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I know many of you who have this are at your wits end. I am too and what's more the information I have found varies so much. Did you know for instance that there are two types of trigeminal neuralgia?
Classic is the one that many people have, but there is also a-typical. Here the pain is what has been described as a dull ache rather than the flashes of extreme pain. I would beg to differ as I believe I have a-typical with bouts of classic. For me, the pain just ramps up and up, starting as a dull ache in the background.
I wish the medical people would get on board with this disease, illness or affliction. How do you get it? Can you get it from whiplash in a car crash? Why are dentists so slow in discerning the difference between toothache and TN?
I would like to know whether anyone would be interested in another site starting with my issues and the way TN has affected me and including posts from other people as they send them in (I don't have a site that can deal with live posting)? There is already http://www.tna.org.uk/, which surprisingly, has more information on it than the NHS website on the subject, but it is still fairly marginal at best.
I wondered whether more opinions; more sets of symptoms, comparisons would be welcomed? Since few places give information, I wondered whether perhaps you lot out there have been having the trouble I have with dealing with something that doesn't fit the symptoms given on so many other websites. My doctor is very good, but I suspect he's like yours - knows a little but not much - and who can blame him?
We need more information, more people to post their symptoms, the way they deal with it and the steps they've taken to alleviate the pain when it strikes.
Let me know, I'd be really interested to hear from you.
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