The dreaded restless legs syndrome
Posted , 8 users are following.
So guys you will see me pop up all over these forums as I have so many different health issues, however, the Restless Legs is enough to drive a person crazy. I have had this since I was a child (I am now 58). In the last 18 months it has gone beserk. I currently work full time and the minute I get home and sit down to rest it begins and the RLS just keeps going, growing in intensity, until around 4 to 5am. Sometimes I have it all day. I am constantly having to move and jiggle about and moving and having to literally sit on the edge of my seat. I no longer sleep in an actual bed, partly due to this and partly due to pain from osteoarthritus. I actually have to try and sleep sitting up on the sofa. I drift in and out of sleep probably getting up to 20 minutes at a time if I am lucky. On a good night I might get about 3 hours sleep spread over the whole night, but on a bad night, I get no sleep at all. I have had to stop working after nights like this as I find myself falling asleep at the wheel and drifting off of the road. This terrified me and I have to be really be careful about when I am able to drive. I am now finding that when I take my partner shopping and I am waiting for him in the car the RLS is starting to come on and I am feel like I am going demented. I have tried so many different things to help with this including, magnesium spray, irion tablets, drinking tonic water, using a tense machine, drinking chamomile tea, taking calms pills, using muscle relaxants and pain killers and finally, something that does seem to give me some kind of relief, wearing anti nausea wrist bands at night. I now constantly use a mixture of all of these things and sometimes they work, sometimes they don't. Distraction helps, so when my arthritus pain is really intense the RLS decreases, or watching tv, listening to talk radio, but these things do not allow you to sleep, although they take the edge of it. The Doctors simply put their head to one side, smile patronisingly and say, there is no cure and nothing that they can do. Any more ideas guys?
0 likes, 18 replies
ratfancy trudie37132
Posted
I finally got assistance for the Neupro patch - have you tried this? It seems to help for daytime symptoms. Then I add a little ropinerole at night, with some codeine sulfate. Works Ok most nights. I've augmented, which you didn't mention, but I'm assuming you've been on dopamine agonist drugs for more than 7 years, when the start to augment. I took a break of 10 days from mirapex and then started all over with the patch. Do you have a good neurologist? I also have watched the webinars from the Restless Leg Foundation. There is a particularly good one on opiates as treatment.
trudie37132 ratfancy
Posted
Thank you very much, I will check the webinars out. I have not been assigned to a neurologist, but keep trying to be sent to one. Doctor's do not take me seriously regarding this. Much appreciated.
ratfancy trudie37132
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drut trudie37132
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trudie37132 drut
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trudie37132 drut
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drut trudie37132
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valda23668 trudie37132
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trudie37132 valda23668
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Hi Valda, it is awful isn't it and seems to be taken so lightly by the medical profession. If I come up with a solution I will definitely post it on here and I wish both you and your brother all the best. Thanks for your advice. x
glen_30598 trudie37132
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trudie37132 glen_30598
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valda23668 glen_30598
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glen_30598 trudie37132
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glen_30598 valda23668
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I dont know about the "Chelated" lable on mine reads...magnesium glycinate 1000MG,150MG elemental magnesium..just to add, my wife dosnt have RLS but takes the Magnesium and she sleeps much better.
Udon trudie37132
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Why is my reply to Trudie being "moderated."