Thyroid nodule on scan?
Posted , 9 users are following.
I had a neck ultrasound on a Monday to check a lumpy thing like a boil on the back of neck. It had been there for years and never changed and was assumed a lymph node but got infected and swelled and I had neck swelling too.
I had the scan on the Monday afternoon and was told there were no lymph nodes, my lump was most likely a sebaceous cyst and my salivary glands were ok. (I had had stones there previius).
I thought it strange that she said my scan would be back with my gp in a day or two and the following day it was back with my gp.
I then received a letter on the Wednesday to make a non urgent appointment to see her and was given on just over a week later.
I went on Saturday and was told I had a thyroid nodule and they needed to do a fine needle aspiration biopsy. I had no idea tbh. I had neck pain previous assumed arthritis and swelling and my face often swells. I do feel really cold always and I suffer extreme anxiety and other symptoms but never related them to a thyroid problem.
When I read about thyroid nodules and thyroid disorders I would assume my symptoms would relate more to an underactive thyroid, not overactive.
Reading on there is something about hot nodules and cold nodules.I have no idea what mine is yet.
Does the biopsy hurt and do they numb it? How long does it take for the results or are they instant?
Thanks to anyone that can answer. My husband asked if it's possible it could be cancer and she said yes it could be unlikely. I really don't want the thyroid out.
Thanks
0 likes, 180 replies
jennifer66492 karenskip
Posted
karenskip jennifer66492
Posted
And this is how it always goes!,,,,
I posted a long post that is being moderated for some reason and really it is off topic and I hope they delete. If it does get posted then I apologise for it and actually regret posting it. I'm getting my therapy soon. I need to move on and accept everything but it's a difficult time as I'm sure yours is too.
karenskip
Posted
And I don't want my husband to be with me through pity. I am strong but having all these scares each one has taken its toll and I wouldn't want someone to be with me because they don't think I'm strong enough to be alone. I've been murder over the years. And I have going through my mind that it would make him look bad if he left me now going through this but on the other hand if it is anything serious I'll never completely know will I. It's important to me to know if he's here because he wants to be with me because he loves me. I should know by now shouldn't I but so much has changed me.
If I have cancer would he be here because of that. I don't want to be pitied or someone with me through guilt. It's not fair on either of us is it. I know all too well. It's so hard. Let's hope I hear this week. Hope you get news today.
karenskip
Posted
Hope it went well yesterday.
jennifer66492 karenskip
Posted
Good morning Karen, it went great. The doctor was running behind due to an emergency he had earlier and instead of seeing me at 1:15 I saw him at 3:50 that was a long wait where my nerves werent helping. My husband ended up going, he didnt take no as an answer and honestly even if I am mad at him I wouldnt have wanted anyone else in there but him. Anyway they found 2 nodules on my right side and one on my left side but they are so small that they cant do a biopsy so the doctor wants me to repeat it in 6 months to see if they have grown. He mentioned that thyroid cancer is really really uncommon and that no one wants to have cancer but if we could pick which cancer to get would be that one, is one of the least deadliest and it doesnt spread like the others do...he commented that nodules or cysts are very common to not let it bother me...he says he is 99% the nodules are benign. The ultrasound I had on my chest (near my left clavicle area) came back clear...they couldnt find anything which is really good but he left me thinking...he asked me are you sure you told the tech where to look? Of course I did, but I dont know or remember if she looked where I pointed to her to...I was shaking like a lea, all I kept thinking during the ultrasound OMG she is going to confirm that is a swollen lymph node and that the structure is odd I was so sure I had lymphoma. Since the ultrasound came back ok, he cant order a CT scan because my insurance wont pay, he mentioned that if in 6 months it still bothers me to come back and this time to say that it's painful so he can send me for another ultrasound....he knows I suffer from health anxiety so he tries to work with me.
How are you holding up?
karenskip jennifer66492
Posted
Hi jenny.
So you have 3 small nodules. I take it they are really small and obviously they look benign on the scan because they have a guide to follow, even though we are in the UK both American and the UK follow it, and if they looked suspicious they would biopsy.
I know nodules are very common in everybody but with mine it graded as one whereby it needs a biopsy which I had and then I had another and both cannot tell. Mine isn't cystic at all. It's solid and has a blood flow and is over the thresholds in size. The next step as per the guidelines is take half out to be sure.
