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Trying to reconnect!!

Posted , 12 users are following.

lynda62707
lynda62707

Hi folks...I sure hope someone is reading this as I'm feeling somewhat invisible right now!

I had joked before that at some point I felt I'd crossed over into the Twilight zone....I didn't realize how prolific I was!! I REALLY feel in the zone right now, or at the very least, lost in cyber space!

I'm struggling BIG TIME right now and till now didn't realize just how important you all have become to me!

If anyone out there could help me reconnect, please let me know and I'll keep fingers crossed (if they're not too stiff) that my notifications resume!

Thinking about everyone!

0 likes, 44 replies

44 Replies

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  • missmagwumps
    missmagwumps lynda62707

    Posted

    Hi Lynda,

    I have had huge problems with this site recently and not receiving communications/notifications but guess it is due to the upgrade BUT I Have another questions for you and your very knowledgeable followers to concentrate your mind for me a bit and I hope you get it ....(Ha) :

    I had a whole raft of blood tests last week and among many one result came back with a very deficient Vit D level of 10 (in UK normal minimum is 40) ! My GP had given me a very large dose of Vit D3 to take over next 6 weeks....25000 ampules x 2 a week for 6 weeks ! i don't get Vit D from sunshine (mainly due to our English weather) but I have had many skin cancers removed)!

    My question really is should I have been given Prednisolone for months on end before ruling out all other possibilities.....I'd be mad if I have been suffering for so long and now taking the Pred when a high Vit D dose could have solved my problem and PMR was not my problem !

    Many years ago I was diagnosed with a malabsorption problem and an Endocrine consultant recommend high doses of Vit D as my levels were very low and after taking these for a whiule my levels came into normal range and was never checked again and my GP (a few years back) said I didn't need to take it anymore - so I stopped !

    Any thoughts please.....x

    • EileenH
      EileenH missmagwumps

      Posted

      It is possible - but if the pred worked it would suggest an inflammatory cause whether the ESR/CRP were raised or not. Pred doesn't usually improve symptoms if it is due to low vit D. And low vit D doesn't automatically mean you will have signs or symptoms - my husband's was lower than yours and getting it sorted made no difference to how he feels.

      However - you are right, it is one of the things listed in the differential diagnosis. And I would be reminding anyone who said to you to stop taking vit D that you have a diagnosed malabsorption problem.

  • margaret89358
    margaret89358 lynda62707

    Posted

    hi lynda I have not seen anyones post for over three weeks. it has taken me sometime to find the site. I am now happy to be reconnected.

    • lynda62707
      lynda62707 margaret89358

      Posted

      hi Maggie....Wfewww!! I'm sooo glad you're back!

      there's another Margaret on this forum whom I think I've been confusing you with😕...although your posts had a slightly different "flavor".

      I'm glad that seems to be straightened out right now!

      welcome back!🎆😇

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