Tired of feeling scared

My ENT consultant said he is sure its not Menieres. I have got to have some balance testing where they put different water temperatures into the ear. I just feel sick inside like nervous like as if I am waiting for something bad to happen because of this lightheaded feeling I feel always on the verge of a panic attack like all hot inside and nauseous. I also feel tired a lot but I don't exactly sleep well and get a full 8 hours so that could be why. I am 26 and I feel old before my time because I'm literally stuck and can't do much and I am more sad that I have to rely on others to help me get by day to day ie driving me about etc. I do feel anxious but I feel anxious because I rarely feel well inside. I may have like a moment where I feel/think nothing then I start to feel unwell for no reason although feeling lightheaded never leaves me.

To be honest I have not tried anything I have done bits of exercise but have to stop when the dizziness is at its worst. I just don't know where to turn now my gp just brushes it off as anxiety.

Definitely an inner ear issue!! U will get better!!

I feel on edge like this too. My symptoms create my anxiety...NOT anxiety creating my symptoms!!!!!! Big difference!! I wasn't able to drive for awhile either. I am now bit only side streets...no highways yet. Keep pushing yourself to do activities. It's helps the healing! How long have u felt this way?? I'm still lightheaded daily 24/7 however the I tensity is much less than it was a few months ago. A bit more tolerable...i've had this for 8 months.

Vestibular therapay helps over a couple month period of time u will feel the difference. Google it and do exercises daily and gradually work up to 3/times a day everyday. It will create symptoms and increase dizziness but over time it will desensitize your vestibular and promote compensation. Remember ativan slows down the healing process so only use when a relief is needed.

I am completely in agreement with tasha. Everything she said about the Vestibular therapy--it's hard but amazing. I also read that taking medication slows down the healing, because it's the physical "retraining" that gets the balance back.

Thank you for the reply. I have been seen by ENT, neurology and cardiology. I had a CT scan late 2013, cardiology investigations last year with echo in late 2012, blood tests last year and neurology done a physical exam this year ie checking my balance when I stand up, asking lots of questions and lying on the couch and checking my reflexes etc. I was told there is no physical signs of anything neurological. I can see why on paper it sounds like anxiety when you think of all the checks I have had but even when I don't feel anxious I am still lightheaded it makes no sense how I can feel so unwell. Even when I think positive and want to beat this feeling and want a good day nothing changes which makes me think there's got to be a cause. I am going to be starting Vestibular retraining therapy soon

You sound like me!!! Your on the right track with vrt....hang in there. Sometimes I take a small dose of ativan just to feel relief some days but gotta be careful cuz it can slow down the compensation process. Stay strong

Does ativan make the lightheaded/dizzy feeling go then? I did take lorenzepam is it called a couple of times ages ago at 0.5mg like the doctor said but it had no affect so may have been to weak and needed maybe 1 or 2mg but was to scared to take anything more lol

They found no signs with me either. My ENT said if I was seen by a vestibular therapist or ENT sooner it would be been alot easier to diagnose. Glad your starting vrt. And glad you are going for caloric testing. I was originally told anxiety as well but I knew it wasn't and pushed to see the right people!! Never stop advocating for yourself!!

I have been seen by cardiology and had various investigations ie urine samples that I had to collect over 3 days, event recorder for a week, ecgs, bp monitor for 48 hours, echo and x rays. All this was checked last year with the echo being done in 2012. The only thing they sometimes pick up is my bp raising which they say is when I am anxious or a fast pulse. I tend to get head rush often when I stand up like pulsing feeling

Hi Pauline thank you for the reply. I did have all my bloods taken last year around feb time and all was normal including thyroid but there is a history of it in my family ie my dad but his was more obvious because he was loosing a lot of weight and blood tests showed it up straight away so I think maybe that isn't the cause for me if mine all came back clear. I am wondering maybe if these blood tests should be repeated now after a year? If so should I be asking for specific tests or just a full blood count?

Ask them for a full Thyroid test T3,T4 and TSH. I'm still on a low dose beta blocker to manage the palpitations. My thyroid was eliminated by radioactive iodine, but as they didn't give me any replacement hormone (thyroxine) it has now gone underactive. They can detect changes through each of the indicators, so it is important to have them all done. 

I have recently suffered panic attacks, dizziness and vertigo. I am taking betahistine for those and it is helping.

Let me know how you get on, we all need to support each other to get these resolved.

Take care

Pauline