Trouble diagnosing, maybe a blood disorder?

Are you struggling with doctors too? Unfortunately no one knows what is wrong with me and it has been a bit of a struggle to get my family doctor to refer me to other doctors, such as rheumatologists

Yes indeed!! My doctor doesn't know what to think so after seeing the hematologist who said that my blood work was ok ( high white b count) and he had no clue about the rash, high hemocrit and high red blood cell , basically he told me it is probably anxiety...lol

I don't trust any doctor opinion at this time as I saw multiple (minus immunologist)

Is your hair loss bad? I have lost a bunch and still am, I also have a rash ( my doctor prescribed anti acne medicine) but I still have it, also my vein on hands are very visible as I lost weight but I retain water at the same time. Is your rash red dots? Mine is.

I heard a lot of ridiculous things too, such as "you're probably just stressed" or "you're just growing up". My hair loss ir significant, as even now I remember how my hair looked like 2 years ago and now - in my opinion the hair loss is a bit bad. My rash looks like normal skin - but it is just red. It's not itchy, it's not dry, it just looks like normal skin, but red. It started off small, but now it covers a large area overall. However, I do wake up at night and it is itchy because I have night sweats. Not severe, but I do wake up because of it. It's just really strange because I sweat, but I am cold and have chills most of the time.

Oh no, did you find the leukaemia early? I hope you're better now. Thanks for your reply, I will ask my doctor about the bone marrow test or just a referral to a hematologist. 

It was over ten years before they found out. All the doctors I went to were puzzled by my symptoms and blood work, until one doctor had me see a hematologist. Lucky for me, mine is a slow growing type call CLL (Chronic Lymphocytic Leukemia). Yes, there are many types of blood disorders. I am not being treated yet, but that might change because I recently developed an itchy rash all over my body, coughing like crazy, and strange enlightenment in groined area. I forgot to ask, did  your doctor order a complete blood test for you? 

 

Wow, 10 years is a very long time. And yes, I am meant to have yet another blood test - on thursday. For the past two years my results have been very strange, last year I had an abnormal white blood cell count, and this year apparently it is normal again. But throughout these two years I have constantly had a high eosinophil count as well as platelet count, which is also strange because I do get bruises out of nowhere sometimes. Doctors are puzzled by my symptoms too, I have been to an immunologist, infectious disease doctor, rheumatologist, endocrinologist, dermatologist... I guess all that is left now is a hematologist as my GP has mentioned a while ago that if all my other tests from these doctors come back normal - i might need to go see a hematologist. Also, what results did you have for your bloodwork?

Interested in knowing what your blood work led to believe in CLL as I mentioned it to heamatologist and basically he laughed at me saying my white blood count would be higher than my 12.000 borderline high count. Thank you!

Lidia

Sorry also your cough was with or without phlegm?

Maybe it's best to get a second opinion or to even go privately, as I realised that doctors "care" more when you go privately... I wanted to ask you aswell do you cough all the time or do you have episodes? Sometimes my cough is dry at first but then it is with phlegm and it causes me to have trouble breathing after a while

I should say to you; Don't worry too much, because if you do have some type blood disorder, its not the end of the world like it use to be. Now days there are lots of treatment options. Also, you can't make too much out of your WBC count being high (just could be your body fighting off something like an infection) I was told I would probably die from something else other then my CLL.  Right now my WBC is 19.6 H,.....RBC 4.08 L.....HGB 12.1 L......HCT 37.0 L.....Lymph% 76.2 H..... Lymph # 15.0 H....My Hematologist is not treating it because it's best just to "wait and watch". No need to get aggressive yet. My concern for you is to find out what's going on. It just could be some kind of allergy or something.

It is with phlegm.

I think your hematogist is correct. I was only diagnose after taking a bone marrow test.  Actually, my blood work was not too far off the scale for Leukemia. Just mile anemia. What they found for me was  a lot of immature and abnormal blood cells that stopped the normal blood cells from producing. 

 

Same exact, it is so annoying, I tried anti allergic pills for a month as per order of my doc, but nothing changed. Now he said he will send me to pneumologist to rule out asthma?!? What are you taking for cough?

What kind of rash do you have?

I did take antihistamines for a while but it didnt work and didnt take away the rash or the symptoms, does this mean that allergy is ruled out?? Also, my "rash" looks like normal skin, but it's red. There's no scabs, no dry skin, no breaking skin - it literally looks like normal skin, but red... Do you have a rash aswell, if so, what does it look like?

I will send u a picture on your mail