the imaginary pain

What a great idea a support group, wish we had one here, I'm in Oz....

people who don't understand..it's their problem not yours..I've had it for over 17 years now..and others opinions of it matter the least to me....stay positive..it helps..:-) xx

Talking to people about personal issues face to face is totally outside my comfort zone but I can now see that it could help me 

Absolutely Graham, it's great, soooooo much support, encouragement and empathy..not to mention treatments that people have tried and passed on..enjoy...

yes i know that one to ,due to having aspergers i find it so diffitcult to get my worries across if something new appears thats the main reason i dont bother with the gp simply because i get so stressed knowing that he really isent listening and just wants to write a prescription and show you the door .so i never get to say whats wrong . 

I was at the GP's surgery about 3 months ago in tears with my pain and this particular Dr turned to me and said "it's not like the hospital isn't do anything for you is it" exploded.

This is the man that dismissed my wife with swollen gland in her arm pit........We then found out FOUR MONTH'S LATER that she in fact had stage breast cancer which had spread to her lymphnodes 

So this man shouldn't be allowed to practice anymore 

Thankfully she has made a full recovery 

i agree with you 100% they just dont give a dam in most cases fob you of

with anything , my left arm has been swollen for over 10 yrs since a fall i did go to see them all i got was we are all bigger one side , 

yes but not that much bigger , i am still here so obviously not cancer but just recently it has got bigger and hurts from time to time i was going to mention it a few months back when i went to get my bloods done but i hardly had time to draw breath before it was next please

, i didnt even go back for my bloods i felt so upset i hardly ever go i am not a winger there every week ,like most of us arent yet i was treated as a nuisence .its bad enough we suffer like we do but we should be treated with consideration and understanding of this very painful draining condition

A lady I knew had a very swollen arm...she was a FMG sufferer too. Hers was Limphodeama sooty about spelling..anyway she was fine, she wore a rather tight sleeve on her arm for quite a while to stop the swelling..it was a lot of fluid..,it's just terrible about how we are treated at the docs...there should be local Fibro Docs everywhere..juspdging by the amount of people with it...keep strong..,I took control of my health and just wouldn't listen to the docs that just thought I was a nuisance, I just became one...that seemed to work,..I never leave a surgery now without being satisfied with my consultation..I will even tell them they need to be more knowledgable on Fibro..that  it's their job to know and not mine...doesn't always go down too well  with them .but I'm satisfied,,:-) xx

yes it was fine before my fall in 2000 i only put one arm out to break my fall so my right arm stayed ridged my neck went back and i broke 3 ribs it was my right hand that i landed on but its my left arm that became swollen .

so i think it was like a ricasha with the impact going up my right arm into my left arm causeing the sweling. if youknow what i mean.it looks horrid to i have to always go up a size or some times two  in tops with sleeves if there not strech .its really annoying because then its to big every where eles . i wish i had your ability they just always make me feel so small . but its nice to know someone is kicking arse out there .i try the sleeve . it might help with the weight of it . its proberly whats hurting .

thanks for reply .

If you have hospice nearby pop in and ask if they have a lymphodema nurse or clinic. My wife where's a full hand and sleeve as the surgeons removed all of her lymph nodes on her right side. 

She also has exercises to drain the fluid from her arm.

You can actually have blocked lymph nodes so again ask at the clinic.

Holding your arm over your head and gently massage your arm towards your shoulder is the main thing but if there is a massage business that you can try then they could do it for you

Hu if you  want to have a bit  of fun with the sleeves check out a website "Lympha Divas" sum really great designed sleeves 

Need a laugh or two, will check it out..

thank you for your advice i might brave the doctors next year and ask if i could see someone about it , its just they think this kinda of thing isent important and it is because its unsightly and heavy and hurts sometimes .

so i think i will have to bite the bullet and go ,i dont think any hospice would just like me walking in of the street and asking to see someone i wouldnt feel comfortable doing that.

there is a alternative clinic that does lymph drainage but once again its another £45 on top of my acupunture and my supplements if i could get away with once a mont maybe i could switch an acupunture about  for a lymph drainage but i wouldnt think that would be enough .but will look into what you said about sleeves and i try and get my husband to do that arm massage . 

thanks for your reply 

I think you can buy a sleeve on ebay for around  £12.

🎅

please whats there full name cant just be called sleeves 

and thanks for telling me about them .

 

If you search eBay for the number below it will take you to one type of sleeve and the seller also has others this is just the sleeve others have the glove attached.

Item number : 

171441933422

many thanks .