Posted , 7 users are following.
I have extremely painful tightening of joints in legs and arms. It is very
painful to loosen the joints. Once loosened it takes very little time before
they tighten again. My legs ache also from this. My hand tightens also
and I can only describe it like fingers made of metal which sounds stupid.
I haven't heard of this as classic sign of crps but I am sure it is.
Does anyone else experience this?
0 likes, 38 replies
We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.
brenda_savvy Monkaygirl
Posted
Monkaygirl brenda_savvy
Posted
Pulled back on exercises. This crps has a mind of its own!
Good luck
lissa82377 Monkaygirl
Posted
I've been living with RSD in my right foot up to my knee for over a year now after having bunyon surgery., it's extremely painfully and the burning sensation is the worse ., my foot is always feeling freezing cold at the touch but the inside feels like it's gona burn thrue the outside
Monkaygirl lissa82377
Posted
I feel for you. My feet get very cold until I get frostbite
type pains then eventually really hot but my bad burning
Phase is past I think. My hands also affectedI hope you aren't at this stage for much
Longer, if it works that way.
lissa82377 Monkaygirl
Posted
Thanks!., live one day at a time that's all we can do .,
Monkaygirl lissa82377
Posted
Worleywoo Monkaygirl
Posted
That is does. It's like a naughty child
steve0706 lissa82377
Posted
I was diagnosed with CRPS about 8 years ago...red/purplish coloration and mostly severe burning sensation and knife like feeling when weight bearing. Went through months of pain management, nerve blocks and was told there was no cure. Then ran across a natural (which I normally don't believe in) treatment to reset the autonomous nervous system between leg and brain...3 months of immobilization, elevation and sensitivity therapy with an anionic polyacrylamide castalternating in 8 hour periods. Had relief after 12 weeks and complete cure after 24 weeks...no recurrence 8 years later. Good luck with yours...I know the frustration of being told there's no cure and then nerve blocks and ketamine treatments and all these treatments that did nothing while your life is on hold.
brenda_savvy Monkaygirl
Posted
It's tough. I am walking a lot this week so it's a mix of joy I am finally getting fit again and crying because of the pain
Monkaygirl brenda_savvy
Posted
You sound very brave. It will pay off for you. You have
Inspired me to try harder thanks 😊 Dont feel bad if you can't do
as much as you want. Baby steps. x
I am going to meet some work mates in pub tonight, so nervous.
I am off work but feel paranoid as I may seem ok to go back
but they have no idea what this condition is all about.
Are you guys having to take time off. I am on half pay too now,
Boo!!
lissa82377 brenda_savvy
Posted
It is very though., some days are better then others., and on those good days it's like WOW., feels different no to be in so much pain but it's still always there just not as intense.,
lissa82377 Monkaygirl
Posted
I was only suppose to be off work for 10 weeks after my surgery but cause of my rsd diagnosis my specialist put me off for 8 months all together.., I started work again slowly but I couldn't do long hours cause the job I do I'm constantly up on my feet .,after 2 months back to work I had a baby ., ended being pregnant all the time and didn't know ., SURPRISE!!., being so stressed out and depressed going thrue that ordeal with rsd my body was all mixed up.., sooo I'm off work yet again but this time enjoying every day with my little one even if it's a painful day
Monkaygirl lissa82377
Posted
That's a beautiful end to a horror story. I have been off almost 6 mths so at end of month will be half pay, effects every area of your life. Best wishes for mother and baby 👶 x
brenda_savvy Monkaygirl
Posted
Yes I am ou Of work since July 2016 since I fell. A simple sprain.
I exercised again today bit of cardio had my foot in Epsom salt basin for hour it's agony now but I say I burnt calories. So look I need to get fit and feel good instead of a lump hahaha.
Congrats on baby
X
I have 3 boys
brenda_savvy Monkaygirl
Posted
lissa82377 Monkaygirl
Posted
lissa82377 brenda_savvy
Posted
Worleywoo Monkaygirl
Posted
Ive lost my job. And like you when I meet colleagues from work they tell me I'm looking great. Shame they weren't with me yesterday when I was washing something in the sink and I splashed cold water on my foot. Sent it spiralling and have been awake ,oust of the night with the pain. Bizarre disease. But I'll take the good days. It's sunny here in Dublin today so I'm going to endeavour to push through it and go for a small cycle cos walking just isn't an option.