Things are getting better!

Posted , 9 users are following.

So many of our group seem to be feeling down and poorly at the moment that I'm wondering if this is the right time or the wrong time to inject a bit of good news.

This time last year I'd been diagnosed for 4 months, I was on 15mgs Prednisolone and feeling awful. I'd missed Christmas completely (where did that go I asked myself). Was cancelling lunch and supper dates, gave up the gym, stopped the swimming. I felt exhausted all the time. I even had to stop going to Spanish classes because the 'treacle brain' simply wasn't functioning in English let alone in a foreign language! I just wanted to stay indoors and make it all go away.

This time this year (I know it doesn't make sense, but you know what I mean!). I'm down to 4mgs Pred, I'm entertaining again (albeit a little less fussy with the food) I've taken up walking instead of the gym (much cheaper) I'm back at Spanish and actually grasped the past tense last week. I enjoyed the company of friends on Thursday and Friday, went to see The King's Speech on Saturday and took my lovely daughter to the O2 Arena on Sunday as a very belated 40th birthday present.

I do hope this comes across as encouragement (which is what I badly needed a year ago) and not boasting. I just feel so sad when I hear how frustrated and poorly people are feeling just now and want you to know that there is light at the end of that rotten tunnel and that you will soon start to feel better. Now, do I press submit or not?

Much love to all

Lizzie Ellen xxx

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  • Posted

    So glad you did press submit Lizzie Ellen - because all of us need to be reminded that PMR can get better even if it doesn't go away altogether! December here was disgusting - not a lot of sun, desperately cold and windy (-17C and 20 plus mph up the mountain) and I just didn't get moving with the skiing. This week has been better and family were here to ski - and I went with them as much as I could. I'm now tired but not the desperate fatigue type - and the next visitors (both daughters and partners plus the 2 grandkids) arrive a week today. I think I can cope :roll: :wink:

    Hope we ALL feel lots better soon,

    EileenH

  • Posted

    No, No, boasting?definetly.Not ! GOOD news that we are all wanting to read. Please more good news .! Been to Hospital to give more blood ( those vampires are getting a bit more thirsty...must be the wet weather...) On return home, found the PMR DVD from Gateshead ? Very interesting, but I cannot explain why I found it a bit depressing ? Husband doing copies for my Doctor, and daughter in law (a sister at the UEA Hospital, and grandaughter, a District nurse. Hope they all learn a bit from it ! !.....)

    EileenH in the snow....have great time with family while you can. Time is so short ! Make it Double ! We all WANT to get better, and we Shall ! ! :P Granny Moss :bubbly:

  • Posted

    Hi Lizzie Ellen

    No we are delighted to know you are feeling better than a year ago and so am I !!

    When I was doing a posting for Pauline on another thread I looked back on my records to see where I went after having to go back to 15mg after my blip last January and I had to stay on that for 5 weeks and remember still feeling very lifeless and dragging myself around and now I am on 3.5

    My Dr said to stay on it an extra few weeks as I had a few bugs and she said there are a lot about

    It does make you appreciate the good times more I still cant go back to all former things I did but know I am a lot luckier than many

    Hope things carry on getting better for you

    Best wishes

    Mrs G

  • Posted

    Hi Lizzie Ellen

    Lovely to hear your uplifting news. I am feeling guilty at pressing the submit button with my woes on another thread now ! :?

    Many thanks for the encouragement, I'm sure there will be others along to say the same.

    Keep well,

    DD

  • Posted

    Hi Lizzie Ellen.

    What great news!

    Yes, we all need to hear the good times as well as the bad, and it gives us who are not having such a good time at the moment the determination to try and beat this thing!

    Here's hoping that you continue to improve and get your life back.

    Keep us posted!

    gilly.

  • Posted

    You really are all so lovely :hug:

    Lizzie xx

  • Posted

    Hi Lizzie Ellen

    So glad you pressed \"Submit\" - only one thing missing from your post though............where were all your beloved emoticons? :star: (just 'cos I don't think you've used that one before!!!)

    Lots of love and look forward to your BIG news when you get to the end of that tunnel!

    MrsO

  • Posted

    Hi Lizzie Ellen,

    Of course it does not come across as boasting...we are all delighted for you. :D

    It is great to read about people who are doing well, even when you are having a blip yourself, it shows that there is an end to this.....so you enjoy every minute of your renewed life....it is what we all deserve :wink:

    very best wishes, Pauline.

  • Posted

    Emoticons :?: :lol: Well spotted Mrs O :shock: After much thought and deliberation I became the proud owner of an iPhone on Sunday. Do I need one, of course I don't! Did I want one? You bet. And why? Because my daughter has an iPhone and had just downloaded 5,000 emoticons :yikes: Madness I know, but its a fine little gadget that's keeping my brain alive, my imagination sharp and my Grandchildren chuffed to bits that Nannie is so 'cutting edge' as my 14 year old told me yesterday. Moi? Cutting edge, well that's a new one.

    :vampire: (for Granny Moss's blood tests) :racket: (come on Murray) :ski: (for Eileen and her family skiing) and :rainbow: (because I've never seen anyone use it yet). There we go, emoticon fever over.

