told i can stop warfarin 3 weeks earlier than end date?

Posted , 4 users are following.

I was diagnosed dvt in right calf due to birth control, I have a terrible time on warfarin from swelling of stomach and everything under my rib cage to sweating, nausea, fatigue and a lot more. I was trying to get a change in medication which was like pulling teeth and the last straw was to sit it out at dvt clinic where I wasn't originally sent due to being on a ward. Anyway I was told yesterday by the consultant I could stop my medication wasn't due to stop till 29th Oct so it's 3 weeks early to my 12 weeks. Obviously very glad and last night first night of not feeling as bad as I have. I am however a little baffled that 12 weeks turned into 9 with no follow up or even seeing me, just decided from reading my notes. Anyone else been told they could finish earlier than expected?

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  • Posted

    Nope. I did 6 months. Hated it. And still have follow ups every 3 to 6 months.get a second opinion
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    • Posted

      Who do you have follow ups with? I was on a ward after going through a&e so I can't use the dvt clinic as I didn't go through them, my doctor is only taking written confirmation from the consultant who for the first time faxed him yesterday to say I could stop the medication. I need to change my doctors they have been no use and kept telling me I had IBS when I knew it was my body not liking the warfarin, it was the only damn thing I have and was taking. I asked for a follow up Doppler and he said there was no point it would not be useful, I did read it's better to get one so if it happens again they can see the last result whether still there or not. 
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  • Posted

    Hello Saz,

    I'm on warfarin at the moment too because of a second DVT last Christmas 2013 I think everyone who takes warfarin suffers some kind of reaction whether it be tiredness/fatigue or hair loss, painfull joints etc etc it's just a bad medication.

    The first DVT i suffered 7 years ago, the hospital stopped my warfarin early without warning so it must be something they do regularly, but i'd keep an eye on yourself to make sure theres no repeat of your DVT. Both times I have had a DVT neither the doctor or  haemotologist  ever looked at my leg I think the mention of DVT scares them as most doctors don't seem to know much about them.

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    • Posted

      Hi Rob,

      I know your right about the warfarin and effects but I had all the reactions altogether and worse, the anticoagulant clinic were happy to change me to sinthrom or fragmin but the doctor wanted it in writing from a consultant. The heamotologist said they weren't the side effects of warfarin, yeah ok!.Cause he he knows how my body reacts to this medication.

      Thanks for replying, do you know why you got dvt in the first place? and why you have it again? I think I am scaring myself a little with the cramps I have in my other leg since my lymph node in groin has been swollen for 4 weeks and pain travels down my . I'm glad I have found someone else who had it stopped early as I am elated and also dubious.

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    • Posted

      As far as I know, the first time I suffered a DVT in my right leg the diagnosis was that I must've been "very unlucky" which was laughable, the second time however the diagnosis of the haemotologist was "stress" which made sense as I was having terrible problems with a manager at my then job he explained that extreme stress has the property of thickening the blood and this continually had lead to another DVT.
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    • Posted

      nothing like putting your mind at rest being unlucky. Wow I didn't know that could happen through stress thanks for sharing that with me, I am always being told to stop being stressed by my hubby especially with the kids and work, I will start to take a deep breath. I'm sorry you have your second through stress and work problems, work can sometimes be a hard place to be, so much for work/life balance. I am starting to look for natural things to eat to keep blood healthy and thin and lose a couple of stone and try and take a different outlook to a healthier life. They say mine was the depo provera injection which would explain why I was ill for several months without being diagnosed with anything after blood tests and scans, if only I had listened to my body from January I possibly wouldn't be in this situation now. I have found a couple of sites quite valuable especially when people reply and you don't feel so alone with the situation. I have however not found any good outcome stories which makes my mind work overtime. So to know it's been 7 years since your last I feel a bit easier that it might not just all happen again so soon. Sorry for the long reply.
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    • Posted

      Its always good to share information as it gives people vital facts to talk to a specialist about, when my works sent me to occupational health they couldnt believe how a doctor and my workplace thought a DVT was nothing more than a bad leg..... I don't work at that place anymore but since I haven't been there i've felt a million times better. My second DVT was quite serious as I got scepticaemia but its pretty rare. The thing to remember Saz is that if you feel pains in your leg where you had a DVT you need to get it

      checked out even if its nothing as if you leave it, it may develop into something really serious.

