Trigeminal Neuralgia help please!!!!!
Posted , 7 users are following.
My friend has recently been diagnosed with Trigeminal Neuralgia. He started on Lyrica, but stopped due to side effects. Started taking Tegretol almost 3 weeks ago 200mg per day. Is now up to 1000mg per day. He found that the 1st couple of days he was heaps better and then the excruciating pain would begin again, up the dose, relief for a few days, pain, up the dose etc. At what point does he go up to, he is extremely irritable and upset (as am I), and needs some advice. Hasn't got a regular doctor, doesn't trust them for many many reasons. Please advise! Thanx
Tracy
0 likes, 22 replies
eddie13 tracyhelpme
Posted
Very important to see a neurologist. I'm settled at 800 mg a day. Your neuro has to help find what works. I've heard drop dead max is 1200.
eddie13
patrice95661 tracyhelpme
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tracyhelpme patrice95661
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colin69485 tracyhelpme
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Windy338 tracyhelpme
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Valkyrie tracyhelpme
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colin69485 tracyhelpme
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Regular monitoring of our general physiology is important, especially liver functions, but your friend's GP can interpret the blood results, it doesn't need a neurologist - if there are unusual issues then your GP would refer him to a specialist in liver medicine (hepatology), not a neurologist.
But most importantly (in the UK, anyway), your friend needs to get over his phobia about GPs. He will need a GP to refer him, if he needs to see any specialist, so best to get this problem sorted first! Colin
tracyhelpme
Posted
Other questions if I may ; What do you do when the pain is absolutely excruciating? He's woken up many a night feeling like someone or something is peeling his face off, very roughly!!!
Why is laying down make it feel so much worse?
Are there any common denominators for those with TN? Smokers? Drinkers? Nail Biters? etc
Thanx for reading and caring!!! Really appreciate it!
Tracy
colin69485 tracyhelpme
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Where are you living? It's helpful to know which country, as the health service varies enormously from place to place - sorry, of course you know that! I'm in the UK.
Good luck and keep feeding back your thoughts, as things progress.
Colin
Valkyrie tracyhelpme
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tracyhelpme
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Are there any people from Adelaide on this site that could recommend a good doctor and neurologist?
thanx again
Valkyrie tracyhelpme
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Valkyrie tracyhelpme
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tracyhelpme Valkyrie
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Valkyrie tracyhelpme
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Valkyrie tracyhelpme
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tracyhelpme Valkyrie
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By the way, what is your story with TN? And is there a way of finding people's stories on this site anywhere?
tracyhelpme Valkyrie
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