Tiredness.
Posted , 14 users are following.
could someone help please. I am down now to 12.5 mg of Prednisone. Although my pain is not too bad I am so abjectly tired all the time. Does anyone else suffer from this tiredness. It is a living death and I have a very sick husband to take care of at the same time.
1 like, 33 replies
lilian05079 jennybshaw
Posted
Hi jennybshaw
Pred tiredness is not like your everyday tiredness it's very intense and overwhelming and you have to give in to it and rest. I do sympathise with the position your in having a sick hubby to care for..it can't be easy for you. Have you had your iron, folic acid and B12 checked , if you are deficient you will be extra fatigued. Ask your doc to carry out blood tests to check for deficiency. Try and get as much sleep as you can, like a nap in the afternoon..and try and get to bed as early as you can. Don't take too much sugar because you will have a sugar rush and it drops quickly and you then become overwhelmingly tired. Try and leave sugar out of your diet......my very best wishes to you jennybshaw.....i'm sure there will be other members on the forum who will give you some good advice...my vety best wishes to you....
jennybshaw lilian05079
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karenjaninaz jennybshaw
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Jennyshaw, make sure you are taking Vit D along with your calcium. Prednisone reduces our body's ability to absorb calcium and Vit D. We don't get enough sun in winter and there is not enough Vit D in foods. Without D also K2 calcium is not absorbed by bones .
i felt much stronger taking these as well. I am 75.
Anhaga jennybshaw
Posted
The fatigue is a common thing with PMR, unfortunately. Lilian gave good advice about asking your doctor to run some tests. And please try to get as much rest as you can. There may be some things you must let go for now, especially as you are caregiver to your husband. If there is someone who can help you that would be good. Perhaps assistance with some of the necessary things, like fetching groceries or laundry? And check with your doctor if there's a way to get respite care for your husband so that you can have some time for yourself (even if for now it's just to catch up on sleep) a few hours a week without having to worry about him. I don't know where you live but in some places limited respite care is available and you don't have to pay.
jennybshaw Anhaga
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linda82701_USA jennybshaw
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Best wishes, Linda
jennybshaw linda82701_USA
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Michdonn jennybshaw
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jennybshaw, I am currently on 11 mg tapering to 10 mg. I have basically tapered from 30 mg pain free. I do not reduce if I have PMR pain. If you are caring for a sick husband that is stressful and your dosage made not be enough. I would think of going back to the dosage at which you were comfortable and stabilize, reduce slowly at no greater than 10%. Good luck on your journey, hope your husband has speedy recovery. Think positive. 🙂
jennybshaw Michdonn
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Joydeck jennybshaw
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susan08542 jennybshaw
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I can cope with PMR pain most days. But the exhaustion is over whelming much of the time. Have only tapered from 15mg to 12 1\2 mg, that took weeks. Any Stress and have to bump up for few day. I pray your doctor is caring and kind. You need and must have some help at home with ill husband and your PMR to cope with. Difficult to care for one's self , much less a sick loved one. Medical community is often great source of local resources and the referrals you may need. Please, please do just basic and only the absolutely necessary each day. Rest or Nap EVERY chance you can grab! Ask will it make any difference a week or even a day from now? Hope you seek, ask and find help Very Soon! Hang on and know you are in thoughts, heart and prayers! This impossible time Will Pass.
Michdonn susan08542
Posted
susan08542, each individual and case is different. I had a bad flare last spring went from 7 mg to 30 mg to get relief. I stayed on 30 mg for about 6 weeks till I stabilized and PMR pain free. I have reduced to 11 mg tapering to 10 mg pain free except for a couple of minor flares. I am active probably not as much as before PMR, but live a very normal life. I had to increase my activity a little bit at a time. A small increase each day starting at walking 1/6 mile twice a day, to a maximum of over 9 miles of hiking a day. Try to think positive and smile, I believe it helps. Good luck on your journey, take your time it is not a race. 🙂
jennybshaw susan08542
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Anniecurd jennybshaw
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christophe38948 jennybshaw
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The weakness is the basic side effect of the Pred. After few months of using I was weak to walk outside, after additional two months I generally stay in bed. My temp. ranging from 35.4 to 35.8C. I can sleep all day around.
I hope it will end when the Pred will not be in use.
Good Luck
CW
jennybshaw christophe38948
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EileenH christophe38948
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I do realise it is hard but we have to do our part in dealing with PMR and that means taking responsibility for what we aim to do. There are other disorders that mimic PMR - one is myositis. Did your doctors rule that out? It requires higher doses of pred but usually for a short time to deal with it properly. But it can be very disabling.