TURP with Prostatitis

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I'm now 4 weeks post TURP. After having an awful recovery I've been in hospital for last week & yesterday was diagnosed with

Non bacterial prostatitis. I had never heard of this condition & only found out from researching the symptoms I've been suffering the last 5 years. My doctor & urologist were told of my symptoms which started with episodes of very painful testicles & then trouble voiding at night & only occasionally during the day. I was told I had an enlarged prostrate & put on several types of drugs non of which helped so was told only option was a TURP procedure. As per the majority of people I believed what I was being told & went along with it. After procedure I woke with a drainage catheter & was in extreme pain. I was told this is to be expected & basically suck it up. So I did & it was removed after 2 nights, I then passed the void in a bottle test & sent home. I had no sleep what's so ever & had no bowel movement. Went home & by 3am the following morning I was unable to void. Back to hospital the next day & they fitted a catheter which was oh so painful & then sent home with an instruction pack on how to care for your catheter at home & strong opiut based pain killers. 2 days later I was back in hospital in agony. All they did was put me on morthene for a couple of days removed the catheter & again I passed the peeing several times in the bottle test & they sent me home. The following day I saw my urologist whom reassured me that the pain I was in was normal & I basically need to man up & it will settle down within a few weeks. I was in bits & I was very emotional from lack of sleep & also very constipated from all the opium pain killers. Still I tried to just put up with it stopped all the opium pain killers & only took paracetamol & ibruprofin together with stool softners. 16 days post op I had a Coffee Enema. The pain relief was instant but only lasted a couple of hours so had another one 2 days later which was on the Friday morning. Again instant pain relief which this time lasted around 4hrs. Then the pain returned but even worse. It was like my prostrate was being cut & I started peeing a lot of blood. By the Saturday night I was back to hospital. They did the usual tests urine dip bloods ect. They again gave me more morphine & then sent me home. Then by Monday I was back in hospital almost ready to commit suicide as I just couldn't take the pain anymore. Felt like my testicles, penis & tops of thighs were being crushed.

I was admitted onto the urology ward & again more morphine. As my stats were all fine I believe the consultants just thought I was a woose. I then started to research my symptoms & everything suggested prostatitis. On the Tuesday night I was given sleeping tablets along with pain killers & slept for 9 hours. The longest I had slept in years. I woke with no pain & was able to void like a little boy. I told the urologist that I believe my previous symptoms led me to believe I had prostatitis & he immediately agreed & gave me an examination via the anus. I nearly hit the with pain when he pressed against the prostrate & said he would arrange an ultrasound of my testicles & didn't think due to the pain I would be able to withstand a prostrate scan. He also arranged for a pain specialist to see me that day & to have a biopsy on my prostrate chips for prostatisis. I was then put on Oxycoden every 2hrs. By this time I was actually crying with the pain. I'd had enough the Oxycoden was only lasting an hour & then I was curled up in agony almost going into shock. So yesterday morning when the consultant came to see me on his rounds I told him I'm recording the conversation & asked why he couldn't sedate me to do the scan. He said it was due to the risk of being anesthetized. I said just do it something is wrong & I need it sorted & I've had enough of you just covering up the pain. He agreed & put me on the emergency list for theatre & also put me on an intravenous pain relief that i was able to control. Fortunately the intravenous pain relief enabled me to have the scan without being anesthetized it still hurt though.

The biopsy results & scan confirmed prostatitis. I now beleive that I did not have an enlarged prostrate it was just swollen, therefore I was operated on unnecessarily & that is why I've suffered so badly. It makes me wonder how many others that this would be the case for given some of the horror stories I've read.

I thank all that have taken the time to read this long winded post & interested to hear your thoughts.

I'm currently laying in a hospital bed writing this out of my nut on Oxycoden so hopefully it all makes sense

Many thanks

Shane

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  • Posted

    Shane,  Sorry to hear of your problems and I went through the same in 5 years and ended up with my Prostate removed as Cancer was there as well. I had to go to another hospital area to get my problems resolved as could get nowhere in local hospital. Now I am still plagued with urine infections so seeing Consultant again later this week.

