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TIA and Chiari?

Posted , 10 users are following.

hayleybell
hayleybell

I was just wondering if anyone else with Chiari has had a TIA or any problems with speech where you find it hard to remember words?

 I ended up pushing for & finding my own Chiari specialist after experiencing some "funny turns" 2 years ago. I was told it was stress & migraine. I have now been reffered to a vascular neurologist as I still have trouble finding words on occasion. 

I was told the slurred speech was probably pressure on my brain stem. Since my decompression surgery this has gone, which is great, but now I have a  referral  as it is now thought the word finding ( experienced on occasion) is not my Chiari, which I think is right, but just wondered if anyone else has experienced this?

Thanks in anticipation......

0 likes, 43 replies

43 Replies

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  • Linleel
    Linleel hayleybell

    Posted

    It's due to the Chiari. I have it too- I'll be talking and I'll start stumbling over words. Takes me three tries to say the right word. 
    • hayleybell
      hayleybell Linleel

      Posted

      Thank you for your response......

      My trouble is sometimes I can't find the right word at all. People say it is on the tip of your tongue, but for me, it is not even close to the tip of my tongue. I have to describe what it is and hope someone will help me find the word. A bit like playing charades!

      some days I am fine, some days I find I have difficulty with words constantly.

    • Linleel
      Linleel hayleybell

      Posted

      It's due to brain damage from your cerebellum getting squished or from it pressing on the brain scan. Don't let doctors say it's not. They like to blame Chiari symptoms on all sorts of other disorders. 
    • Linleel
      Linleel hayleybell

      Posted

      Aphasia:  trouble finding the right words to use when speaking. Stroke patients have this alot. Conquer chiari .  org has some good info and links. 
    • hayleybell
      hayleybell Linleel

      Posted

      Thank you Linleel, conquer Chiari is a great site, as is The Ann Conroy trust.....did you ever experience this or have had a Tia?
    • Linleel
      Linleel hayleybell

      Posted

      Tia: Transcient Ischemic Attack? Nope. I've had aphasia- trouble saying what I want to say. Also have trouble walking sometimes. 
    • tammie44301
      tammie44301 Linleel

      Posted

      I'm so glad I joined this group, I thought I was getting dementia. I hate having this problem. I feel people think I'm on drugs.
    • Linleel
      Linleel tammie44301

      Posted

      It's great isn't it? (NOT) I went to a ball game and was really shaky walking to the bathroom- Cop wanted to know if I was alright- like am I drunk? Sadly, NO. Can't drink anymore. Had to be freaking escorted to the bathroom. Which I would have made it eventually.  "Drunk-Walking."
  • Hope255
    Hope255 hayleybell

    Posted

    Hi heleybell,

    After 7 years, I'm also experiencing the same problem as u plus memory lose. This is after decompression I was referred to speach therapy but still having problems. Does it happen that you are having a conversation and you forget the next word or what you were gong to say?

    • Linleel
      Linleel Hope255

      Posted

      Probably due to brain damage. When your brain gets squished or pressed on, you can expect some damage. It's logical. 
  • Hope255
    Hope255 hayleybell

    Posted

    Hi heleybell,

    After 7 years, I'm also experiencing the same problem as u plus memory lose. This is after decompression I was referred to speach therapy but still having problems. Does it happen that you are having a conversation and you forget the next word or what you were gong to say?

    • hayleybell
      hayleybell Hope255

      Posted

      Thank you Hope255.....I do forget what I am talking about & my memory worries me more now than ever, but good & bad days.....it is finding the word that annoys me the most.

      For example, I want to say "television" but cannot remember the word whilst talking, so I say "the thing you watch? " I get very frustrated! I am a mum of 3 and only 37 years old.....

       Did you have speech problems and/or a TIA before your decompression op?

    • Hope255
      Hope255 hayleybell

      Posted

      Never had any problems with my speach, writing, reading nor thinking, used to be an officer of the state courts. Now I can't even finish a sentence. Usually, when I can't remember what I am going to say, I usually say 'I'm having a brain fart', and people laugh this will give me some relief from stressing out.
  • jon98439
    jon98439 hayleybell

    Posted

    I am glad other people have commented on this because I thought it was just human error.

    I had chairi type 2 7 years ago and the last few I can't string sentences in my head and I lose my words. I believe in scizopherina terms they call it a word salad. Really fustrating as someone will ask me a question or I need ask a person a question and it comes out wrong. Even though know in my head what I want to say. So put it down to chairi but never had it confirmed.

    I also mumble and have slurred speech. I had it before chairi diagnosis but it's slightly worse now.

    Glad I have seen this though as I thought it was me. And nothing to do with chairi.

    I have found though its rewording things in your head before before you say them I.e I want to say I am going to take the dog for a walk but change it to "am taking dog for a walk". Using slang helps alot and it gets the message across. smile

    Jon

    • tammie44301
      tammie44301 jon98439

      Posted

      I can't believe this, my surgery was 11/2015. I start talking and say, I left my pace in the car. I meant to say purse. But it comes out pace ( example)
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