The slow build up of side effects- anyone had the same?
Posted , 55 users are following.
I was prescribed amlodipine 5mg and then, very quickly, 10 mg about 1 year ago. My high bp was detected by my optician via an eye test (!). I have only just discovered this site and wish I had done so earlier.
I am 64, married, semi-retired/work part-time, am fairly active ( e.g. do a lot of walking; go to gym regularly). My bp was taken by the nurse last week and was defined as \"absolutely normal\"; my own readings at home now average 130/80. I had been a heavy smoker for 50 years but gave up a year ago, i.e. as soon as I was put on this awful medication, simply by \" \"going cold turkey\".
My diet is extremely healthy because my wife has to eat very carefully and sensibly for medical reasons.I am a big believer in medical self-help/ alternative treatment and I am personally averse to taking any pills on a long term basis without attempting alternative treatments. I'm not trying to depict myself as a \"health/lifestyle angel\"- I like a drink and good food, like a laugh, go to football, love rock music gigs.
However, my relationship with my GP is not what one would call a \" \"partnership\". One of the most recent NHS policy straplines in terms of patients' rights ( and, boy, how I hate these types of weazel words) is \" \"no decision about me, without me\". Well, folks, even in the first few weeks of taking amlodipine and of being bumped from 5mg to 10 mg my GP was strongly inferring that I would be on bp medication \" for life\". And, when I complained about weight gain, he said he was not concernd \"as long as my bp came down\".
What I have realised, especially after reading this site, is that the side effects of amlodipine can also build up very slowly over a long period of time, i.e. as opposed to being more of a sudden or \" allergic\" body reaction. The danger of this \"gradual accumulation\" of symptoms is that the patient can come to accept these side effects as normal. In my own case, I guess I have up to now been thinkng that they were all to do with natural ageing , smoking cessation, etc. Indeed, my contact with my GP is so minimal that it's a wonder I think of the amlodipine at all.
The main side effects for me are:
-weight gain ( and, I suspect ,fluid retention); for 30 years I could have sent anybody to, say, M&S with a note of my size for a shirt, a suit, jeans, etc. Now, after 1 year of amlodipine, I have 5 business suits which no longer fit and a new, larger suit purchased as a stop gap in July which does not fit. And ditto with dress shirts. And so on.
-calf cramps during the night;
-exacerbated pain in what ,previously , were weak spots/ old sports injuries ( hip, back, knee);
- significantly reduced intellectual/ creative energy;
-\"doing the same amount of activity ( walking, gardening,etc) takes more and more effort/ makes me more and more tired\"- in other words, I still try to do the same length of walk, amount of gardening but it takes longer and takes more out of me; and no- I DO NOT BELIEVE THAT I CAN SIMPLY HAVE AGED THIS MUCH IN 12 MONTHS!
I have paid for acupuncture, which has yielded good benefits; I am about to purchase the RespeRate breathing machine ( has anybody else out there used this/ found a benefit from it?) plus some Cumel natural herb tablets.
However, my huge, huge concern is that my realisation, after reading this site, that amlodipine's side effects can also be gradual and can literally \" \"creep up on you\" if there is no real dialogue with your GP will fall upon the deaf ears......of......my GP.
7 likes, 72 replies
solarkatie
Posted
mike92384 solarkatie
Posted
is not really controlled however I am suffering with burning sensations in my feet/legs. No pain or swelling. My doctor thinks it's the Amlodipine because I had a sensitivity to it in the past (while taking 10mgs). He suggested I come off it, but I didn't want to do that at the time because I was going away on Holiday. He said I could try coming off for a week to see if the burning stopped. THAT would likely prove the Amlodipine is the culprit, BUT Im nervous of stopping the Amlodipine in case the bp sppikes. Any suggestions?
gary_ramsgate
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johntimson
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gwud
Edited
Then thank god, I visited this site and read all these comments. I stopped the tablet and within 48 hours my life changed, I was smiling again, I was a really nice person to know again, I was back from the edge.