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    • Posted

      Thank you for all your kind advice, I'm glad your out of that workplace and it's made you feel better, I have the same feeling where I work thinking I'd be better off out of it, civil service has not been a good place to be for a few years and everyone seems to feel the same. But it's all about money, keeping a roof and feeding the family. 

      I will definately get checked out when I'm feeling out of sorts or don't think something's right.

      Hope your off that awful medication soon enough and have a good outcome.

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    • Posted

      Just a quick update had call from anticoagulant clinic, they are so helpful, explained it wasn't a problem that warfarin was stopped early, told me any problems or thoughts of reoccurring dvt to take myself straight to a&e to be investigated, just as you informed me Rob.

      He wasn't being horrible but hoped I didn't see them again in the nicest possible way and that if ever I needed to be on blood thinners again it would hopefully NOT be warfarin because of the awful time they saw me having on it. They are hoping to prescribe medication at the clinic in the future. 

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  • Posted

    My husband has never had a follow up...never seen a consultant either, so I'm not surprised. He was put on warfarin by a 'geriatric' Dr, after being mixed up with another patient with the same surname...but trying to get to see anyone..........!

     

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    • Posted

      Hi bowman, if he your hubby was mixed up with another patient how do you know for sure he should be on warfarin? Shouldn't he be checked out to be sure he should be on it? I would take it further! Thanks for letting me know there has been no follow up, the coag clinic have also informed me that a follow up would not occur. They have been more helpful than doctors and the consultant. I hope you can get to the bottom of your problem.
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    • Posted

      Thanks for your interest. We have even been to the health ombudsman....still no luck. Our GP just says ''oh dear!'' when we tell them about the problems he has and then does absolutely nothing. Unfortuanately we are stuck with this GP as there are about 12 Doctors who share the area.

      He is frightened to take the warfarin but just as frightened not to incase he does need it.

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    • Posted

      Have you requested his notes from the hospital and the doctors to see what and why he was put on the warfarin? I assume the obudsman would have looked into that. What reason did the hospital give for putting him on it in the first place? I'm baffled. I'm sorry your hubby is scared taking it and also not to take it. If they gave him blood tests he'd have to come off it for a few weeks can you not request that? to see the reason?
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  • Posted

    After i completed my 6 month warfarin, i was placed on ecotrin for life. Its a antiplatelet.....but physician says it prevents the blood from being sticky. However if i get another clot will be on warfarin for life. Im 32yr old female. Had a pulmonary embolism.
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    • Posted

      Hi jasmine, I havent heard of ecotrine, did you have blood tests to say you have sticky blood? Did you know why you had a PE? I hope your medication does not allow you to have another episode, to be on that awful warfarin for life is my worst worry and no doubt yours.
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    • Posted

      Hi saz. Got a PE  from leg operation. Also had osteomyelitis( bone infection) yes ecotrin is asprin, which is a anti platelet, your blood needs platlets to stick together in order for it to clot, so by being on asprin u take away one of the clotting factors. Yes beats warfarin any day. I was also placed on xeralto at one stage, but there is no antidote if u start bleeding....so yip....will stick to ecotrin. I also smoke which i know is not good. But hey. Im tired of living as if im dying ...and this ruling my life. Why did u get a dvt? Which country do u live in? 
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    • Posted

      U can also do a quick blood test called a D- Dimer. It must be below 0 5. If its higher u should check for new clot. ( above 0.5 is positive) if positive take action. If the test is negative below 0.5. It rules out a blood clot completely. Its quick. 45 mins u get the results. 
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    • Posted

      Hi Jasmine, don't feel guilty for smoking, I gave up smoking cigarettes last August and use e cig and vape, if you did nothing your right life would be so dull. I got mine from the depro Vera contraception injection administered 12 weekly. I also have brca1 gene and they think it was combination of both, I had also put on about 4 stone from feeling ill since January not realising it could be my birth control, if I had I don't think this would have happened. Oh well you live and learn. I obviously no longer take it and should have been out of my system 2nd week September, I now have to have ovaries and fallopian tubes removed as I cannot take anything, I should have had it done 2 years ago but I put it off, I don't do doctors, hospitals or medication well I didn't but do now. I am in north west of England, how about you?
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