The dreaded restless legs syndrome

Posted , 8 users are following.

So guys you will see me pop up all over these forums as I have so many different health issues, however, the Restless Legs is enough to drive a person crazy.  I have had this since I was a child (I am now 58).  In the last 18 months it has gone beserk.  I currently work full time and the minute I get home and sit down to rest it begins and the RLS just keeps going, growing in intensity, until around 4 to 5am.  Sometimes I have it all day.  I am constantly having to move and jiggle about and moving and having to literally sit on the edge of my seat.  I no longer sleep in an actual bed, partly due to this and partly due to pain from osteoarthritus.  I actually have to try and sleep sitting up on the sofa.  I drift in and out of sleep probably getting up to 20 minutes at a time if I  am lucky.  On a good night I might get about 3 hours sleep spread over the whole night, but on a bad night, I get no sleep at all.  I have had to stop working after nights like this as I find myself falling asleep at the wheel and drifting off of the road.  This terrified me and I have to be really be careful about when I am able to drive.  I am now finding that when I take my partner shopping and I am waiting for him in the car the RLS is starting to come on and I am feel like I am going demented.  I have tried so many different things to help with this including, magnesium spray, irion tablets, drinking tonic water, using a tense machine, drinking chamomile tea, taking calms pills, using muscle relaxants and pain killers and finally, something that does seem to give me some kind of relief, wearing anti nausea wrist bands at night.  I now constantly use a mixture of all of these things and sometimes they work, sometimes they don't.  Distraction helps, so when my arthritus pain is really intense the RLS decreases, or watching tv, listening to talk radio, but these things do not allow you to sleep, although they take the edge of it.  The Doctors simply put their head to one side, smile patronisingly and say, there is no  cure and nothing that they can do.  Any more ideas guys?

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  • Posted

    I finally got assistance for the Neupro patch - have you tried this?  It seems to help for daytime symptoms.  Then I add a little ropinerole at night, with some codeine sulfate.  Works Ok most nights.  I've augmented, which you didn't mention, but I'm assuming you've been on dopamine agonist drugs for more than 7 years, when the start to augment.  I took a break of 10 days from mirapex and then started all over with the patch.  Do you have a good neurologist?  I also have watched the webinars from the Restless Leg Foundation.  There is a particularly good one on opiates as treatment. 

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  • Posted

    Have you tried prescribed drugs like Mirapex or Requip? If not for Mirapex I would blown my brains out by now.
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    • Posted

      Well I have never heard of any of these drugs, or been offered them before.  I will ask my doctor about them next time I go.  I take it that they are prescription drugs?  Thanks very much for letting me know.  I know just what you mean about blowing your brains out... there have been moments lol..... thanks.
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  • Posted

    My brother suffers like you and has for 30 years with no relief from anything, all day. I also have RLS but I am fortunaate that one Sifrol tablet each night gives me plenty of good sleep but it has side affects and also I think I may be sleepwalking which my dr. says is possible with Sifrol!?   Any comments would be appreciated also by me. Best wishes to you.   RLS and Vertigo are the two things there seem to be little help from.
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    • Posted

      Hi Valda, it is awful isn't it and seems to be taken so lightly by the medical profession.  If I come up with a solution I will definitely post it on here and I wish both you and your brother all the best.  Thanks for your advice. x

       

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  • Posted

    Ok seems your no stranger to trying everything out there ,heres one that works for me 1000mg magnisium glycinate one tablespoon apple cyder viniger and one tablespoon molasess just before bed, helps me a lot.
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    • Posted

      Hi Glen, that is a combination I would never have thought of so I really appreciate your advice.  Nothing to lose by giving it a try and so I will get back to you once I have tried it.  Thanks very much.
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    • Posted

      I dont know if they work in combination .molasess has Iron ,iron deficancy is related to RLS,magnesiun also, the apple cyder viniger I dont know the roll it plays but you dont have to know how a computer works to send an Email. smile    fingers crossed for this working for you.
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    • Posted

      I dont know about the "Chelated" lable on mine reads...magnesium glycinate 1000MG,150MG elemental magnesium..just to add, my wife dosnt have RLS but takes the Magnesium and she sleeps much better.

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