Took my eye disease to my dermatologist

Posted , 14 users are following.

I've been to quite a few opthamologists & they will give you drops for an eye infection, but nothing for Blepharitis.  They will also give you drops for dry eyes, but again nothing for Blepharitis.  I had to go to my Dermatologist & he's the only one who treated it.  Sounds weird I know, but at least I can open my eyes up wide now where before I couldn't. They were squinty, red & crusty in the corners of them.  Who wants to go around like that?  Now people are actually looking into my eyes & not at my eyes.  

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  • Posted

    That was in reply to your suggestion that we all go to the USA . I hope your cure lasts , there's been many a time that I've thought that the Bleph had gone only for it to return . Hopefully you will be one of the lucky few .
    • Posted

      I guess I do consider myself lucky for living in the USA!!!!  Anyway, try Flaxseed oil capsules or Olive Leaf Oil capsules, they're suppose to help too.  You can always order them online.   
  • Posted

    What did the dermatologist do for you? I have an appt coming up one. This will be the 4 th doctor I see for this problem that started November 2014. Another thing I read is people can be highly allergic to ladybugs and we have them in the house. I like them and never minded their presence.
  • Posted

    I have suffered immensely off and on over the last ten years with blepharitis.  The "flare ups" have increased in length, frequency, and severity over the years.  I have Lupus so I think that may play a role in this, not sure though.  I have consistently used over the counter tears, and my ophthamologist has treated me initially with Restatis, and during the flare ups with erythromycin ointment at night, washing eyelids daily with baby shampoo, and recently Azasite eye drops (antibiotic) that I did not drop in eyes but was directed to place on fintertip and gently rub onto eyelids and lashes.  I have been uncomfortable and downright in pain for months and nothing seemed to be helping.  The last two flare ups were similar and lasted about 3-5 months with all this treatment and no relief.  I remembered my ophthamologist saying people who have rosacea often have blepharitis so I went to my long time dermatologist because I was desperate.  All I wanted to do was sleep so I could close my eyes and find comfort!  He said "I wish you would have come to me sooner about this".  That was a month ago.  His first step was to have me wash my eyelids and lashes with tar shampoo for about 20 secs daily.  I don't think it is sold over the counter often he said because it is unpopular since it doesn't smell good (esp for a shampoo for your head).  However, I was not concerned about smell.  I just wanted relief!  It is 20% coal tar.  He gave me a sample over 4 weeks ago to try.  I bought a bigger bottle from his office yesterday.  It initially stung somewhat along the eyelash line.  But not so severe that I had to stop.  I shortened it to a shorter time period like 10 seconds.  Now 4 weeks later, it does not sting when I use in 20 or so seconds (unless I accidentally get it in my eyes).  He reported that's because the inflammation has gone down and they are less irritated.  There were other options we could try but wanted to try one step at a time and my eyes are almost normal feeling and looking now!  The lids aren't all thick and puffy and eyes are red.  I will eventaully use it about twice a week, and optimim results should be in 2-3 months according to him.  I wear no eye make up anymore and havent for a long time.  The name of this is "TARSUM professional medicated shamppo/get" and is 2% coal tar.  The bottle says it treats "seborrheic dermatitis, psoriasis & severe dandruff" and controls "itching, flaking and redness".  I can't tell you how happy I am to have found this and hope it continues helping and perhaps can help someone else find relief.  I was literally about at my wits end, couldn't concetrate, and was consumed by the pain.  Dermatologist suggested I maintain the drops to rub on eyelids from eye doctor about 2 times a week and the same with the ointment in my eyes at night.  He thinks I may not need any of that though eventually.  Time will tell.  I sincerely hope this information helps someone out there.  It had never occurred to me to go to a dermatolotist for an eye problem, and I'm disappointed that my eye doctor never thought to refer me since she was not successful treating me.
    • Posted

      Thank you so much for this advice, Linda. I'm so glad that something is making a difference for you. I remember my dad using coal tar shampoo for psoriasis - quite like the smell for nostalgic reasons! May also be good to use it on the eyebrows & for hair washing to ensure all areas are covered. Let us know how you get on long-term, please :-)
    • Posted

      This is a very interesting post as david has posted similar results using also a coal tar shampoo. I already ordered mine. What has your dermatologist diagnosed you with linda? Rosacea or seborrheic dermatitis? They are different conditions. The reason nothing worked for you from the ophtalmologist's is because you may be suffering from seborrheic blepharitis not bacterial.  

      Keep us updated.