I still haven't heard anything again. I don't know what they will suggest to be honest. My consultantv would have got me in for surgery but it was me that said I didn't want to know and thought there must be another way. I asked for the core so maybe they will do that or even send it back to the mdt team for all them to agree something.
I've rang a few times but each time get told he's got my file and they aren't medically trained.
My head is better a bit. I've been out with my daughter for a little while. I assume it's just anxiety and depression and stress. I know my husband wants to be there for me and assures me its because he loves me. I've allowed others that have said negative things to cloud my judgement. He's always here for me and me for him. I should just listen to him. He's a good man but I don't want to be this burden to him or anyone. We've had our bad times but we are still together.
Just have to hope tomorrow brings some news ey. And glad you got yours sorted and they are keeping an eye on you,
Take care
jennifer66492 karenskip
Posted
Thank you I am HAPPY as well...I left the doctors office and went shopping, my hubby got me a pair of earrings...I was so relieved that I didnt let my family issues get in the way of me celebrating being healthy (mentally healthy, it felt good not being worried about me dying). I know what to wish from now on every birthday and is going to be good health....everything else we can pretty much work for but we really have little to no saying in our health. Yeah sure we can eat right and exercise but if you are meant to have cancer you will, cancer doesnt discriminate.
I am glad you had a good time with your daughter, my little girl is only 11 months, I cant wait until she is older and we can bond like I do with my mom. My oldest is 9 but the only thing he cares about is his video games lol there will be no bonding there.
Also don't let your mind dictate your future, your husband wants to be there for you for better or for worse dont take that away from you. I am sure he is there because he cares and not because he pity you.
I love Amazon <3 going to get me a new top for my new earrings, I am turning 31 this coming Monday and I want to look and feel amazing.
P.S Let me know if you hear anything back from your doctor, I hope you do get answers soon.
karenskip jennifer66492
Posted
Hi jenny. Glad you are truly happy. And good luck to your future too. It's the best years of your life raising kids. Mine are older and exploring their own life now.
I will be less anxious if I get good news too. But as I said earlier my cancer scare is not my reason for my anxiety and depression. Naturally it doesn't help and I do want to try to get happy if that's possible.
I had some bad traumas in my life and being busy with my kids and husband and doing our house up has kept them hidden but I don't go out. In fact I would say my heads too messed up at the moment to interact with anyone at all, hence I need the therapy to let it all out. The cancer scare is just another worry lol but im sure it will be over soon enough.
Depression is a killer too. Especially when you have no one to talk to and that's how I feel most of the time and I know that I have been very vulnerable in the past. I don't want to be vulnerable again but I do want to live life again. I really do.
You need to go away now and concentrate on your little ones. I wish you well in your future.
karenskip
Posted
I've had a letter. It's basically what I already know. It's that there is no change so they will do another scan in 6 month's.
Wow from going from a nodule being found, the multidisciplinary team saying I need an urgent appointment, my biopsy coming back as not able to tell either way, my second biopsy came back not able to tell either way. My third scan showing no change and then to having another in 6 month's and being discharged maybe? It does say maybe as well. So put through it all for nothing because nothing has changed. If I was needed to be seen urgent before because of my scan results and them all believing it may be a cancer and then now they suddenly believe it's not but nothing has changed.
I can't get my head around our nhs and these two week wait things. Do they know what they do to people. Really know. Families.
I suppose I'll just have to wait another 6 month's. Well it should be March then if it's 6 month's since the last one. I know they are really slow growing from what I read and reading on the other sites of people who had it. Now on to the mental therapy.
karenskip
Posted
6 months isn't long. It's nearly christmas lol. I wanted to speak to him though really to ask him this. My nodule is a U3 classification remember.
It's a study done at a hospital in Birmingham I think. It's says
RESULTS FROM THE STUDDY.
a total of 352 cases were included in this study. 141 (40%) USS guided aspirations in total were non diagnostic (like mine) .
A total of 133 (38%) cases underwent thyroid surgery to confirm the histology.
33 USS reports were demed benign being a U2. 2 (6%) later proved malignant on histology.
235 USS were reported indeterminate U3 (like mine) . 34 out of 84 (40%) were then confirmed malignant.
This study was done between 2014 to 2016.
