The slow build up of side effects- anyone had the same?
Posted , 55 users are following.
I was prescribed amlodipine 5mg and then, very quickly, 10 mg about 1 year ago. My high bp was detected by my optician via an eye test (!). I have only just discovered this site and wish I had done so earlier.
I am 64, married, semi-retired/work part-time, am fairly active ( e.g. do a lot of walking; go to gym regularly). My bp was taken by the nurse last week and was defined as \"absolutely normal\"; my own readings at home now average 130/80. I had been a heavy smoker for 50 years but gave up a year ago, i.e. as soon as I was put on this awful medication, simply by \" \"going cold turkey\".
My diet is extremely healthy because my wife has to eat very carefully and sensibly for medical reasons.I am a big believer in medical self-help/ alternative treatment and I am personally averse to taking any pills on a long term basis without attempting alternative treatments. I'm not trying to depict myself as a \"health/lifestyle angel\"- I like a drink and good food, like a laugh, go to football, love rock music gigs.
However, my relationship with my GP is not what one would call a \" \"partnership\". One of the most recent NHS policy straplines in terms of patients' rights ( and, boy, how I hate these types of weazel words) is \" \"no decision about me, without me\". Well, folks, even in the first few weeks of taking amlodipine and of being bumped from 5mg to 10 mg my GP was strongly inferring that I would be on bp medication \" for life\". And, when I complained about weight gain, he said he was not concernd \"as long as my bp came down\".
What I have realised, especially after reading this site, is that the side effects of amlodipine can also build up very slowly over a long period of time, i.e. as opposed to being more of a sudden or \" allergic\" body reaction. The danger of this \"gradual accumulation\" of symptoms is that the patient can come to accept these side effects as normal. In my own case, I guess I have up to now been thinkng that they were all to do with natural ageing , smoking cessation, etc. Indeed, my contact with my GP is so minimal that it's a wonder I think of the amlodipine at all.
The main side effects for me are:
-weight gain ( and, I suspect ,fluid retention); for 30 years I could have sent anybody to, say, M&S with a note of my size for a shirt, a suit, jeans, etc. Now, after 1 year of amlodipine, I have 5 business suits which no longer fit and a new, larger suit purchased as a stop gap in July which does not fit. And ditto with dress shirts. And so on.
-calf cramps during the night;
-exacerbated pain in what ,previously , were weak spots/ old sports injuries ( hip, back, knee);
- significantly reduced intellectual/ creative energy;
-\"doing the same amount of activity ( walking, gardening,etc) takes more and more effort/ makes me more and more tired\"- in other words, I still try to do the same length of walk, amount of gardening but it takes longer and takes more out of me; and no- I DO NOT BELIEVE THAT I CAN SIMPLY HAVE AGED THIS MUCH IN 12 MONTHS!
I have paid for acupuncture, which has yielded good benefits; I am about to purchase the RespeRate breathing machine ( has anybody else out there used this/ found a benefit from it?) plus some Cumel natural herb tablets.
However, my huge, huge concern is that my realisation, after reading this site, that amlodipine's side effects can also be gradual and can literally \" \"creep up on you\" if there is no real dialogue with your GP will fall upon the deaf ears......of......my GP.
7 likes, 72 replies
Sepia830
Posted
I've read and been told by my doctor that you should never just take yourself off a BP medication. You should be weaned (sp?) off. You might want to try going to a homeopathic store to see what options are available to you. Whatever you do, I wish you the best of luck. I've been off Amlodipine for over a month now and I feel so much better as a result.
Tomsenior
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leonard34119
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marcus54016 doug64
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I was dudious about going on forums and sites like these but, i am glad i have now. after reading your post i feel like there is a light at the end of the tunnel. i am 41 years old but feel twice my age. i have been on amlodipine 5mg for a year which was upped to 10 mg about two weeks ago.
I thought i was getting old before my time feeling more and more tired everyday no matter how much sleep i had. muscle aching more and more each day after the usual exercise i stopped going to the gym and cycling as i had no energy to do it. old sports injuries getting worse my ususal creative spark had disappeared headaches dry mouth feeling generally rubbish all the time getting paranoid that it was something more serious. i stopped taking the amlodipne yesterday so i am now hoping that this is the start of me coming back and being me again. i will start with taking omega 3 and see if that helps.
i would like Thank you for posting your message, i thought i was going mad. but now i see that it was the medication that was supposed to make me better which was actually making me feel worse than i was before i started taking it.
Best wishes to all on here.
marcus
johntimson doug64
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leroyj4892 doug64
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asha39098 leroyj4892
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I saw your post about the weight gain. I just got out of the hospital. I was feeling lightheaded and having palpitations since my dosage was increased from 5mg to 10mg, so I went to ER. I was there for 2 days. They gave me Lasix and in those 2 days, 10 lbs of fluid came off me. I weighed 10 pounds less. I also am experiencing brain fog and vision issues. This is only my 2nd day off Amlodipine. I'm hoping to feel better soon. Hoping the same for you.
Chi000 asha39098
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Hi Asha ... please keep us updated if possible especially in the brain fog .. it should lift off between the 5th to 14 th day off Amlodipine and that's what happened to most ....
sean29725 doug64
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mike92384 sean29725
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Pharmacists have told me it's ok to simply stop the Amlodipine as there is no rebound to be concerned with.
madeline66729 doug64
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I finally decided to ask the doctor to look at the tablets I was taking and to prescribe another BP tablet as my legs and ankles were swelling so much. This he did and put me on Ramipril. I stopped taking Amlopidine for about 3 weeks but then my BP started to rise again. This week he put me back on Amlopidine 5 mg and after only 6 days on the tablets I can feel the tiredness returning. It really was quite marked how quickly I felt all the symptons returning. I go back to the doctors Tuesday and will insist on an alternative to Amlopidine
mike05018 doug64
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mike05018 doug64
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broadsword doug64
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liz35900 doug64
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