    • Posted

      I was diagnosed with Rosacea over ten years ago.  During the last 2 recent visits with my dermatologist, he does not suspect the problem is bacterial.  He suspects rather the symptoms of seborrheic dermatitis common with people who have severe dandruff (which I don't have).  I also have no visible symptoms of psoriasis.  He suggested conginuing sporadic use of the two antibiotics for now though.  He explained that these antibiotics will also have some affect on inflammation.  I got the impression he wants to introduce me to a new treatment without totally negating the eye doctor's treatment.  He said he will know more based on my results from the treatment with the tar coal shampoo over a period of time (2-3 months).  He sounds pretty confident that he is on the right track.  So am I.  Better everyday!! 
    • Posted

      Are you sure you are getting relief from the stuff your dermatologist prescribed you and not from the ones from your ophthalmologist?
    • Posted

      I feel sure but that will be determined more definitively as the treatment progresses over time, and I reduce the use of antibiotics.  I think I will know if my frequency, severity, and length of "flare ups" decrease significantly.  Like I said in a previous message, they have continued to get worse each time over the years.  In the past when my flare ups lasted 2-5 months, I maintained the ophthamologist's treatments of antibiotics and baby shampoo wash religiously and with absolutely no changes in symptoms.  Eventually the problem resolved itself I believe.  This last 4 weeks with the tar shampoo has been the most dramatic change I have ever had in such a short perioed of time.  With this being said, no I am not sure yet.  All results so far indicate that to me though.

      My eye problems started with chronic dry eyes supposedly as a result of inflammation of tear gland (common with Lupus).  Went through all treatments and procedures regularly beginning with Restasis, tear duct plugs(within last year), and, of course, continual use of tear drops for over 13 years.  Blepharitis was never mentioned to me until about 9 years ago.  That's when the annoying dry eyes became more discomfort and eventually painful episodes.  It's been a process of increasing severity.  My rheumatologist and dermatologist have told me within the month that the dry eyes and the blepharitis are not necessarily related (at least in my case).  They both stated the dry eyes do NOT cause the blepharitis, but the blepharitis may make my eyes feel more dry because they will so much more irritated.  There is much lacking in the sciences in this area.  Many unanswerable questions.

       

    • Posted

      Could you ask your dermatologist for a more thorough explanation to why this treatment works? I am sure many people on this forum would benefit from more information.
    • Posted

      linda , the bleph can infect the lubrication glands ( as in my case ) restricting / blocking the flow
    • Posted

      That's interesting, and I hadn't heard that before.  My ophthamologist never mentioned that in almost 12 years to me.  She always explained that the inflammation of my tear glands were inflamed due to the nature of my Systemic Lupus.  She said that was common in Lupus and Arthritic patients who also have inflammation as a primary symptom.  Both explanations make sense. I actually complained of the dry eyes long before I had blepharitis diagnosis and the symtpoms that accompany it (swollen red eyelids, etc).  Perhaps different patients have different causes for the same condition, ours being blepharitis.  Which would explain why all treatments don't work the same for different patients suffering with blepharitis.
    • Posted

      What is really interesting is that I also suffered from severe flare ups for 6 months straight. It felt like my eyes were on fire. It was the most horrible experince. It was the result of bacteria degrading the oil. None of the antibiotics or lid crubs or whatever worked. How did your eyes feel linda when you had these flare ups?

      I am still waiting for my coal tar shampoo. I am really anxoious to see what it does. Are you using it daily for 10 seconds and then washing it off?

    • Posted

      Yes there's 2 basic types .I haven't had the "crusty eyelashes" type since the first outbreak ( lasted 6 weeks and caused rash on face ) but the dry gritty eyes off and on since . At it's worst it's a near totally bloodshot right eye , pain inside the eye , sensitivity to light and blurred vision . I had a glorious 2 month period where I had no symptoms and messed things up by trying the wet wipes just once ! Obviously the proportion of "good" bacteria to "bad" bacteria balance was upset by the wipe .

       

    • Posted

      I've received the Capasal shampoo with coal tar today. I'll report back. It has a very distinctive smell. We'll see. I really have nothing else left.
    • Posted

      Felt like gritty wet sand in my eyes continually.  I dreaded waking up in the morning and having to open my eyes and face another day of dealing with the pain.  The only relief I got was when I closed my eyes and that was not 100 of the time, but for the most part.  Extremely sensitive to lights, vision blurry, my acuity decreased during eye exams and screenings significantly.  Eyes were red and tired looking from the heavy, thick, swollen lids.  Sometimes I would have "leakage" or drainage from outer corners.  I never had too much of the crusty eyelashes that many complain about.  I thought perhaps that's because I was generally using an ointment at night that may have kept that substance moist.  I don't know.  Many times, it felt like there was actually some foreign object in my eye under the lid.  Right now they feel great.  Better than last week even.  Using the 2% coal tar shampoo twice a day for about 20 seconds or so and lathering it up best I can.

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