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Ticklish neck but no-one is tickling me

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leslie_1998
leslie_1998

I know this sounds like a crazy condition but I'm dying to know why it happens. I have found NO ONE who has this condition and absolutely no help online.

I'm extremely ticklish on my neck to where if someone tickles my neck or lightly touches it, or even if anything brushes up against it, I go into flail mode and practically punch the perpetrator. I know that is not totally abnormal. It's what happens afterwards that is.

Usually the same night as being tickled (but not every time) I will go to sleep fine but wake up in a ticklish fit every few minutes or even a few seconds. This continues all night or at least until I wake for an hour or two. It probably doesn't happen but every few months when someone or something tickles or touches my neck (or even if I dream it). Each fit (or whatever it is) lasts a fraction of a second but, like I said, it repeats over and over again all night. I have had this as long as I can remember and refer to it as "tickle neck". My mother has an extremely sensitive neck but has none of the night issues.

Background info:

I am a 41 year old female in good health. I have no mental health issues. I was diagnosed with epilepsy 12 years or so ago because of 2 grand mals within a year. I am on lamotrigine and have only possible auras every couple months since then. My neurologist looks at me like I'm crazy when I tell him the tickle neck problem and smiles a little condescendingly saying he does not think think it is related at all to my seizures. Besides, I have had these as long as I can remember, way before the grand mals. 

Is there a name for this condition? Why does no one seem to have this same problem? It is so debilitating and draining the nights I have it, that it often brings me to tears. Any way to cure it? 😓

Thank you!

Leslie Ann

3 likes, 66 replies

66 Replies

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  • caroline70988
    caroline70988 leslie_1998

    Posted

    Hmmm ok ,

    1)could be Alergic to some thing  

    2) change your detergents 3)shampoo maybe

    4) could you have lice?check for that 5) could you be allergic to what’s in your pillow ?

    6 ) could be allergic to some thing in ur food do a test with your doctor for allergies.

    7 could be some thing to do with your nervious system .8 Do you were wool or pillows feathers or fiber in couch bed any thing ?But those few things and maybe go to your dr get allergy tested .

  • fatima_khan40
    fatima_khan40 leslie_1998

    Edited

    Omg I have the same problem ! Finally I get to see someone going through the same issue ! I don’t  kno why my neck is so sensitive and so ticklish I can’t sleep it feels like some one is tickling me non stop I am ticklish if u swallow my saliva down ! I don’t know know how to make it better once it stars tickling sad do u know how to get over it ?  I don’t have epilepsy ! I don’t have any psychological problem but then what is this ? I need help 
    • caroline70988
      caroline70988 fatima_khan40

      Posted

      Wow this I’ve never heard of but maybe you guys should go to throat , nose ear specialist . Maybe you should talk to a doctors this strange . I mean I’ve had tickling in mythroat once blue moon my ears if there not clean now and again or in my nose I’d have to sneeze hmmm . 
    • leslie_1998
      leslie_1998 fatima_khan40

      Posted

      Oh my gosh!!!!! Same exact thing!! We need to start a tickle-neck club! Does yours happen at night and you can't sleep? Yes, even swallowing does it. How often does yours happen?

    • fatima_khan40
      fatima_khan40 leslie_1998

      Edited

      Yes ! It happens only in the night time ! That’s weird eh ? Omg nobody understands when I tell them what I go through ! It happened to me a night before ! It started at 12 am and I couldn’t sleep till 9:30 am I was up all night long as I was too ticklish and due to that wasn’t able to sleep ! It was an awful night ! It happens once in a while Leslie ! What about you ? I haven’t been to any doc though ! Did u consult any doctor ? What do they say ? 
    • fatima_khan40
      fatima_khan40 caroline70988

      Posted

      I don’t know I think it’s the strangest thing ! I don’t know if this has got to do with any any of those docs 
    • leslie_1998
      leslie_1998 fatima_khan40

      Posted

      Hey! So I had it again this morning. Luckily it started around 4:15 so I did get to sleep most of the night.

