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Think I am having panic attacks

Posted , 4 users are following.

Debbie1203
Debbie1203

I had a rigid cystoscopy done in the office with no numbing gel or anesthesia of any kind.  I thought the doctor was shoving razor blades into me.  Before the scope I was told that it would be around a 2 in the pain scale, some slight stinging and really no different from a catheter.  I was in so much pain I could not even tell him to stop.  The pain was so bad that I was gripping the table, I know I was lifted up off the table and all a really remember was that he said something about being narrow and the nurse telling me to relax.  My PC is so angry she called him barbaric and wants me to go for a second opinion, as she feels that he is an idiot.  Well I have an appointment on Monday and I am scared to death.  I know I shouldn't be, but I almost feel like I have PTSD.  Help

0 likes, 37 replies

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  • crawford96748
    crawford96748 Debbie1203

    Posted

    Debbie, I am a male and had what sounds like similar experience 15 years ago. Even with the numbing gel the procedure was so painful I made them stop.  I never went back to the uro. Traumatic for me.  I lived with fighting off UTI's for many years.    Fast forward to this year.....and new urologist....uro wanted to do the procedure and I said I would NOT agree unless I could get health provider to approve general anesthesia ( which they did).  Although I was nervous about everything in general, the outpatient procedure went well.  You might want to consider this approach ( and maybe change uro's).  I still had considerable anxiety about trying this again..... fortunately the outpatient approach allowed me to get through it.

  • kenneth1955
    kenneth1955 Debbie1203

    Posted

    Debbie I feel so sorry for you.  That is right go to a different doctor.  I had a rigid cystoscopy did n the hospital  I was out.  That is the way it should be.  I do have regular ones done but it not bad after they put in the jil  I hope all goes well with the next one  Ken
  • davidjk22
    davidjk22 Debbie1203

    Posted

    I had a rigid cystoscopy , but it was with a general anaesthetic , I didn't think it was done without . If you need another , insist on anaesthetic . Are you in the US ?. If you are paying for treatment , you are the customer , and the customer is always right .  

     

    • kenneth1955
      kenneth1955 davidjk22

      Posted

      David  I don't know were she found this doctor no anaesthetic.  I just looked it up again.  It is done with a general or spinal.  I hope here other doctor is better then the last one.  Thanks David and good luck Debbie  Ken  

    • davidjk22
      davidjk22 kenneth1955

      Posted

      I would not fancy it without anaesthetic , can't imagine how painful that would be . I asked for a spinal but was told a spinal takes too long to wear off after , and the cystoscopy is a very short procedure . I went as a day case but because it took much longer than usual because of strictures in the urethra I had a dilation I was in hospital overnight . I had a catheter for two weeks while it healed . Everything was fine after , and my quality of life is greatly improved . No more going to the toilet many times a night , no straining to urinate and not having to worry about having a drink if we are shopping etc . 

      ?Fortunately I think more people have good results than bad . 

    • Debbie1203
      Debbie1203 davidjk22

      Posted

      Yes, I am in the US and when I spoke with the Medical Board yesterday they encouraged me to file a formal compliant against the doctor, which I will be doing.  My appointment on Monday is with a different doctor but I am so worried that they are going to what to repeat the test.  I did get a chance to review my medical records and the out right lies in the records are hard to believe.   The procedure was so traumatic  for me that I find myself not able to work or sleep.  From start to finish it could not have been more then 30 seconds, maybe a minute at the most.  I have had two babies naturally and broken my ankle so badly it was connected to my foot with just skin and both or those were a walk in the park compared to what this man did to me.  
    • kenneth1955
      kenneth1955 Debbie1203

      Posted

      I am glad that you got a hold of the medical board.  What he did to you was not right.  Your other doctor may want to do it again but he will do it right and you will not have any pain.  Good luck  Ken
    • davidjk22
      davidjk22 Debbie1203

      Posted

      Any doctor who would preform this procedure on a patient without anaesthetic should be forced to have it done to him . If they repeat the test it should be with an anaesthetic and should be painless . You may feel some discomfort after , especially when using the toilet but a couple of mild pain killers should ease that . I was worried before mine but after I realised there was no reason to worry , and it has changed my life for the better . If I needed to do it again I would no problem .
    • kenneth1955
      kenneth1955 davidjk22