    Lizzie Ellen

    (dropping to 3.5mgs for the first time tomorrow :nahnahsmile

  • Posted

    Lizzie Ellen/\"cutting edge Nanny\" - :wow: an iPhone with 5,000 emoticons.....you'll have a field day! As for :nahnah: however are we going to cope with you when you're on 1?! :nahnah:

    MrsO

    (Bestest of luck going down to 3.5! :ok: )

  • Posted

    Hi Young ones smile This morning I have waken up with pains under control....and started a few thoughts about how this PMR has changed my life. 8) I have realised that I am developing a strong desire to take on causes....and make things happen smile For several weeks now, on the corner of the road, there started a leek on the ground near the kerk, and when going to catch the bus, one had to step out into the road to miss the water puddle. Anglia water were informed, Nothing was happening. So, the water began to find more and more outlets from under the ground, and it began to run like a small rivelet along the road, forming a small lake ? at the bus stop !. I said to my husband : Enough is enough...) So, I picked up the phone and rung the local newspaper, and said:Do you want some thing to do ? Get out into the street and down to the corner of X road. You will find that A W are waisting gallons of the stuff, that we are supposed to try and save. All the talk about ecology and save the planet amounts to nothing but hot air. This Company have been informed and do nothing. They make millions of pounds of profits from us customers, install expensive meters, and then sit on their B....sides. Go, take a photo, and write a good article to shame them !...And about halph an hour later the Young reporter and a photographer were on the spot. The article was in the paper that evening...and the next mornin g...the workers were digging up the road and the repair was done !... The other day, we were queueing at the Bank, waiting at the counters service. A large board was asking the customers for their opinion of the service provided. And please, we like to know etc. etc. So, for weeks now, the lighted screen that told us when a position was free, was out, and so were the lighted Nos on each position. The queue was getting longer, and only two girls to attend to customers. I saw a young man and woman chatting to each other, at the welcome spot, so I went over and said : Excuse me, Has the Bank, with the millions of profits it makes from customers, not enough money to pay the electricity bills ?...and with all the unemployment, cannot they afford to employ a couple of people to shorten the queue at the counters ?....No need to say that a young girl came to help out....So, if PMR stops me from doing my hobbies etc, I have discovered that there are other outlets. to enjoy the fun.....! :evil:

    :D :wink: Love to all...Granny Moss, on the warpath...! !.... :P

  • Posted

    Well done Granny Moss. No wonder you feel better!. Nothing like a good rant. I bet that boosted the adrenaline a treat.

    Joking apart, though; I, too have been feeling better since being in sole charge ( due to other resident's shingles. ) I'm not letting on, though as I don't want to be early tea-maker permanently.

    Off to the market for fish and fruit. Best wishes to all for the best [ossible day. BettyE

  • Posted

    Lizzie Ellen I loved your upbeat post and just what I needed this morning.... encouragement from someone who has been where I am at the moment...... having come through it and moving on and doing 'things' :!:

    Granny Moss you sound like a 'girl' after my own heart smile I too take up 'causes' and have just taken on M&S ( long story) which has made me feel a whole lot better :lol: :lol:

    Go girls :!: Just found all those fantastic emoticons........ go with the phone :lol:

  • Posted

    Hello Granny Moss

    I am the same !! I personally am a person who praises and complains !!

    I always say when I get good service and write phone etc but I also complain !!

    If there are long queues anywhere I always ask if there is another cashier available or another till open !!

    Our local courts and police headquarters werent cutting their hedges back no one could park and everyone was destroying the verges as a lot of people take a short cut past it ( we live in the New Forest and we wish to preserve it !!) They did it once when I wrote but not again so I wrote to the parish council so they sorted it out within days !! I have taken up the phone and pen many times over my husbands brother ( who has learning difficulties ) The Social Services ,Drs ,and local council have been very poor I did manage to get the Local council to change their guidelines and rewrite a brochure completely once Through dealing with his affairs I realise you are better off with a physical disability than a learning one and on occaisions i have been glad he hasnt been able to understand what has gone on in interviews and as for some letters he has received !!!!

    So even if we arent physically as fit as we are we can still change things !!

    Well done hope you have a good day

    Best wishes

    Mrs G

  • Posted

    Hello Granny Moss

    I'm so glad you're feeling good today both physically and emotionally - must be letting off all that steam!

    I'm like Mrs G, I both complain and praise:

    I suppose we should expect a good service from everyone who is doing their job well, but sadly that is not always the case. However, I had such excellent service and help from a customer in Bentalls a couple of years ago so I noted his name and wrote to the store manager. I had a reply saying the member of staff had been informed and duly praised! I felt a warm glow myself in knowing that this gentleman may be feeling justifiably proud of himself!

    Like you, Granny Moss, our road was getting so flooded in heavy rains that we could not get out of the car if we wanted to leave it on the road at times unless we were wearing wellingtons! It's no exaggeration to say that we could have rowed a boat along it. So after getting thoroughly fed up I took a photo of one flood and sent it to the local Council - the drains were cleared immediately and I had a call back asking me to let them know if there were any further problems......there were, and they now keep the drains cleared more regularly!

    When the crack in the road outside our house became so wide that any heavy vehicles were causing the feel of a mini earthquake when in my bed in the early morning, I again took a photo and sent it to the Council - they immediately came along and repaired the crack! Only downside was that I didn't actually mention all the other cracks along our road, so neighbours have been asking how the Council just came along and did the one outside our house!!!! I told them all it took was a letter but it seems that whilst some people complain among each other they are averse to complaining to those concerned - do I now complain for all of them and thereby get a bad name with the Council, I wonder?!!!

    Hope you (and everyone else looking) in have lots more good days, Granny Moss.

    MrsO

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