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TIA and Chiari?

Posted , 10 users are following.

hayleybell
hayleybell

I was just wondering if anyone else with Chiari has had a TIA or any problems with speech where you find it hard to remember words?

 I ended up pushing for & finding my own Chiari specialist after experiencing some "funny turns" 2 years ago. I was told it was stress & migraine. I have now been reffered to a vascular neurologist as I still have trouble finding words on occasion. 

I was told the slurred speech was probably pressure on my brain stem. Since my decompression surgery this has gone, which is great, but now I have a  referral  as it is now thought the word finding ( experienced on occasion) is not my Chiari, which I think is right, but just wondered if anyone else has experienced this?

Thanks in anticipation......

0 likes, 43 replies

43 Replies

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  • jon98439
    jon98439 hayleybell

    Posted

    Also I have had it when I forget what I am going to say and memory goes. Tgars why I hardly argue or disagree with people when needed as I forget what my point is all the time.

    It's hard that is because it could be human error and it could be due to chairi. For me anyway. Again not confirmed though. All I know is head hurts and has a fuzzy feeling when I can't speak properly to get my point across.

    Jon

    • hayleybell
      hayleybell jon98439

      Posted

      Jon thank you for sharing your experience with me. Mine all started after my so-called funny turn. I then went on to have 3 more in days. This was 2 years ago. I had the slurred speech which my NS said was pressure against my brain stem, but the word finding difficulty they think is vascular. 

      I have had my op, but yes, like you, I also at times forget what I want to say or what I am talking about & also muddle my words. It is a strange fuzzy feeling!

      I shall try more ' slang' -thank you

    • Linleel
      Linleel jon98439

      Posted

      My head feels like it's in a big balloon where everything is foggy and like I'm always drunk. I try to remember to write down my symptoms in a log so I can show it to my doctor. Last time I saw her she was really rude, so I never showed it to her!!!  But it's good to keep track. 
  • viola01
    viola01 hayleybell

    Posted

    I have a syrinx but have experienced the same thing on three occasions. At my last neurology appointment, my consultant referred me back to my GP back to my local hospital for further tests because he said it was not his responsibility. The GPS thought it could be potential TIA but the local hospital thought it was migraine even though I had no headache or experience like it before. Speech problems were similarely impaired and I was told to leave before I could walk and talk. Very odd. Am waiting to see what happens. Good luck!
    • Linleel
      Linleel viola01

      Posted

      Seems like alot of doctors don't want to take any responsibllity for anything. I've had referral from a Neurosurgeon to Neurologist and then I'm going to see another different Neurosurgeon. Whenever your brain (cerebellum) or brain stem gets compressed or squished, it cause brain damage potentially. I don't know why doctors won't admit it. It's basic anatomy. Try squishing a melon through a small tube and see what happens. It's very frustrating!!
    • hayleybell
      hayleybell viola01

      Posted

      Hi Viola, thanks for your response.

      when I had my funny turn, I had blurred vision, weakness and mild drooping of the right side of my face with tingling too. NO headache. Ringing in the ears, felt like something really bad was going on. I then tried speaking & all my words were slurred.( I was pre op at this time.) lasted less than 10 minutes, did you experience anything similar too?

      That same week I went on to struggle to swallow on several occasions, as if my brain could not send the signals to do it. I also started having jaw pain!

      This was what made me think my Chiari was to blame and not stress and migraine like the neurologist said! I went on to get my own refferal to a Chiari specialist, enough was enough!

      I went on to have occasional slurred speech for weeks after but since my op ( May last year) that has gone. I have found the word finding a real annoyance since my op. I see a vascular neurologist at the Walton centre next month.

       

    • Linleel
      Linleel hayleybell

      Posted

      I don't see how it can be vascular. Sounds like Chiari. Good luck!
    • hayleybell
      hayleybell viola01

      Posted

      I meant to ask you, sorry, have you had your op yet?
    • Linleel
      Linleel hayleybell

      Posted

      Nope- I'm seeing a different neurosurgeon to do a test on CSF. My neurologist doesn't think my symptoms are bad enough for surgery. Not going back to her!! Don't want to be stuck on pills forever (Pamelor for headaches). 
    • tammie44301
      tammie44301 viola01

      Posted

      I don't think they know, know one knows exactly how Chiari works. So they make it like we are dumb to the fact. I think you would know if it was a migraine. I feel a little better now knowing I'm not loosing my mind.
    • Linleel
      Linleel tammie44301

      Posted

      They would know if they bothered to look it up!! Doctors only do as much work learning as it takes to get their degree and then they don't make any effort. Doctors don't listen to patients!! You have to research it and look at forums and see what other people are experiencing!! Don't let anyone tell you that you are losing your mind (I had a opthalneurologist tell me that!) 
  • helen11122
    helen11122 hayleybell

    Posted

    I had terrible time after operation with speech they referred me to speech therapist. It came back after a wk, they said due to damage nerves.
    • hayleybell
      hayleybell helen11122

      Posted

      Ok, interesting, thanks for sharing that, glad it came back for you.
    • helen11122
      helen11122 hayleybell

      Posted

      Was frightened as thought had a stroke! Couldn't swallow anything, had to be very mushy. But still struggle trying to think of simple words as previously mentioned on here. Thought was just my age lol
    • Linleel
      Linleel helen11122

      Posted

      Some of the symptoms are the same as those for strokes. That's why it's hard to diagnose, although I think they can rule strokes out with MRI's and all. 
    • helen11122
      helen11122 Linleel

      Posted

      Yeah, don't think they were concerned as came back. Wished I had found this site when I was going through operation.
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