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the imaginary pain

Posted , 5 users are following.

katoen
katoen

Filipina lives in Belgium. It started when I was 30. Im 37 now, cant walk properly even typing is becoming difficult. Ive been fighting for my rights for 7 yrs now, but still my case is questionnable until now since it cant be seen in scans. Been through all scans that they required me and most of the specialists that I met, are still in denial.1 specialist was even giggling while I was explaining my symptoms. The pain is undeniable and depression is always just around. I already signed a contract to donate my body in the future maybe it can help for future studies yet still I am doubtful since I dont really get full support from the state and I am always ridiculed and laughed at even by the society itself.

2 likes, 32 replies

32 Replies

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  • grahammolyneux
    grahammolyneux katoen

    Posted

    I had a GP laugh in my face this year and I tore a strip out of him and told him that he should retire, he missed my wife's breastfeeding cancer in 2012. So called professionals should be struck off as they over paid idiots. 
    • katoen
      katoen grahammolyneux

      Posted

      ya, as what I also notice nowadays a lot are getting more sicker. Our family doctor was the only 1 who was able to determine it. But the specialists , damn. So scared determining it since I am also a colored one and I'm sure ,inside their heads. I would be also like other races "thinking advantage of their subsidies"
    • tiswas24537
      tiswas24537 grahammolyneux

      Posted

       u get very few good doctors these days .there legalised drug pushers , i am glad your wife found help in the end and recovered 

      but know one should go thru anything like that it puts people of going to the doctors

      my friends husband was told he had acid reflux and he was fobbed of with ant acids he died from throat cancer 18 months later just 41 .

      so you could say your wife was lucky in the draw but peoples health shouldnt come down to luck of seeing the right doctor , esp when cancer is suspected

      .  eating an akaline diet is supposed to be of great help at keeping cancer and other illnesses at bay , i am trying to put more akalising foods in my diet , but as i have aspergers syndrom as well i do have an over sensistive stomach so have to do it slowly and build up .

      there are lists of akaling foods on line maybe take a look apparently cancer cant live in an akaline body and most diesease cant live in akaline body either. . raw honey and apple cider vinger with ceylon cinamon is excellant hot drink .

       

    • tiswas24537
      tiswas24537 grahammolyneux

      Posted

      have you looked into wheat grass i am looking into in the new year 

      got some interesting stuff on you tube about it

  • tiswas24537
    tiswas24537 katoen

    Posted

    are sweetheart i am sorry for you its not much better here . 

    i am in a lot of pain since this cold snap all over i am so tired as well it seems the pain when its all over tends to make me so tired . all i want to do is wrap myself in a blanket and sleep . i do mostly fight it . but other people including the medical proffession make me so tired   . because they cant see the pain we are in some how its not real .and we all nothat it is .i wish you well and hope you can find some help soon.

     

    • katoen
      katoen tiswas24537

      Posted

      hello, ja i do have prescriptions  but sadly due to my fibro, cant move that much like before, I gained so much weight even the touch of my own clothing hurts on my skin. Do you have electric blanket, try it it helps a liitle bit. God, I bought an electric blanket, footwarmer,&foot massager but it helps a little bit if im about to sleep. From the pain that I have and the stress of day to day life, I do sometimes wish that I am out of this world.
    • tiswas24537
      tiswas24537 katoen

      Posted

      i cant win the summer nearly killed me i was totaly housebound due to the high humididty this year i swell up and the i get pressure on my nerve endings giving pain and pins and needles ,cold and damp the same .also these two weather conditions make me struggle to breath , i cant do saunas either. but now its gone reall y ice cold and clear from damp its another sort of pain like stabbing followed by tight acheing. 

      i have to sleep on cool mats in the summer because i am so hot even in winter i take one to bed with me and hold it against my midddle .but if i leave my selff uncovered in bed i feel every little draft and its agnony .

      i use a electric heat pad for my back and those ones you stick on clothing when i am acheing .i tell you some times i think i am going mad and just want to go to bed and not wake up . i am not weak or feel sorry for myself its just so crippling this condition ,and what with being an aspergers sufferer as well i am so sensistive to even the basic pain killer i have no let up because i cant take anything on a regular basis for the pain .

