throat so and gagging or the feeling of nauseated after I eat, especially after I eat'. and the constant burping etc'. its Horrible'. Im so happy for you . You deserve to be better' no one should have to live like that'. thats a worse feeling ever. I actually thought having toothache or earache was painful and yes it is. but that usually eventually goes away '. can never compare to what acid reflux is. or whatever it is. It really does stop you in its tracks'. and sets you back. Every pain Iv had in the past has never amounted to what I have now. usually normal pains go away but this has lasted 7 months' - Horrible'.
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