The Urolift procedure; patient views and questions
Posted , 264 users are following.
Would it be possible to keep this thread purely about Urolift and a means of sharing experiences from those who have undergone the process and invite debate from those considering it.
The Urolift process plus pros and cons are accurately described at many a website. Other very long threads discuss in detail BPH and other treatments such as TURPS, laser tend to overshadow people looking for advice on Urolift.
So for me, tired of getting up in the night. Tired of the medication and its side effects, tiredness and ED. Quality of life getting me down. I am 60 and reckon to be pretty fit and active.
I underwent this treatment (as an alternative to TURPS) 2 weeks ago at one of the 5 or 6 clinics/hospitals that appear to offer this treatment in the UK. It really was as simple as described on the web.
I had a 30 minute consultation with the consultant whereby he explained the procedure.
The treatment was booked for 10 am., it took about 15 minutes. I had it done under a local anaesthetic. To be frank if you are used to having your prostate and other bits probed there is no pain. It is just the thought of it you have to come to terms with. After the treatment you have to drink a lot of water to flush your system but I was allowed to drive home by dinner time.
First warning here. I did have to stop probably every 15 minutes with a sudden need to urinate. Fortunately I took a urine bottle from the clinic !
I could write for ages but will see what response I get to this post. I know on the day I was there, 4 other blokes were having the procedure and I sensed there was a regular flow of patients.
I’m now going through the period whereby I’m asking myself is there any improvement? It’s only 2 weeks in. I’m not sure is the answer at the moment. We are all different and recovery and improvement I am told does take time anything from 2/3 weeks to 2/3 months maybe longer. Your system needs time to readjust, I understand that, I don’t know how much time but I’m due for a follow up next week. I'm remaining positive.Would welcome comments from others.
18 likes, 1911 replies
john75981 charles40613
Posted
I am due to have Uro Lift on 5 Nov under MR Rajah Thiligarajah of Essex Eurology at the Spingfield Hospital.Chelmsford. In the UK urolift is not available on the NHS so going private is the only option. The consultant offers TURP Green Light XPS and Urolift.
As i was deemed suitable to have Urolift i have opted for same given less invasive proceedure and seemingly greatly reduced risk of side effects. Mr Thiligarajah says he always fits a cather which stays on for 3 days and can expect to continue with Tamsulosin for 6 weeks as seems to assist the recovery. I have been told that any strenous excercicse /lifting to be avoided for a full 3 weeks.
The operation should remain effective for 8/10 years (which compares well with Green light laser) after which time a further proceedure would probably required.
He did point out that after Urolift i would not be able to have any form of laser surgery because of the clips , so would have to resort to TURIS or similar. However by that time i wont be as concerned about side effects and as he said medicine will have moved on.
Will report back after the OP
AZBill john75981
Posted
It's interesting how the approaches to the procedure vary. I had it done here in Arizona in July. It was an 'in-office' procedure that, once the vallium and Oxycodone kicked in, took all of 15 minutes after which I left with no cath and was playing golf less two weeks later.
I had not heard the caveat about subsequent laser procedure but the little card they gave me specifies to any radiologist, the maximum settings for MRI machinery to avoid the implants from heating up too much. I just got back from a two week vacation in the EU where we had 10 hour plane trips two hour train and car rides all handled very well, a feat that I would not even have attempted 6 months ago. I'm now 2 months post procedure and very happy with the outcome
Best to you.
Bill in AZ
icejohn john75981
Posted
Hi John,
I had mine done in the UK at The Countess of Chester hospital on 14th September on the NHS. It is available now but probably only at a limited number of hospitals. It was the first batch done by Mr Awsare there, but he had a mentor from either Bristol or Bath to guide him on the first day. If you check around I am sure you'll find an NHS hospital closer to you that can do the procedure.
Hope this helps.
John.
frank74205 AZBill
Posted
Hi Bill, Great news ,keep it up.I have to do a cystocopy and prostate ultra sound ,to see if i quailfy for uro lift?Did you have to do these tests also.
I;m in Chicago 3 urologists here just started doing Uro Lift.I don't feel comfortable with this. At 87 years i don' know if this or GL is the way the go.
You said you just had this done in July,2016,I wonder of age has something to do with this procedure??
thanks for the info?
AZBill frank74205
Posted
Frank,
Yes, an evaluation should be done. Not everyone is a candidate. My cyctoscopy was used to determine prostate size as well as configuration. The manufacturer discourages the use of the product based on the size of the prostate as well as if there is what's called a 'median lobe'. Be sure to speak to the Urologist about these aspects and drill for answers if the person finds the prostate 'a bit large' or finds the presence of a median lobe but feels that they still 'pull it off'. A considerable number of posts here, where the result was somewhat less than satisfactory, also have the notation that, 'well he said it was a bit large' or there's a bit of median lobe' but he went ahead. The manufactuer has these cautions for a reason.
They may also go beyond the prostate into the bladder. In my case, I had had retention issues and they want to understand the bladder condition. I'm not real up on all of it but it sounded like there is a point where, if stretching has occurred, they want to understand the degree because if it's too much, the bladder might not 'recover' and PVR would be larger than they'd like. A view into the bladder also would note that you were clear of anything like tumours etc.