      I actually asked my neurologist about it and he just smiled (a little condescendingly) and said it had nothing to do with my seizures.

      Does anyone in your family have it? My mom actually does a little bit. Her neck is super sensitive but it doesn't happen over and over again. At least she kind of understands.

      Mine seems happen on a night when either something or someone brushes up against my neck the day before or even I dream my neck is tickled. It only stops when I've been up in the morning for awhile. When I try at night to get up and read or something it does not stop. What about you?

      My e-mail is if you want to keep in touch that way. 😊

      Have a great day!

      Moderator comment: I have removed the email address as we do not publish these in the forums. If users wish to exchange contact details please use the Private Message service.

    • caroline70988
      caroline70988 fatima_khan40

      Posted

      Well I think it does .Alergies due to some thing . Funny you two are the only ones that have it lol . And why would you not go to the doctors?  If you don’t go it won’t be treated right. All of us people on this forum go and get checked out by doctors and send us to specialist.And sending you to other doctors gives you knowledge on what’s going on with both of you. Notice by your names that you both are from same areas due to your names. May be you to should go make this tickling club😂😂😂😊

  • jacob_48586
    jacob_48586 leslie_1998

    Posted

    I get this but under my arm!!!! I’ve been up for hours it’s like someone is constantly tickeling me! I have no mental health problems I’m healthy young and fit!? I don’t know what is going on with me but it’s been effecting my work too it used to only be at night now it’s spread to the day and it’s torture. I think it’s something to do with the way you think. 
    • leslie_1998
      leslie_1998 jacob_48586

      Posted

      That's crazy!! Do you have any family members with anything like It? How long have you had it? Is it constant or does it happen sporadically?

    • jacob_48586
      jacob_48586 leslie_1998

      Posted

      My twin brother gets it too! He said it keeps him awake at night! I don’t think anyone else in my family gets it. I’ve had this since I was a child but I’ve never really talked about it because people will think I’m crazy! I went to the doctors today about it and he said it seems to be a physiological thing he’s not really sure but he thinks it’s related to anxiety or something. It happens spontaneously it’s not something that happens all the time but the more I think about it the worse it gets. So I have to try forget about it. 
  • tomato30802
    tomato30802 leslie_1998

    Edited

    I have the same problem and I've google it for 3 years (or more) but no one discuss about this so I thought im the odd one and its not an important issue to be discussed about :'( but I do feel disturbed. It happen in the afternoon sometimes but i always feel it before I sleep at night. The ticklish feeling isnt strong at the left side but it is very ticklish on my right side so I always sleep at the right side since the ticklish feeling gone when the neck being touched w/ sth but still it is not always comfortable to sleep at the right side so I will feel great of the ticklish gone forever. I want to know what is the reason of this and want to know how to remove the feeling.

    1)could be Alergic to some thing

    No, i dont have allergic

    2) change your detergents

    Done but still happen

    3)shampoo maybe

    I never stick to the samr shampoo so no

    4) could you have lice?check for that

    I dont have either

    5) could you be allergic to what’s in your pillow ?

    I've changed pillow 5x at least in 3 years so no

    6 ) could be allergic to some thing in ur food do a test with your doctor for allergies.

    No food allergies at all since I was born

    7 could be some thing to do with your nervious system .

    I always believed so, but I dont have the answer yet.

    8 Do you were wool or pillows feathers or fiber in couch bed any thing ?

    No all are synthetic.

    • caroline70988
      caroline70988 tomato30802

      Posted

      All these Question are the questions I’d ask what about bed bugs? Did you guys do blood work ? If not think you guys should be sent to nerology has to do with you nervous system  I think .🙄

    • monica53970
      monica53970 tomato30802

      Edited

      omg, I have the same problem but mine never happens in the afternoon only when i'm going to sleep at night. i dont feel anything on my left side but my right side is extremely ticklish and its unbearable and i'd have to sleep on my right side for the ticklish feeling to go away and only then can i fall asleep. In the morning and during the day my right side is no longer ticklish unless i'm tickled.

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