      my husband has sent for a self help  programme , as part of my christmas present it has some really positive out comes and recoverys 

      its in use all over the world

      .and offers you a complete money back gauruntee if you feel it has not helped you in 6 months . if your interested i can private message you with its name. cant do it on this page as its classed as advertising. try adding b12 q10 and magnesuim as supplements they do help .smile

    • samantha80735
      samantha80735 tiswas24537

      Posted

      i know where your coming from its like talking to a brick wall. i think because this illness cant physically be seen people think theres nothing wrong. ive had fibro for about 5 years i take every day as it comes, keep fighting and dont let anyone tell u theres nothing wrong keep your chin up your not alone....
    • tiswas24537
      tiswas24537 samantha80735

      Posted

      certainly feels like it hun esp when i am trying to prop up other family members as well , i am so tired at the moment not fatigue like i normaly get just so tired . mently tired of making excuses and explaining feel like i just want to go live on graggy island with father ted and dougal and have a simple life.  
    • christine26761
      christine26761 samantha80735

      Posted

      I was like that. I was using a walking stick..mmm lots of people were soo courteous, then when I had to go into a wheelchairfor a knee op-due to Arthritis...well such caring people...it's just amazing when people can see you have a health  issue, they treat you soooo different..maybe we need to hang a billboard around  our necks sometimes just to try to educate them in hidden health issues, sooo wish they would start an education campaign on TV about people who suffer illnesses  that are not seen..I use a walker with a seat now..because I just can't walk too far without sitting down (also I have huge balance problems)....so people out and about are nice....you have a great Christmastime and try not  to let others spoil it for you..you are putting up with enough without others adding to it..stay strong and positive..:-) xx
    • samantha80735
      samantha80735 tiswas24537

      Posted

      il come with you i love father ted lol i get fed up of making excuses too i cant even go xmas shopping this yea ri feel useless i hate leaving things to other family memebers. ive always run the house and now having to rely on other people to do the everyday things drives me crazy.im glad im not the only one who feels like this i hope your ok thanks for heari ng me moan im sorry let me no when to call father ted.lol take care...
    • tiswas24537
      tiswas24537 samantha80735

      Posted

      i love watching father ted it seems such a simple life think we might get better living there no stress just plain simply folk .makes me feel calm .

      i do my christmas shopping on line so i still feel useful and i shop on line to at sainsburys and asda.

      and even our local butcher ofered some help yesterday .because i never no how i am going to feel on the day and my husband not being home till late xmas eve our butchers said they would drop my half shoulder and jacobs ladder beef  joint of on the way home . even said we could drop in after christmas to pay . if they dont get time to ring us with the price . i dont mind buying my groceries from the supermarkets online but iv never found any taste in supermarket meat so sometimes 

      nice things happen . merry christmas hun 

  • christine26761
    christine26761 katoen

    Posted

    Filipina, please try not to worry about the dr's being sooo negative, unfortunately it's their problem not yours..even though you have to pay the price..I took info off google to my doctor and asked him to read it..he was just fascinated..this was years ago..but it did make him look into Fibro...such negativeness from Drs is quite normal...when they are looking for a diagnoses..I do believe, worldwide all doctors should be educated on this Fibromyalgia...it's terrible what we all seem to go through just to believed and that this pain is not just in our heads..No wonder depression is just around the corner..I am in Australia so our weather here us lovely at the moment...cold wether is rotten for Fibro...use as many heat packs and hot water bottles as you can...I did and the results were good..remember..heat for pain....cold fior swelling..stay strong..:-) xx
    • katoen
      katoen christine26761

      Posted

      ya,its really worst here since fibro is aggravated by cold. As I am having difficulties now to move my left side of my body, it makes me feel that I am detreriorating so quick that I might end up in a wheelchair. And that I might not be able to accept. I was productive before always movingand never was dependent on my husband. But now its only him working ,with our son going to school. Its really undeniably depressing. If 2 of us are working, our fianances would just be enough. Its really tough for me,and de excruciating pain 24 hours a day.
    • christine26761
      christine26761 katoen

      Posted

      Don't be thinking of wheelchairs precious...when the weather heats up you will have less pain...try to focus on the Ebola crisis or something like that..that's what I do when the pain is quite unbearable .there is always people worse off than me I found and it really helps my mind if not my pain...makes me feel better, pray it will you too..:-) xxxx
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