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Ticklish neck but no-one is tickling me

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leslie_1998
leslie_1998

I know this sounds like a crazy condition but I'm dying to know why it happens. I have found NO ONE who has this condition and absolutely no help online.

I'm extremely ticklish on my neck to where if someone tickles my neck or lightly touches it, or even if anything brushes up against it, I go into flail mode and practically punch the perpetrator. I know that is not totally abnormal. It's what happens afterwards that is.

Usually the same night as being tickled (but not every time) I will go to sleep fine but wake up in a ticklish fit every few minutes or even a few seconds. This continues all night or at least until I wake for an hour or two. It probably doesn't happen but every few months when someone or something tickles or touches my neck (or even if I dream it). Each fit (or whatever it is) lasts a fraction of a second but, like I said, it repeats over and over again all night. I have had this as long as I can remember and refer to it as "tickle neck". My mother has an extremely sensitive neck but has none of the night issues.

Background info:

I am a 41 year old female in good health. I have no mental health issues. I was diagnosed with epilepsy 12 years or so ago because of 2 grand mals within a year. I am on lamotrigine and have only possible auras every couple months since then. My neurologist looks at me like I'm crazy when I tell him the tickle neck problem and smiles a little condescendingly saying he does not think think it is related at all to my seizures. Besides, I have had these as long as I can remember, way before the grand mals. 

Is there a name for this condition? Why does no one seem to have this same problem? It is so debilitating and draining the nights I have it, that it often brings me to tears. Any way to cure it? 😓

Thank you!

Leslie Ann

3 likes, 66 replies

66 Replies

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  • hello01836
    hello01836 leslie_1998

    Edited

    hi, its 3:39am at the moment and i cant sleep because of it, ive had this tickling since i was very young and it never goes away, its usually at night but i used to get it all the time and i have to sleep on the tickle side and put my shoulder to my neck or cover it with my hand because i wont be able to sleep otherwise. did you ever figure out what this was? ive never mentioned it to anyone because i just thought it was something random or a bad habit but i was doing some googling earlier and seeing that tickle trauma is a thing🤷‍♀️ive always been confused about this and its really annoying tbh

  • tim54578
    tim54578 leslie_1998

    Posted

    Wow I can't hardly sleep at night my right side of neck when I lie down tickles so much make my whole head shake, I told several doctors all blood work done and he checked my collar bone all good, can't any doctor stop this and name the issue, they can do heart surgery but can't tell me what's wrong all this tinkling on my right neck only when I try to relax and lay down

  • tim54578
    tim54578 leslie_1998

    Posted

    Right side of neck ticklish all night every night my doctor and others can't figure out why they run lots of tests

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