Have been off the tablet now for a month, and nobody can upset me anymore, I started taking Omega 3 liquid and my BP is stable at or arround 131/83 Going to visit Docs to tell him what I think of his Damn medication and suggest he visits this site.
bertie_beagle
Posted
I have a ResMed machine for sleep apnea and apart from not looking too good in bed (ruins your love life) I find it very good and gives me a good night's sleep.
As for Amlodipine, thats another matter. And doctors who listen can you find me one? I am seventy and was put on Amlodipine (5mg) about three years ago for \"slight\" high blood pressure, at the beginning no problems.
Then over time I found my feet becoming red and I was experiencing a strong burning sensation. This burning got steadily worse and developed into a prickly sensation like hot needles piercing the skin. This has now progressed up my lower leg and the symtoms were getting worse.Furthermore I was now experiencing itching and feeling as if something was crawling all over my body.
I also began to find it difficult to get to sleep and when I did I would waken after just 1 to 2 hours and be unable to go back again.Then on the 13th Dec this year I decided (without Dr consent) to stop taking the tablets. After 1 day, feet still red but burning sensation eased.Day 2 prickly feeling almost gone though feet still hot.Day 3 getting to sleep easier and sleeping longer.Day 4 itching/crawling feeling gone.Although I did it,and feel a lot better, I would not recommend others to try it. I have a BP machine and have been taking readings before and after taking the tablets - NO CHANGE??
mike92384 bertie_beagle
Posted
mike92384 bertie_beagle
Posted
NO CHANGE? If you're referring to your bp readings...I'd assume that by stopping the Amlodipine, there's no change in the readings. At least they're not worse!!!!!!!!!
You're feeling better..that's #1. I'm hoping to get some resolve...soon.
FleaGirl
Edited
marius85154 FleaGirl
Posted
hi, did you manage to remain of amlodipine?
sleeves
Posted
I am 67. male
I was given this by the hospital and after 3 days I stopped taken it. I was experiencing most of the symptons that folks here have. I was also taking ramapril 5mg.Im now on 10mg of ramipril
and BP is at a reasonable level, I think. I have my own monitor at home and find when I visit my GP or the hospital my BP seems to increase to 150/90, yet, at home its normal 120/80 or there abouts. We have come to the conclusion that Subconsciously I suffer from "White Coat Syndrome".Then again maybe my BP monitor is duff.Was`nt cheap though.
Sepia830
Posted
And then I kept reading and I discovered that other problems I was having were likely related to Amlodipine. Lately I have been having severe muscles pains in my shoulders, tingling in my feet and arms and I have felt for weeks now as if my head were in a fog. I find that I have to concentrate much harder than before and i keep losing my train of thought. Well I am done. I will not take another pill. I will contact my doctor tomorrow to discuss other options.
Thanks to all of you for posting. Reading your testimonials has been a real eye-opener.
grovelad3
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mike92384 grovelad3
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connie68157 grovelad3
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Yes, I stopped mine. I'm checking bp regular, exercising and eating right. I'm trying to lose weight also and doing what I can to limit my stress. I think I'm gonna invest in Omega 3. Good luck !
Mesirm grovelad3
Posted
Hi, I recently requested my doctor change my BP medication from Amlodipine to Lisinopril (5mg) because of all the side effects from the Amlodipine. Amlodipine affected the left side of my body and I am now wondering if the Amlodipine was causing my left eye to water and both eyes stay red. Other side effects included gastrointestinal discomfort, burning in stomach/intestine, cramping, pain in shoulder left side, neck, back. I did not realize until this year that my problems were possibly the result of the Amlodipine. At one point, I thought I was having heart problems but Doctor did heart cath and found no problem. Now, I have been off for about a week and feel like I'm no longer living in a fog as well. The symptoms were gradual so I did not realize it was the Amlodipine. I'm suppose to take statins but I have muscle cramps so I do not take them. Oh...by the way, I stopped taking the Amlodipine and most symptoms started to subside in a couple of days. When I told my doctor, she agreed to make the change. I know everyone is different, but I've noticed that there are similar symptoms in most reviews about Amlodipine. I hope this helps and you find your pathway to better health.