tietze syndrome

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can anyone tell me if they suffer with this condition and does anyoe claim pip benefit for it .had this for 20 years and has got to the point where i had to give up hours at work only doing 2 days now always in pain get so tired  no energy . panic attacks dizziness pain in cack and shoulder feeling down.

 

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  • Posted

    Hi

    Yes I have all these symptoms I do have Tietze Syndrome and Fibromyalgia and yes I also claim pip but you do need to see a doctor x

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    • Posted

      hi debbie thankyou for your reply .i have applied for pip and sent forms off was meant to have m assesment on thursday but it got cancelled got to wait another 2 weeks .am worried i may not get it what is the assesment like with the health advisor advice would be appreciated .

      they say yo can take some one with you is it best to do this my husband does a lot for me should i take him with me for support thankyou

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    • Posted

      Yes by all means take him with you and when you do go for your assessment tell the assessment person your worse day like it's all the time and you can't go wrong. The person will ask all the questions. best of luck and try not to worry and you can ask me anything anytime
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    • Posted

      im so glad i come on here you know i felt lost with this condition for so long no one to talk too no one understands i feel useless at work i just had to giveanother day up because this condition has got worse since i had pnemonia 2 years ago im having a flare today feel so down and tearful i suffer with anziety attacks because i worry what they think of me at work thinking im putting it on, i work in a supermarket on the till and in so much pain when finish my shift . do they examing you at the assesment  thankyou for your advice how does tietze affect your life
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    • Posted

      Tietze and Fibromyalgia affects me everyday too I'm now not currently working because half the time I am asleep and in pain. When I went to see my Rheumatologist she advised I work part time doing admin work in an office which I would like to still apply for and I can imagine your work being exhausting but what has your doctor said have they confirmed that you have Tietze Syndrome?
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    • Posted

      Can anyone tell me their symptoms please, I have a dull ache on 2nd or 3rd rib and doing exercise can make it ache more, it is not pain more like a throb or ache thanks x
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    • Posted

      poor you must be awful having both medical problems.i was diagnosed 20 years ago with costochrondristis and last year i saw a specialist and she diagnosed tietze as i have swelling said it more severe than costo.

      yes i like my job i am doing 11 hours a week and that is enough now i still in pain  after shiftsbut dont want to give anymore hours up as i like going in to work seeing collegues and customers .felt bad giving another day up but i had no choice ant cope with it and the tiredness also get out of breath does it affect you this way,i get very emotional when i talk about as it upset me ,it worried i might get like this when go for assesment .

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    • Posted

      hi dee have you been diagnosed with tietze syndrome.

      yes you get a dull ache ,sharp pain feels like your having a heart attack at times.

      with this condition you cant exercise makes the pain so much worse

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    • Posted

      No one at the assessment will judge you if you only work 11 hours have you also applies for employment support allowance you can as long as you work under 16 hours. When you get to the assessment don't worry about breaking down its good to let it all out

      You could ask your doctor to send you to the pain clinic at your hospital I have been there and they a and help you with the pain and how to cope with the pain are you taking medication?

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    • Posted

      my husband works full time would i still be able to claim employment support allowance .

      i am making a appointment to see my doctor i will ask her about that thankyou i am taking naprozen when i have bad flairs and ibuphrophen sorry for my gramer not very good, what meds do you take .

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    • Posted

      not been diagnosed, mine is a ache rather than a pain, but had it for a long time, thaat rib of right seems to protrude more than the other side, had sharp stabby chest pain but not often, keep being told anxiety, i know its not x
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    • Posted

      PS if you are on Facebook then go to the site Tietze syndrome it's a good group to join and there are loads of people who are going thru the same
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    • Posted

      best to go to the doctor and get it diagnosed .mine started off with severe pain in chest and breast , you know if it anxiety or not if your calm and happy  relaxed and still getting chest pain then this is not anxiety go to doctors get  this ruled out.
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    • Posted

      really thankyou for that my husband is on facebook i use his account so will have a look
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    • Posted

      hi debbie how are you hope you are ok.

      i have had my pip assesment and recieved the letter yesterday from the dwa saying they received my forms  and sorry for delay and i will hear as son as they come to a discisssin. is this a standad letter they send to everyone .thankyou debbie

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