    Please make sure when a urine sample is taken it is cultured as many infections with Prostatitis are not shown on the dipstick test.

    David

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  • Posted

    Hi Shane,

    That is a dreadful story. You shouldn't have had to go through that. It is appalling that your urologist should tell you that pain like that following a turp is normal. It simply isn't. I hope you get cured now.

    Mike

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  • Posted

    Hi Shane ,

    Awful story . Did you not have a DRE

     ( rectal exam) earlier ? The pain you felt during the rectal  examination is typical of prostatitis. I’ve had multiple episodes myself and it causes pain throughout the pelvic area . 

    Prostatitis ( non bacterial) is definitely  enhanced by anxiety and stress . The only help I’ve found is diazapan.  This will relax you and your symptoms will subside but be aware that it’s a highly additive drug . You will find more info about it on line . 

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  • Posted

    If you were in So. FL I would refer my urologist.

    What you have been going through, I for 13 yrs spewing clots of all sizes, peeing blood, ERs, hospital stays. Until this urologist appeared, placed a wire

    in the catheter releasing hundreds of clots irrigating me.

    Photos were taken showing all four previous procedures were incomplete.

    I now have erections, libido is strong, pee with force, unobstructed, do not get up in the middle of the night with urges to pre, can go for hours without having to pre.

    Could have had kidney, renal failure, walk around with a colostomy bag, on medication forever.

    Having the RIGHT urologist is like finding the holy grail.

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    • Posted

      I know what you mean I live in Orlando.  My Urologist is a God Sent  I am deal with Prostatitis now On cispro pills for 28 day.  Not once did he tell me you need a surgery to take care of it.  You just have to be careful  Take care  Ken
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    • Posted

      I don't mean to be negative, but if you mean "Cipro", not "cispro"... you should read up on it... very nasty drug... Google "ciprofloxacin dangers"... may be necessary, but I sure would ask about alternative antibiotics first... my urologist recommends this stuff first too, as it has a rep for being effective for urological problems and procedures... BUT... the very least it will do is totally wipe out your guy biome/flora, so ask about loading up on the probiotics while taking... and definitely for awhile after...

      Just some 411... good luck!

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    • Posted

      Cypro can be very effective at getting rid of bacteria prostatitis and yes it has potential side affects and so do most drugs . If you have experienced prostatitis you would try any meds . However , most prostatitis are non bacterial and Cypro will have no effect . I’ve had all three versions , and cypro is the drug to beat bacterial prostatitis. Side effects are nothing conspired to the discomfort and pain of prostatitis 
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    • Posted

      Look at the European Medicines Agency (EMA) web site and their open debate (June 2018) in London  on that range of antibiotics and you will change your mind. It was instigated by Germany who want then banned for all but life threatening conditions. Delegate from round the world gave their views.   
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    • Posted

      Yes it is Thank you was in a rush.  Watching 2 of my Grand kids in Ga.  4 & 6 year old.  Also that is the way my doctor told me to take them with a probiotics.  I also hav read up on it before.  Thank you  Ken

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    • Posted

      Hey, take whatever you wish... not everyone has the terrible side effects that this class of antibiotics can render... but those that do are REALLY messed up by them... Google "Dangers of Cipro" for some chilling reading.  IMO, not worth the risk when other safer meds will likely do the job.

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    • Posted

      I agree , just read some info on them as you suggest. It’s worrying that GP’S ( in Uk) still dish them out without any mention of the potential issues . 

      I was on them for 8 weeks because of chronic bacterial prostatitis and they worked and was then put on them 3 years later  for 12 weeks when it resurfaced and they didn’t work . 

      As far as I’m aware these types of anti biotics are the only type that can penetrate the prostate. 

      The problem with prostatitis is that most cases are non bacterial so no AB’s are going to work but I must confess that I’d have second thoughts about using them again now . 

      Has this info not seeped through to UK doctors yet ? 

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    • Posted

      thanks... I didn't know that they are the only type that can penetrate the prostate... that seems odd... I mean, they all travel via the blood stream... so... ah well, who knows?

      Report Reply

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