      Posted

      Most of the time it only takes 30 minutes.  I had mine done last week in the hospital  Had 7 very painful catheterezation stopped peeing 32 hours the first time 17 the next time.  My doctor said all was fine the inside of the bladder looked good the clips on the prostate was wide open and the stricture was good.  Went home on Friday was back in the hospital on Saturday.   Had a bladder and kidney infection came home yesterday.  Hope I stay home.  Take care and good health to all Ken    
    • Debbie1203
      Debbie1203 kenneth1955

      Posted

      Really wish I could put this test off for weeks/months but since I have had unexplained blood in my urine for the last 3 months I have no real choice.  Thanks guys, I am just so scared and the worst part about it I told the nurse that I was scared and she reassured me that it was a no big deal and no different then a catheter being inserted.  My daughter, whom is a doctor is going to the new doctor with me and she will make it clear that I will not have any procedures with out being well medicated.  She is livid as you can well believe and the medical board told me he violated the standard of care which is against the law.  This is a board certified uro with no complaints against him, I check before I made the first appointment.   
    • kenneth1955
      kenneth1955 Debbie1203

      Posted

      You need to fellowing through with it.  Good for your daughter let her go with you.  Good luck and let us know what happens  God Bless  Ken
    • davidjk22
      davidjk22 Debbie1203

      Posted

        If you have any doubts or worries , take a gun with you . lollol .
  • Debbie1203
    Debbie1203

    Posted

    My husband is feeling a great deal of guilt over not going with me, but everything I read and they gave me indicated a flexible scope not a rigid one.  The way I figured out it was a rigid, thought I was just was a wimp, was the medical records I got yesterday and then I looked at photos , it was a ridge scope without a doubt
    • kenneth1955
      kenneth1955 Debbie1203

      Posted

      Yes the flexible scope is much easier.  They only use a jel.  Had them in the office to check my stricture.  There a little uncomfortable but not painful.  Good luck  Ken 
    • davidjk22
      davidjk22 kenneth1955

      Posted

      I've had both , flexible with the gel , no problem . Rigid with general fixed my problem . I can't imagine anyone having a rigid without any anaesthetic . Must be worse than having root canal dentistry without . 

    • kenneth1955
      kenneth1955 davidjk22

      Posted

      Yes that ridge scope is big and hard metal I can just imagine that going through you know where.  That doctor was wrong..  Ken      
    • Debbie1203
      Debbie1203 davidjk22

      Posted

      I feel like a rape victim, I am blaming myself, I now better, I am highly educated, informed, top in my field, I did everything I was suppose to, asked questioned, checked his medical records, damn my daughter is a doctor.  which is why I am having the panic attacks I think.  I even asked the nurse but never asked the one question, ridge or flexiable
    • davidjk22
      davidjk22 Debbie1203

      Posted

      I can't imagine why a doctor would do a rigid cystoscopy with any anaesthesia , even a flexible should be given with local anaesthesia . If there is even the slightest obstruction or narrowing of the urethra it will be very painful . Don't blame yourself , we put our trust in professionals . Unfortunately some professionals are less professional than others . I'm sure your next procedure will be fine , please don't worry that only makes it worse . Over two years since mine and it changed my life for the better .

    • kenneth1955
      kenneth1955 davidjk22

      Posted

      David & Debbie.  I sent a e-mail to my urologist earlier.  I asked him about a Ridge Cystoscopy.  He said that he will never do it in his office or without anaesthesia because he said that he knows it can be painful for the patient.  He also said that it should be done in the hospital or a surgery center.  I did not tell him why I wanted to know. Ken  

    • davidjk22
      davidjk22 kenneth1955

      Posted

      I think "can be painful for the patient" is an understatement . I agree it should only be done in a hospital , or specialist clinic . Patients should always be treated with respect and consideration . Some complain about the NHS in the UK , but I have only ever had the best possible treatment . The same for my wife and other family members , including my parents , my children and grandchildren .  

    • kenneth1955
      kenneth1955 davidjk22

      Posted

      David  I get were he is coming from by saying it the way he did.  You can't expect him to say it gong to be murder that way we put you to sleep.  He shows his concerns to all his patients.  With me in the hospital last week  I email him every day and he was in contact with me.  It did help that his office is next to the hospital.  If he did not come and see me I had his partner a couple of time and the doctor in the hospital that he works with and they always told him what was going on. That is the way a doctor should treat his patients.  I have had him for 3 years and he has always been there for me. Ken  

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