Thank you for being alive
Posted , 7 users are following.
Just been diagnosed with l .S . and i thought my life was over I am 57 female went for a smear and was advised by my nurse to see my gp who immediately diagnosed me with l.s waiting to attend vulva clinic . But all i could see was pre cancer until i found your site thank goodness there is life after diagnosis hope to read more from you all Thank you p.s will it cost me more for holiday insurance when i declare it
2 likes, 6 replies
Nancy_K_B valerie73057
Posted
welcome, Valerie, so glad you found this board... as we all were when first looking up about it all. While you are waiting for you Vulva Clinic appt, here is the link to my literature searches that have helped me ot understand how to handle this - an autoimmune disorder. Please do NOT worry about cancer. it's only a very small percentage... and no telling what their other conditions were that led them to that outcome. But armed with the current nutritional deficiencies corrections with supplements you will be fine. smiles. OH! I"m 72 and only diagnosed about 7 months ago, but there are many wonderful women on here who've been balancing out this LS for years. so ask away we are here.
https://patient.info/forums/discuss/pathway-into-and-out-of-autoimmune-diseases--661033
cleo15 valerie73057
Posted
Hi Valerie. Yes it's good when you find this forum. We've all been where you are today. Welcome!
karen41728 valerie73057
Posted
Was there a problem with your smear only years ago when I had an abnormal smear and pre cancer cells shortly after I was diagnosed
caroline16811 valerie73057
Posted
Hi Valerie,
Welcome to the club no one wants to be a member of 😉 You will find a wealth of info on this forum but it can all be a bit overwhelming at first so Is just do the basics to start with while you are awaiting your appt with the vulva specialist. Steroid cream, barrier cream. Anti inflammatory diet . I'm in the Uk and have not had to pay extra for holiday insurance. All the very best x
claire12259 valerie73057
Posted
im in the U.K. When I declared it to insurance, they put the cost of policy up x
Bridge_of_Sighs valerie73057
Posted
Hi Valerie, sorry you've had to join us, but there's a wealth of information on here, and so much support. It's a horrible shock when you are first diagnosed but, a few years down the line, I just deal with it and it doesn't interfere too much with my life as long as I stick to my routines which i don't even think about any more.
I'm in the UK and I haven't had to pay extra on insurance. It's based on risk and cost of possible treatment should anything go wrong on holiday. This isn't really that type of condition. If you do have to pay extra, shop around. I've just been away on the Eurotunnel, and their own insurance covers pre-existing conditions as long as your doctor says you're ok to travel. I rang my doctor, had a chat about it so it was on file, and everything was fine. Obviously I don't know how it compares if I'd made a claim, but luckily I didn't have to.
You will learn to deal with it, and find your balance, follow the advice on here, everyone is different, so try all sorts of things and you will find what works for you./
Good luck
Bridge