They may have more considerations than I've noted here based on other health concerns you may have but that was about it for me. In a report issued a bit ago, it's been reported that 86% if recipients were still good at 4 years. 14% had something happen.
Personally, I'm hoping for 10 years. No telling what advancements will be made by then.
Hope things work out for you.
Bill in AZ
frank74205 AZBill
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kenneth1955 frank74205
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frank74205 AZBill
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thanks Bill for this info.
AZBill frank74205
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I had only one 'acute retentive episode' where I went to an ER and was cathed to relieve it. I had been on flomax for about 4+ years. It was that episode that started my research into various solutions. I liked what I was reading about Urolift and found a doctor here that was doing them. I had an evluation and was considered a candidate. It was done in July. So far I am happy with the result. Before, everything I did was done with factoring in the bathroom stop need. That is gone.
I'm not sure about the bladder issues and how they relate to Urolift candidacy. I do know that during my evaluative cystoscopy he went in and looked at the bladder walls for evidence of stretching. How he took that into account I'm not sure.
john75981
Posted
jimjames AZBill
Posted
Happy you are satisfied with your Urolift. Could you please tell us, other than your episode of acute urinary retention, what were your symptons prior to the Urolofit and what symptons of bph, if any, do you have now? If possible, a before and after IPSS score would be great. (see link below). Also, do you know what your retention was prior to the procedure and what it is now? I assume you are off Flomax these days? Have you gone into acute retention since the Urolift? Lastly, what was the size of your prostate and did you have a large median lobe?
As to the doctor looking at the walls of your bladder for stretching, it was probably part of the evaluation in that a very stretched (flaccid) bladder would probably retain urine even if the procedure itself was successful. Did he do any urodynamic testing before the operation.
Thanks for sharing your experience.
Jim
jimjames AZBill
Posted
Hi Bill,
Forgot to add the link to the IPSS scoring in my previous post.
Here it is: https://patient.info/forums/discuss/what-is-your-international-prostate-sympton-score--453484
AZBill jimjames
Posted
My symptoms for some 4-5 years were a progressive inability to 'empty' leading to more frequent need. It became a (not to funny) joke that you never passed up a bathroom or a chance to go. If I was unable to get relief as when driving a distance I would, as I called it, "get behind". At that point it could take 20 minutes of 3-4 tries to get 'empty' again...pain in the butt.
I have mixed feelings about my situation. On the one hand, had my primary care doctor early in the progression have me see urologist I may have had some sort of the tissue removal procedures. As it was, the 'delay' allowed this particular option to have been available.
I don't know what my 'score' was as I never even had a PVR leading up to the procedure as I had never seen a Urologist during my BPH urinary
issues. But my prostate was just over 40cc with no median lobe. His initial assessment after the cystoscopic evaluation was three implants but during the procedure, in consultation with the manufacturer rep there too, they decided on four. I stopped tamsulosin 1 week after the procedure and have not had any problems since. Hoping for the best now. I'm now 4+ months post procedure.
Your take on the bladder evaluation does sound like what he was looking for now that I think about it. Don't recognize the term 'urodynamic testing '.
jimjames AZBill
Posted
Hi Bill,
Sounds like you found the right procedure at the right time.
As to the IPSS "score", you don't have to know your PVR. It's just a brief survey that takes only a couple of minutes. If you have time, it might be helpful to others to see what your score was both before the Urolift and what it is today.
The link to the survey is in the first post of this thread here:
https://patient.info/forums/discuss/what-is-your-international-prostate-sympton-score--453484
Again, glad things are working out for you.
Jim
kenneth1955 john75981
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AZBill jimjames
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frank74205 john75981
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looking forward to your reply!!
john75981
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frank74205 john75981
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nealpros john75981
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While your increased water intake may well help with pain, it may be causing you more frequent urination. Also, of course, your prostate has been insulted, and you can expect it to take a while for the swelling to subside.
Neal
john75981
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About to start up Gym and cycling again. So far all good.
frank74205 jimjames
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Jim, I sent several messages to -bruce81068 regarding the name of the Dr at U.I.C that did his Uro Lift. I live in chicago .He doesn't answer my messages. Can you tell me how to send a private message to him,on this fforum?
Thanks
frank,
jimjames frank74205
Posted
Find one of Bruce's posts and click on his name. That will take you to a profile page and you will see his name again on top of that page. Right under it you will see "message". Click on "message" and a form will open up so you can send him a private message.
Jim
kenneth1955 frank74205
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I saw a few of his post he had it done somewhere else not in chicago.. I'm going to see if my doctor know anyone in chicago for you to go see I will let you know Ken .
bruce74642 frank74205
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hi, Ftank! I'm sorry uou haven't been able to reach me. I don't live in Chicago. My Urolift was done in Dayton, Ohio. i have just moved to Columbus, but I don't have a urologist here.
paul29249 AZBill
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AZBill paul29249
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Hi Paul,
I'm in The Tucson area and Mine was done by Dr. Tristan Berry in Tucson.
Bill