It seems that the 20% likely hood is different to what the study says. I just wanted to ask him.
Is it 40% risk or 20% as he told me. It's double that according to the study. It's a bit scary but he must know what he's doing and would have encouraged me more towards the surgery if he believed it to be anything sinister at all.
Had he have said 40% in the beginning i may have thought again. I know the nhs doesn't have money to waste. I don't even work either at the moment. I don't want my stupid anxiety and depression to waste money doing something just because I'm a little anxious. I'm always anxious. I was also once told by someone after my last operation I had a few years ago that was angry at them for not operating on her husband that she thought would have saved him and unfortunately died.
She made a comment that "they operate and those that don't work though". I am one of those that doesn't work. I felt awful but I have a husband and kids and they needed me.
My own gp said to me that two non diagnostic results lessens the chance and I must admit I thought the same but we both have it wrong. It's a solid nodule and that makes a difference apparently and guides say it should come out.
Like I say I have little trust.
karenskip
Posted
You see my family (well not exactly my family here if you know what I mean but outside family) is such a mess and I have been blamed for so much it's unbelievable. I've been blamed for everything and I then started blaming myself too. I wanted to put it all right together but realise it can't be because I'm the one that doesn't want to now. I don't want my husband and his family split up because he sided with me but then again I really can't be their scapegoat anymore either. Maybe sometimes you have to take sides.
I'm angry, sad, scared, every emotion going. I don't go out at all now . I learnt how cold people can be even my own flesh and blood. I can't change them. I can change me though.
I want to fight if I have to and I don't want to leave this to be but I don't want to mess anyone else's life up either because I'm damaged. Lots blame my damage on me also but I feel some things were not my fault. I'm not suicidal though. I would NEVER take my own life. Im Just confused and feel a bit worthless so my therapy should help me make my decision. It won't harm being left a few months longer.
I want to be here for the family I have here. I love them so much more than they could ever know.
karenskip
Posted
You need to be mentally strong to deal with something like this and what could be and I'm not at the moment. I'm not to blame for everything. I want to be strong because if you're meeting health issues like this you have to be. It's not quite over yet. I was stressed last time before my surgery. IF I have to have more I don't want the same thing happening.
jennifer66492 karenskip
Posted
HI Karen, well it may not be the news you were expecting but at least they think now that your nodules arent cancerous like they did at the beginning. 6 months is nothing to some people but for me thats a really long time worrying. Hey just because you arent working doesnt mean your life is less valuable then someone who does. The person that made that comment is an ass, sorry but that's how I feel. EVeryone deserves to be treated.
I suffer health anxiety so unfortunately I am just going to move on to something else now. I wasnt like this before, it all started when I thought I had pancreatic cancer because I had all the symptoms and it was just my gallbladder. I spent months crying because I thought I was dying until my mom had enough lol and dragged me to the ER and had a cholecystectomy, I went back to work in a week and I thought it was all behind me, little did I know it was just the beginning of this awful disease. It SUCKS!!! thinking every little twitch, pain etc is cancer related. I am so in tune with my body that I can almost feel my blood rush thru my veins, yeah its that bad. If it werent because of this I would be the most happy woman on earth because I literally have everything I need to be happy with but I am always thinking about dying. Maybe I should take pills and see how it makes me feel, my doctor did prescribe B12 vitamins he said they are good for depression and it should give me energy, good because with a full time job, two kids, a husband and a house to look after I sure do need all the energy I can get.
karenskip jennifer66492
Posted
Hi jenny
I don't think it's that they think they are not cancerous. Nothing has changed and they thought they may be cancerous in the beginning so there must still be that possibility. Like I say they have done two non diagnostic biopsies. There is still the chance but I do know they have you in quick if the biopsy shows signs too and then it's all go from there and my mental health has to be good because I have hypertension too.
I had surgery before and was extremely stressed beforehand and I came out with stress related ramsay hunt. I was on 30 tablets a day. It was so painful. I was told my paralysis could be permanent too. It's better though thankfully because you can't hide your face.
I'll just wait now. Like they say, it's slow growing anyway.
karenskip
Posted
karenskip
Posted
karenskip
Posted
I don't worry needlessly about my health. Every time I go the doctors I do have something that is nto somatic. My mental health is something else.